Dear HavahJ,
I am sorry to hear your news. If it makes you feel better, I always read all the posts and I remember yours. I am sorry for the course your BC has taken. I hope that you will have good results in LA. Remember that we all pray for you even if we don't have the answers to your questions.
Hugs,
Anne

Havah, you are in my thoughts and prayers, and I hope your trip to California gives you some answers. It's very hard when you feel options have run out, but you don't have to stop posting, we will still be here if you need us.

<3 Lolly

Havah,
I am glad you have decided to go out Calif. for a further consultation.
You are very wise and brave. I am keeping you in my prayers.
I hope we will be hearing from you with good news.

God Bless,
jean

Please don't give up yet
 

Havah,
I hope you read Joe's post and go to California with hope. I know that is truely what we all share. Hope is a wonderful thing that is never to be underestimated. I will look for your post upon your return.
Prayers going your way,
Emelie

Safe journey Havah. Hope you get some encouraging news in California. Will be thinking of you!

We all care about everyone on this site and as stated before, if we don't answer it's because we don't have an answer NOT because we don't care - we do. I wish you all the best in California. You are feeling really down right now but remember you are not alone in this struggle and things might just get better ....so prepare for the good things in life and cherish the time and friends you have. We all care about you and wish we had that magic wand ---- but perhaps YOU have it. Believe and stay positive.
hugs and love
sarah

Havah,
Please don't give up! Your post broke my heart. I want to reach out and hug you. I read all the time and don't respond very often because I don't know what to say. I learn from others on here. I do know one thing, you have to believe and have hope. I believe in the power of prayer. I am praying for you. Keep your head up.
Susan

If I listened to the doctors every time they told me I was dying, I'd be dead 4 or 5 times over some 7 or so years ago. Thank God I don't listen, and you shouldn't either!! As to not having anything in common with us, that's just not true. You and all of us are fighting for our lives everyday, and that's just too common. My circumstances are not the same as anyone else either, but I still come here for the support and love that has always been available. For over a year now, none of the information pertaining to inflammatory bc, being stage IV, metastasic disease, her2, er+/pr+ etc...has been my priority. For a long time, I did not feel like I belonged on the BC boards or the Leukemia boards. Very few people get leukemia from chemo like I did. I tell my story just in case one person needs to know. I am sorry you feel lost right now, but I'm happy that you are becoming proactive in your care and going to CA. I had to leave my 2 teens (and my dog) for nearly 2 months and travel 8 hours away. It was the hardest thing I've ever done, but I do believe it was my CURE!! I pray you find your cure too!!! Good luck and God bless...

Madame Dubois
 

Madame Dubois, you are a very wise woman. I hope Havah is reading all of these posts and knows that the people here really do care about her.

God Speed to you Hava. Ceesun

Sending prayers your way HavahJ. Sorry you are leaving us and hope you will reconsider and give this board the chance they all deserve. Everyone here means well and cares. Hope you receive the help needed in California and are given the chance to come back here.

Madame Pinkgirl....I don't know where the madame came from, but I like it! Has anyone e-mailed Havah?? There really is a lot of good here for her.

HavahJ,
I'm sorry you are feeling alone. You do indeed have many friends here who care about you and would wrap you in loving arms if we could. Although your Mayo docs have given up, it seems you have not. Do not lose heart while there is still the possibility of getting different answers in California. You just don't know what still may be possible.

God bless,
Chris

Havah, I hope they can find something that works. Let us know, we care. Bev

You have many people praying for you! I read alot about Dr. Keith Black #1 brain tumor surgeon, he takes on patients no one else will touch. As mentioned by Joe above, I certainly hope you will make a point and have the opportunity to see Dr Black, in CA. He is world known for his miracle surgical skills.

For an appointment, a second opinion or more information, please call 1-800-CEDARS-1 (1-800-233-2771) or e-mail us. mdnsi@cshs.org <mdnsi@cshs.org>


Hrayr K. Shahinian, M.D. Medical Director is regarded as a pioneer in the field of medicine for his revolutionary use of minimally invasive endoscopy in performing skull base surgery. Dr Shahinian leads a world-class team of specialists at the Skull Base Institute in Los Angeles, is breaking new ground by treating his patients using micro-instruments to access the problem areas. By utilizing this revolutionary technology, along with fiber optic, high-definition video that enables him to have a panoramic view of the interior anatomy of the skull, he skillfully removes tumors and repairs vascular problems while, at the same time, dramatically reducing operating and recovery times.



It's definitely not time to say Good bye. It's hello from me. I have not communicated to you before, but I am confident God will hold you in his loving arms and take care of you.

Havah J

Please stay positive and please have a look at the omega three and six posts as part of a risk reduction strategy.

I hope things go well.

RB