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-   -   Vaccine Trial (https://her2support.org/vbulletin/showthread.php?t=37601)

SuThorn 01-18-2009 07:39 PM

Amelia-

I am praying that you will get accepted in the vaccine trial. Let me know which one you are trying to get into. I am currently enrolled in the vaccine trial at UW in Seattle. I went for my second vaccine early this week.

Regards, Suzanne

schoolteacher 01-19-2009 10:33 AM

Michele, Joan, and Suzanne,

Thank you for your replies. I am trying to get in the one in Washington.

Joan, I am glad to hear from you. I hope you are doing well. Please let me know.

Michele,

Please let me know where else your BC was. Are you still taking Herceptin?

Suzanne,

Do you plan on taking Herceptin for an additional year?

Amelia

SuThorn 01-19-2009 11:52 AM

Amelia-

I plan on continuing to take Herceptin as long as it works for me and I plan on that being a VERY long time! I was Stage IV from initial diagnosis, so I have already been taking it for almost a year and a half. Keep us posted on Seattle, maybe our paths will cross.

Regards, Suzanne

schoolteacher 01-20-2009 05:53 AM

Suzanne,

Thank you for letting me know you are still on Herceptin.
I still have not heard from the final doctor. I hope to hear today.

Amelia

schoolteacher 01-20-2009 12:52 PM

I got the e-mail this morning. I am in the trial.

Yeah!

Amelia

StephN 01-20-2009 01:13 PM

That's great news! Glad to have you coming to our Medical Center and hope to be able to meet you as I live only about 20 minutes away. Same for Suthorn next time you are in town.

Since there are more than one vaccine, which one will you be getting?

schoolteacher 01-20-2009 01:19 PM

Steph,

I have contacted the American Cancer Society, and the woman there is sending me information on taxi service from the airport. I may have to come by myself. If you have any suggestions', please let me know. I am looking at flights now. I will probably fly in on the 29, have my appointment on 30, and fly back home on the 31.

Amelia

Jackie07 01-20-2009 03:52 PM

Congratulations! Amelia.

Wishing you a safe trip and successful trial.

dhealey 01-20-2009 05:33 PM

Congratulations Ameila! Wishing you best of luck with the trial and a safe trip.

Debbie in North Carolina

schoolteacher 01-21-2009 05:35 AM

Thank you Jackie and Debbie. I am very excited about participating. Hopefully, at some point with this vaccine I will be able to stop taking Herceptin.

I thank God for letting me go and participating. This time last year I did not even think I would be alive.

Amelia

Missyw 01-21-2009 08:22 AM

Hi Amelia,
I found this contact information re: lodging help in Seattle. It has been two years since I traveled, but hopefully this information is still good. Good Luck!!

Missy

Leslie Rickard
Cancer Resource Call Center Coordinator
American Cancer Society, Great West Division,Inc.
2929 E Thomas Rd. Phoenix, AZ 85016
t)602.952.7545 fx)602.224.7476
Call Center 866.500.3272
leslie.rickard@cancer.org
If you or loved one needs help or information about cancer, please call 1-800-ACS-2345 or visit us online at www.cancer.org available to you 24 hours a day, 7 days a week.

schoolteacher 01-21-2009 08:52 AM

Missy,

Thank you for all the help.

Amelia

Shobha 01-21-2009 09:28 AM

Congratulations! I am so happy for you.

schoolteacher 01-21-2009 09:42 AM

Shobha,

Thank you.

Amelia

Believe51 01-21-2009 01:46 PM

Oh my goodness, I missed this post and I am so sorry. Gotta go catch up on the prayers after I finish, whew. Praying that this is the magic potion that my great friend Amelia needs. I am simply thrilled you got accepted in this trial and pray that this is all of what you need. See ya, got prayers to say!>>Believe51

SuThorn 01-21-2009 06:06 PM

Ameila-

Congratulations on getting accepted into the trial. I travel back on February 8th for my next vaccine. Please feel free to email me with any questions.

Regards- Suzanne

schoolteacher 01-22-2009 05:35 AM

Believe,

Thank you for your response. I am very excited about participating.

I pray for the Mighty Oak. Please know that. How is he doing?
How are you doing? It has been cold down here in Georiga, and I actually got to see some snow Monday night. Big Flakes.

Marie, God continues to bless me in so many ways. I know it is him that has gotten me into this trial.

Amelia

MMM 01-24-2009 03:50 PM

Can someone tell me the prerequisites needed to qualify for trial?

SuThorn 01-24-2009 05:39 PM

I know that there are many different vaccine trials going on right now, but the following are the criteria for the peptide based vaccine trial that Amelia and I are doing at UW.

Stage IIIB or Stage IV, HER2+ and on maintenance Herceptin for less than 6 months. You must be NED or stable bone-only disease to be eligible.

Regards- Suzanne

schoolteacher 01-26-2009 05:48 AM

Thanks, Suzanne, for posting the information.

Amelia


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