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-   -   Pulmonary Embolism (https://her2support.org/vbulletin/showthread.php?t=32099)

Believe51 01-10-2008 11:02 AM

My Tousled1....
 
I am praying for you to continue to remain strong to keep fighting all these big bumps in the road. So here is to the blood thinners that will do the trick and then off to the next issue. Ed and I are sorry to hear this news, just one thing after another for you Kate!! Ughh!! We are both keeping you in our prayers and of course positive thoughts....today and always.

Go get 'em girl>>Believe51

tricia keegan 01-10-2008 01:56 PM

Kate sending all my good wishes to you, thank goodness it was found when it was. Hang in there girl!

jones7676 01-10-2008 02:15 PM

Oh Kate, I'm so sorry you have another problem to deal with. I hope they can clear this up and you can move on. Thank goodness they found it and hopefully they can fix it for you! I'm sending positive thoughts your way!

Andrea Barnett Budin 01-10-2008 03:20 PM

Whew! That Was Close... Dodged A Bullet!
 

Okay. Dear Kate, You keep coming up w/these things. Pulmonary embolism sounds very painful and scary. Glad they found it and you are already getting blood thinners to treat it! Thank goodness! You do have an angel on your shoulder. Just feels like a black cloud. Damn annoying though. Did you have chest pain, shortness of breath? I did not know of the drug you got, only Heparin and Warfarin. Know you are in good hands, w/docs on top of your case! Wow. I am sorry you have to deal w/this, yet grateful it was found before it did damage! My thoughts and prayers are with you, as always, my sweet special Sister... Sending more loving, healing energy -- till you are well!!! Can you feel it? I am including HUGS!
Andi

Donna 01-10-2008 03:28 PM

You go Girl!
 
Keep your chin up and get that embolism blasted outta there!

Praying for you!

Donna

lexigirl 01-10-2008 03:41 PM

Dear Kate,

I am sorry that you are dealing with another set back. Enough already! I am happy that they found it before something more critical happened.

Hugs,
Lexi

Sheila 01-10-2008 03:53 PM

Oh Kate
I am so sorry that you are going through even more....you do have an angel on your shoulder that this was found and is being treated quickly as they can be dangerous...it may have developed while you had pneumonia and were lying around more than usual....get the Dr to order you a pair of TED hose or compression stockings so when you aren;t as mobile, you are still protected.
Sending you love, hugs and many prayers dear friend...get well!

madubois63 01-10-2008 05:46 PM

I have to agree with Sheila - you have an angel on your shoulder. I am so glad this was found and treated before it became really serious!! I do know how much it stinks to be told something else is wrong!! God bless you!!!

tousled1 01-10-2008 07:46 PM

I went for my Herceptin treatment today and saw the nurse practioner. In my opnion she's about as much help as a fifth wheel on a wagon. Can't answer any questions you pose, etc. I got another shot of Arixtra today and will continue to do so for a week to 10 days and then it's on to coumidin. I do have another scan scheduled for tomorrow to specificially look at the embolism. I tried to get the complete results of my scan from the NP but she would not give them to me. I see my pulmonary doctor on Monday so hopefully he'll be able to give me more information. I'm soooo mad that I didn't see my oncologist today. I will see her next Thursday and I will have my list of questions.

I did have a clot way back when I had my first port inserted and that was treated with Lovenox shots and then coumidin until 10 days before my surgery. I haven't had any problems since until now.

I did fly to PA over the Christmas holiday and am wondering if that may have contributed to the embolism. But I guess it doesn't do any good to think what if, etc. I just have to accept this is what is and go on from here.

I'm just hoping that when I see the oncologist next Thursday I will get the full report of my scans - brain, chest, abdomen. I want to know if the lung mets have grown, are stable or somehow disappeared. For now we will just get our dialy shots and work on my list of questions for the oncologist next week.

Thank you all for your concern and prayers. Thisis like taking one step forward and two steps back. But, not to worry soon we'll be taking two steps forward and none back.

caya 01-10-2008 08:46 PM

Kate,

Thanks for posting this update, I was thinking about you today and wondering if there was any news.

Yes it stinks that you did not get more information, but I sure your pulmonary doc will be able to give you all the info about your embolism.

I am praying for clean scans for you and doing the happy dance with NED.

all the best
caya

Bill 01-10-2008 08:49 PM

Hi Kate! Sorry to hear about the embolism, but I know those blood-thinners will work! I love your positive attitude even in the face of all these obstacles. I'm praying your scans are all clear and I want you to know you're in my thoughts and prayers. Love to you, Bill

lilyecuadorian 01-10-2008 09:31 PM

Kate I can't go to the bed with out let you know that you are in my prayers and I know you will win this one again ...one by one

Andrea Barnett Budin 01-10-2008 10:00 PM

Get What You're Legally Entitled To!
 
Kate, my touseled friend --- what about the Patients Bill of Rights? You are entitled to all your reports upon request.

I get Ct scans reports mailed to me and received in 2 days. Other offices will fax them right to me, in minutes. They are your reports. You have every right to them.

I have had a string of NP that are useless, a great source of misinformation, lacking compassion, and plain rude. I had 1 other such person in an outpatient surg clinic but not a one since '95. Now I'm embroiled in a string of one after another. Useless, snippy, cavalier (like we're discussin my tires...). They may be efficient, from the doc's point of view, but they lack humanity from mine.

You should be able to get your hands on the info you want tmrrw! I am alw nice, ladylike, but firm. No need to be rude, or demanding or threatening. But I want what I want (and am entitled to) when I want it, thank you very much... I'm a 12 yr professional patient. Don't mess with me little girl...

Andi

Jean 01-10-2008 11:41 PM

Kate,
Sending you healing energy...
I will never accept how any dr. could make a patient wait an entire week
for scan results!!!!! How cruel...Dr. know waiting for scan results is stressful...what are they thinking?

That is why when the Dr. is not available your NP should have given you the report! I am angry for you.

Jean

Patrice 01-11-2008 04:49 PM

This stinks, Kate! You are such an inspiration to me and all of us. You're in my prayers, always.
Patrice


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