My TMs have dropped from 45.1 to 37.5 to 17.5 after only 6 weeks on Xeloda and 4.5 weeks on Tykerb!! And my brain MRI is stable with one of the bigger spots looking less enhanced...

I am loving it too!

Hi Flori,
Thanks for the info. I'm so glad my friend found this support group for me. I'm learning a lot from it.
My rash are clearing up a little but still itch terribly and my pimples are clearing but getting new ones :-( my skin is so dry!
I'm still afraid to take the pills. I just started at my job three months ago. I was on disablity for a year. I had to go back to work for health benefits for me and my two little kids, aged 9 and 8. I'm a single mom. I've been traumatized with all these awful side effects for the past 4 years. I was so happy with Herceptin for a year because no side effects and my tumors were shrinking and decreasing. But the last CT scan showed new tumor (armpit) and tumors multiplying (both lungs).
I know my onc and her nurse practitioner will nag me about this.
You probably are as you are reading this :-(

Hugs,
GemmaG, 39

Don't mean to nag you...
 

Hi GemmaG,

It sounds very hard, having two young kids, working and then the crazy tumors are acting up!
Don't mean to nag I'm just wondering were you able to take the lowered dose? There is a great variation how much people are taking. The Tykerb/Xeloda seems to be terrific in holding the mets in check. Hope pray and trust it works for you!

I'm having a hard time taking all my pills... sometimes I end up not taking my vitamins because I get so tired of it.

Hope you feel well, best wishes and stay strong prayers are going your way,

Odette

Me too Odette... there are days when I can't swallow one more pill and I forego the vitamins as well. Especially with fairly precise timing of dosing and eating, etc. If I get just a little off my schedule, something has to give, and it ends up being the vits from time to time...And to top it all off, I have a week of antibiotics to add to the mix for a sinus infection...

Hi Brenda,

do you want to try the chatroom? It is pretty cool!