Brenda,

Just want to add my support and let you know I'm keeping you in my thoughts and prayers.

Brenda,

You are another amazing warrior we are so fortunate to have on this board. So glad this was caught early and you are already working out a plan.

Brenda, no one encourages us more and calls us to task more than YOU! You have a great doc, but he has a great patient! Wishing you a speedy healing. ma

Brenda I am so sorry to hear of this development for you, but I know being the warrior you are you will kick those mets to the curb.all the bestcaya

Brenda,

Adding my support, too. You are in my prayers.

Karen

Brenda,
Lets just get those buggers outta there when they are still small and wipe them out!!
We are all behind you all the way!~
Sending you all my postive thoughts and prayers....
Maryanne

Oh Brenda !

I am thinking about you and hope all the nasties are cleared away soon.

You have that amazing brain of yours well trained to look in the right places for results.

xo
Maria

Brenda
I would say those spots don't stand a chance, knowing you.....give 'em the what for! Sending thoughts and prayers that this will be taken care of pronto and you'll be the 1/2 beer Brenda that we all know and love SOON!!!!!!

Wow Brenda
 

I'm sorry to hear of this latest development. What I admire about you is that you don't react with doom and gloom, but you react with a very logical approach. I'm sure most people reading your posts will agree with me. What a good example of courage. Be well.

Brenda,
Many of us have had 'set-back' news, and most of us did not handle it with your grace. Your information, and how you handle each situation sets a standard for the rest of us. I jokingly said to my primary nurse, that I would put my house up for sale in order to pay for Tykerb. My onc. called later that evening and said "please do not sell your house, so that you can pay for Tykerb south of the border". I assured him that I was only kidding around with his nurse. Anyway, I re-directed my energies in having fun, fund raising and running around in circles trying to get goverment officials respond in a positive way to approve Tykerb. I have run the circle twice, being the 'bucket' in pass the bucket. We now have a Federal election in October and I will be the 'big wheel' and try going around in circles again.
Best wishes to you in your journey,
Hugs,
Diana.

Brenda, I am hoping this little setback will be taken care of asap. Ceesun

Brenda, Just wanted to let you know I am thinking of you. You seem so positive and strong. I know you will stay on top of this. Take Care. Sally

Brenda
My thoughts are with you and I know you and your
Dr. will choose the right treatment for you. I admire
your spunk. Remember we can't control the wind, but
we can adjust our sail, as we all know. Best of luck and
healing thoughts
patb

Brenda,
I just want to say that among ALL the reasons I admire you and you are my hero, being able to say "OOPS' regarding news of progression has to be way up there! I usually have used stronger words...but I think I like your approach. After all, since this little bump in the road doesn't stand a chance against THE HUTCHIBK, all it deserves is an "oops"

Knock 'em dead, hutchi.

Thanks all - I don't have enough reserves to get down or worry about it... being a mets patient, we just know that at some point we will probably have to move to the next back-burner plan. The saving grace is to have identified a back-burner plan ahead of time and to stay well monitored so that there are no big surprises... this is small and manageable and not unexpected. Not preferred either. LOL. I have a nice list started of back-up plans on deck if we need to adjust, and thanks to all here who are paving that way for us all!

Pat- you know I love that saying, and that is my credo. We can't control the winds but we can adjust our sails - that pretty much should be the credo for all mets patients.

Will let you all know more as I know more.

Hi,

So glad you posted while I was thinking about you. I think your doctor was choosing LINAC over Gamma Knife because the mets are quite small in size after they had shrunk.

Because it involves with our brain, doctors always take a 'wait and see' approach. My 'residue' brain tumors never worried the neurosurgeon until they suddenly started to double their sizes. They were about 2 cm each in diameter, and the GammaKnife RS has been effective in keeping them in check. (still there about the same size, just not growing anymore)

I can't add anything to the information these amazing women have given you. So I will send all the very best and hopes for quick response to treatment.

YEAH!!! So we looked at all of the scans today going back 9 months, and these spots are nothing new. They are the same spots that we have known about all along. The Tykerb and Xeloda knocked them completely back for the last 18 months, but now they are waking up a little, so we will whack-a-mole them with STRT (same thing as Cyberknife). The really good news seems to be that since we see absolutely nothing new, it seems that the Tykerb/Xeloda is continuing to protect my brain from any new interlopers. Looks like it is just a matter of whacking these things back. I will start my rads on Weds - and will go for a 20 minute appt for 5 days straight and that is it. The spots range in size from three spots that range in size from 4mm-10mm to two very lightly enhanced 1.5mm spots that he wants to just go ahead an take care of since I will already be on the table. I can't wait to get started!

Got a PET/CT today, too, so hope to have negative results from that in a day or two.

YES Brenda!! Kinda reminds me of whacking those weeds out of the garden. I am so happy for your news.
Will keep those positive thoughts going your way for the PET/CT results.
Maryanne

PS...did you do ok through the hurricane?