Re: attn: Rolepaul, Marvass et al Review article on IT herceptin stresses need 4 ClT
 

How did Nina feel with the IT Topotecan. I am getting the 100mg of IT herceptin and that overall goes very well.
Waiting for neurosurgeon to review t-spine, no new lesions t3-4 not measurable T8-9 grew 3mm and now have lots of edema again, will probably have to go way up on steroids from my 2.0 to 4-5 mg. Otherwise body clear. Has topotecan been used alot in the csf? kinda stuck not being able to pull data from internet for oncologist to contemplate using IT topotecan.

I have so much nerve pain, This past month and a half so many family new cancers, deaths, surgeries, it has been crazy.
Just worn, emotionally and physically. scared of being paralyzed or stroking.

I know that that God is Good and I am not giving up.
Merry Christmas to everyone!!

Darita

Re: attn: Rolepaul, Marvass et al Review article on IT herceptin stresses need 4 ClT
 

I hope everyone is having a nice holiday with family and friends and feeling well.
My daughter evidently is not confident she will return to full stability -enough to ride her two wheeler - as she gave it to her sister this holiday season.
We plan to get her the three wheeler in a few days as a gift. This will safely get her out into the sunshine of Florida again.
Overall she is doing well except for losing her hair again, shaving her head, buying a new wig.
Happy holidays to all!
Ev