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-   -   a little good news to share... (https://her2support.org/vbulletin/showthread.php?t=33880)

nitewind 05-07-2008 06:15 AM

That's the kind of news we need to hear, Chris. Congratulations, I'm so happy for you. I love the way Bill put it!
Hugs

kimber 05-07-2008 06:22 AM

I am so happy for you Chris!! I'm with Bill. It is time to shout it from the hill tops. You are here to stay!

My heart breaks for the friends that we have lost. However, you give us all hope Chrisy. Thank you for sharing your wonderful news!!!!!!

Joy 05-07-2008 06:57 AM

a little good news?
 
Chrisy, this is great news! I know exactly how you feel posting good news in the face of all of our grief. It can feel wrong, but it isn't. We need this hope from you and we know it doesn't diminish a sense of grief an love and respect for anyone.

I am very happy for you and look forward to all of your updates. You keep kickin' it. We need you to.

I love you and am so happy for you.

Joy 05-07-2008 07:17 AM

surgery over
 
Well, I am very happy to report that I had my oophers out yesterday and it went really well. I got into surgery early. The staff and OB/Gyn were fabulous. My friend Martha was my angel. She went with me and hung out with me afterwards. I woke up giggling and feeling totally normal (for me anyway). Almost NO pain and have been up and walking around and visiting and all in all feel T-RIFF. They even kept us there longer because as they said, "we were so much fun." It was like a salon. We chatted about boys and sex and kids and school and periods and everything. The nurse kept coming in and pulling up a chair to see what we were laughing about. Martha brought me home and got us pizza and my other best friend showed up. I got flowers, e-cards, phone calls, dumb magazines and my new man is bringing over homemade bread for me today. As bizarre as it sounds it was a great day.

I only lost it when Martha and I hopped in her car after I said good-bye to my boyfriend. She asked me how I was doing with all of this and I cried and cried and babbled about not wanting to feel like less of a woman or be seen as less of one, espcially with this new relationship. And that I was mad to have to deal with this at all (sound familiar to ALL of us). And that this better work. I want to be around for my kids and for Luca SO much. I have never experienced love and caring for someone with such reciprocation EVER. I want this future. I want it for all of us.

I keep trying to find studies on oopherectomy and/or faslodex/herceptin success. I have found some, but not a lot. I have been lucky to have been such a responder to so much and I have all this fear that this will stop.

My onc called on friday and as you know it is always scary when they call you at home to chat. I had the total parasympathetic reaction to her voice and then she told me that she had finally gotten a hold of Dr. Geyer in Pitsburgh who pulled together the tykerb/xeloda trials. He said that he felt we were on the right path and that he is very excited about hercptin dm1 and he told her to tell me that he was proud of me for hanging in so well and doing so much. He also said to tell me to not lose hope as there are so many other things in development. He is excited about heat shock protein stuff, newer egfr inhibitiors, the small but successful trials with herceptin and avastin. And he said he was very impressed with my success. I hung up and burst into tears from relief and the love that I felt from this doc who doesn't even know me and whose opinion in this onc world means something. People are good aren't they?

So I am trying to take this to heart, still a struggle. I would love any information on stage IV response to oophorectomy/endocrine therapy with herceptin in er/pr+her2+ dx's. And any hope for libido if it gets lost, although I am so in love and attracted to this man that right now I am not as worried as I was.

Again, I'm very sad and sorry for our recent loss and some struggles. I think about all of you here and in heaven so much with such love and respect. But I think we should all feel comfortable with sharing good things still as for those of us here it helps so very much. I say this as I struggle with it myself. But we need to stick together.

SoCalGal 05-07-2008 07:39 AM

What great news Chris! Thanks for posting it - I'll keep in mind the endless possibilities for success when I'm having my drip today. Really really happy for you. xxooxx Flori

caya 05-07-2008 07:49 AM

Thanks for sharing...
 
The great news Chrissy. We always love to hear good news, even more so this week. I am thrilled for you.
One step closer to the cure.

all the best
caya

Julie2 05-07-2008 07:54 AM

Chris,

Wonderful news. It gives lot of hope.

Julie

Believe51 05-07-2008 08:51 AM

Yeeehaaa!!
 
Chrisy, this is very well needed and I can understand the point when saying you almost did not want to post this amiss the grief we have suffered this week. Ed cried more that he is doing so well and two of his Sweeties were sent to God.

We must remember that we are still here and we still need to gather the HOPE that we so all need. This makes my heart a little bit lighter. Thanks.

And just so you know, Ed's markers are almost at normal range, petscan shows marked improvement, no progression, bone repair. Brain shows PERFECT, like there were never any problems there before. Doctor actually used the word 'Miracle' and she specializes in the brain.

United we stand. Keep supplying us with HOPE, Lovey, we are still here and we still thrive on it!!

Soccermom 05-07-2008 09:33 AM

Wonderful news Chris! YOUR good news helps us all to see some sunshine..

Hugs,Marcia

Faith in Him 05-07-2008 10:16 AM

Chrisy,

I am very happy that you shared with us and especially that the treatment is working for you. Keep up the good work.

Hugs,
Tonya

ElaineM 05-07-2008 03:53 PM

A little good news
 
HI.
Congratulations !! That is great !!

hutchibk 05-07-2008 06:26 PM

Yippee Chrisy!! I love when trials start showing good stuff and I am thankful that this one is working for my sweet friend!

Vanessa 05-07-2008 06:39 PM

GREAT NEWS, CHRIS! I needed to hear that. So glad that tx is looking up for you!!!!!!

Paty 05-07-2008 07:00 PM

I am happy for you Chrisy!

Paty

Joan M 05-07-2008 07:03 PM

Chris, This is wonderful news. Thanks for sharing it with us. Joan

kareneg 05-07-2008 07:28 PM

Thank you so much for the happy news Chrisy you always in my prayers.

hutchibk 05-07-2008 09:48 PM

Karen- I just want to say that your picture is beautiful.

Sheila 05-08-2008 07:49 AM

Chris
That is great news...and we all need more of that this week....it sounds like the new treatment is showing your liver who's boss....in no time you'll be back in the woods sipping vino......keep it up!!!!!!

PinkGirl 05-08-2008 07:59 AM

"..... back in the woods sipping vino".... that's a good one Sheila. I'm sure that's what she's doing when she's
hiking through canyons, but she always denies it. I know
that thing she calls a water bottle is a martini shaker.
Chrisy thinks she has us fooled.

Very nice new picture Sheila. Are those forget-me-nots?

Sheila 05-08-2008 08:03 AM

Pink Girl
Very Keen Eye......Yes, forget me nots....what I planted for MichelleH


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