Flori - that is too funny! My PS is Kulber as well. And I agree about Silberman, I checked around before my bilat because he doen not contact with insurance cos - after hearing of his reputation from other surgeons I decided to just go with him. I love his manner and support staff too.

11 yrs - wow! Did you do surgeries for the local recurrences? What is the normal protocol?

Swanky,

I am so glad you joined this board. I am also from Bakersfield and as a matter of fact our husbands work together. I also work for some of your family members - The Holberts. When I read your post I recognized your story and had Faye look at your picture and she confirmed it was you. If you ever want to talk you can email me at sbrantley@atginternet.com or call me at the store.

Good luck with your new treatment.

Stephanie

hi, swanky-

your supraclavicular nodes only puts you at stage IIIC, not 4. Welcome here, there is a wealth of knowledge, and your trial sounds interesting. Keep us posted - will you be having a treatment?

Regards,

Hi Swanky from JoJo
 

Hi Swanky,

I was originally diagnosed 3b in 2003 (3c in new rulings since '04 or '05 or '06??) I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!

Then I recurred to a supra node. I had it a good long while. Abraxane finally wiped it out. I didn't get to ask, if I just turned to stage 4 at that time; I just didn't think of it. Me duh!!

Then a brain met was picked up by a routine brain MRI. THAT, I knew, would indicate that I advanced to stage 4.

So far, my brain is clear....

Hang in there!!

Hi Swanky,

I have 4 kids too, 14, 12, 10 and 8. My DX info is in my signature, and the speedy recurrence to my lymph nodes is similar to yours. At the time, my doctors agreed that I was stage IIIc but I got an upgrade halfway through chemo when they found some spots in my lungs. I wish the airlines were so quick to upgrade!

I was glad to be guided to this board by a friend in a yahoo group and find support here.

I think I managed to get my picture on the side by adding it as an avatar.

I love the brandname of your new pills and think it is very appropriate.

Keep kicking major you know what!

Best,