???Joe...Facebook anyone???
 

I am not fearful of Facebook. I am selective.
I am a pretty private person. One cannot be too careful about "what's out there" for the whole world to see and use. I don't want a site like Facebook to have rights to my information.
I don't even click on forwarded messages my friends and relatives send me. I just delete them unopened and
move on to real e-mails from real people bringing me news and friendship.
I also think having one meeting place like we do here is better than having two meeting places. I like our her2support.org site and probably wouldn't visit Facebook anyway.
I would like to suggest that our friends who have Facebook sites, websites or blogs and want visitors from our site feel free to put your contact information in your profile, so thoe who from our site who wish to visit you at other places on the internet can do that.

I like this site here just fine for me. I will not ever join a FaceBook, My Space or any other thing like that, as too many things can happen. Yep call me a chicken, but I have heard way too many stories.

We DO have a GALLERY space on this web site for posting photos. It used to be used more till the site underwent an upgrade.

See the yellow bar above that starts with "HOME" and Gallery is the 4th choice from the left.

There was a way for members to have an "album" before, but I have not looked at this new version closely.

I think we could make fuller use of this site, share and have a little more privacy.

Personally, I don't really have time to go to many other web sites.

????Joe...Facebook anyone
 

I like your thoughts StephN.

This may be one of the projects that the advisory group may wish to address. Other alternatives may be a "blog" or a fliker account.

Regards
Joe

Just a little update on the copyright issues associated with Facebook membership.

http://www.pcworld.com/article/15970...complaint.html

I found a program which may work in lieu of Facebook.

Here is a sample website: http://www.sustainabilityforum.com/forum/#

Look at the bottom of the page and also click on "Chatroom" on the navigation bar.

Pros:
You can delete your own posts
No need to reregister, if you are already registered on the forums.
As anynomous as your present registration.

Cons:
Cannot upload photos..We will have a new photo album on our renovated website.

Let me know if this program will work.

Regards
Joe

Joe...
 

Actually, I LIKE that forum as it is similar to the one for Frugal Village and we can do a lot of fun things with it. Thanks for checking into something. Take care and God bless.

I really need some feedback on this.

SAMPLE FORUM


Joe

Joe, I am wondering why we need another site. Is it so that we will have a more social space? I would not want to lose the sense of camaraderie that we have here or take away from this in any way. So many of the sites are more focused on making conversation but this one is so educational and supportive. Would another site dilute that? Just wondering,

Leslie

The chatspace would become an integral part of our current message boards.

I agree, I really do not wish to go outside our organization.

Regards
Joe

I would prefer to use this wonderful website, expand/upgrade it etc. for pictures, blogs, etc. if members wish to do that. Since Joe is planning on renovations, why not keep this in mind?

I also agree with StephN - we can make fuller use of this site etc. and maintain some privacy. I also would prefer not to go to yet another website.

all the best
caya

????Joe...Facebook anyone????
 

I am happy with what we have here. I don't want to go anywhere else. It is the best breast cancer group on the net. It is informative. We can learn alot and find resources. We can form friendships and support or help each other in whatever is going on with out health. I don't need to see photos or other things. Maybe just add a working chat with more options for those who want to chat. Those who want more photos can help you expand the community part of this website if you think that is a good idea.

I'm with Elain, Stph N , Caya. I don't need more photos, just the wonderful support of those here at this site. Maybe it's because i'm somewhat computer illiterate, but this site is enough for me. Thanks for all the input and suggeations. Just offering you one more....Vickie

My vote is to stay here with this site. I didn't see any significant advantage to moving to this new site.

But I could envision the technical hassles of moving all our archived historical material over there.....

Not worth it.

Joe--another thought on facebook
 

I use Facebook and like it for many reasons. However I agree that specific and personal information belongs here on a site like this. I don't thin another site is needed.

However, with that said, I think Facebook might be a great way to help thers find us on this site. If Joe thinks this would work, I'd be happy to set up a group on Facebook for us. It would be something like this:

* purpose would be to support the her2 BC cause.

* include a brief decription of her2

* This site would be listed -- to inform people about it, and then they'd have to join just as anyone would if they found us through other channels.

No duplication or content or anything that duplicates what's on this site. Keep it very simple...use it as more of a "marketing" tool to help interested Her2 people to find this site.

A separate idea is to create a field in our profile on this site to list our individual Facebook link. Then users on this site who would like to be a friend of ours on FB could find us easily.

????Joe....Facebook anyone????
 

Let's not create more work for Joe, Christine and their helpers (if they have them). Let's have this and let's have that translates into alot more technical work for the webmasters.
I am happy and thankful for what Joe, Christine and their helpers have provided here. I don't need anything else.

Facebook
 

I just joined facebook and find it a great tool in keeping up with friends and family.

I was just introduced to a game called Prolific which is a game like Boggle. I think it is helping me somewhat with my chemo brain or at least making my brain work more while trying to figure words out. I invite you all to try it. Go to the search button and type Prolific. There are people world wide playing. To me it is a fun way on making my brain work.