Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

I don't have any wise advice about how to get the Perjeeta. I agree with everything Sheila said. Im just sad..sad everything has to be so difficult, sad that you have to fight so hard to get what you need to survive. I know you will get the drug, because I have seen how hard you fight, and I know you and your docs will find a way. I can give you a hug, and I can't give you any meaningful advice, but I give you my prayers and all the positive energy I can muster.

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Chris I have no advice sadly but I'm horrified you're being denied a drug that may help you,this would'nt happen here in Ireland and I so hope you find a way round this and will see if any of my friends in the U.S can help!

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Dear Chris

It shouldn't be so hard but you are stronger. You and your oncologist need to appeal - both of you. Over and over again if necessary. I do know one thing, the greasy wheel does get the oil even though it might take awhile. Go through their process and call, call,call - everyday - all the time.

I did this for my daughter and although not life threatening, they relented and gave her treatment (took about 2 months and 2 doctor interventions) but it did work. You have a local onc too who can join the party. The insurance companies just want to know how serious you are (duh - like we aren't if we have cancer). It's alot to ask when you are having chemo (use that sweetly when talking to them - I used "my child can't breathe and I never got angry with the messenger - cry if you want but don't get angry). I know your team will secure it for you. Use every doctor you know

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Chrisy I have a friend working for the insurance company but not this group but she sent me this message ! work for a major health insurance...a competitor of Anthem. When you say "approved", is it on their Anthem's approved drug list, or just a legal drug? Mine was not on their approved drug list, but a couple of convincing calls later my insurer allowed it. My guess is that it was not on the approved list because it was insanely expensive."

I hope your Onc can help!about a minute ago · Unlike · 1

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Yes, Chrisy, Breathe. In. Hold. Out. And again and again. Becky is wise. Never lead with anger. Befriend your person on the other end of phone.


I searched for you and came up with Perjeta Access Solutions (below). I do know that when my insur co denies me my husband gets on the phone. We've learned that sometimes, believe it or not, you have to realize you're talking to a person who is a robot or has the IQ of a penny and you just say, Thank you and hang up. Call right back and you can get a real human who becomes hell-bent on helping you.

The insur co will tell you exactly what is required for you to appeal. A letter and/or a call from your doc. Sometimes sev calls from your doc. The squeaky wheel thing is key.

Remain calm. Know that we are sending all the necessary positive energy you will need to get through this emergency. Help is on the way.

In. And hold. And out. Do not stop breathing... Keep thinking of Yosemite and your favorite spot. Go there (in your head). Recapture the feelings you had before. Bring them to you in this moment.

Much love,




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Andi

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Chris,
Another thought, just to double check. I was initially denied when I tried to see if Herceptin + Tykerb would work. I called for a couple of days and just couldn't get traction. Neither could my Dr.

I was still working (which I think you are), so I walked into HR and said I needed their help immediately to get a direct contact and help me work this through the process. It was only when my company got involved that I felt like someone even noticed my faxes. (I had images of a fax machine just feeding into a trash can).

Just a thought.....Lori

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Check your prescription drug benefits and see if you can get it directly from them and bypass your insurance.

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

I'm praying you get it covered soon! Gods blessings to you!

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Thanks for the support. We are nor giving up this fight, and true, we shave to be strong and put someone on my side. Sheila said it as "you have to put it on their heart". Punching them in the nose won't do that, neither will coming from weakness.

I spent all day Wednesday researching, (including Perjeta access solutions) and am continuing to gather more ammo.

We have an interim plan for. Chemo....but wait! No chemo for Christika until the horrifyingly painful infection (hopefully not a full on blood infection) inher leg is resolved. I will post this sideshow which is now on center stage on a separate thread.

Again, thanks for the love, wise suggestions and support.

Cris

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Someone on this board or inspire went thru abattle w/ aCalif. ins co earler this yr. her screen name was emilia i think ? It was either t dm-1 or pert that was being denied. she appealed to calif state ins board , and won. Go Public ! I feel like this is the yr for protest against all thes bureaucracies, ins co's included !

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

So agrees with every word Sheila wrote. DAMN those insurance companies who act as if they are God and can dictate what's best for us...or not! Now, all anger aside......I also agree with what you Chrisy said ..."miracles or new medicines come from One source". God is wayyyyyyyyyy bigger than your insurance company AND wayyyyyyyyyyyy MIGHTIER! He can and WILL do it. Prayers being sent up all around the globe for you dear friend.

Mary Jo

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

I think the woman I'm thinking of goes by " elaina ", on this board or Inspire. Perjeta is being prescribed off protocol, or thru comp use in some parts of the country . Why not in Calif. ?

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

Phil, if you could be more specific about where in the US perjeta is available for compassionate off-label use perhaps Chrisy could use ANGEL FLIGHT to get there.

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

I believe it has more to do with insurance than where you live....I do know that out of 15 women in Chicago where I go, only myself and one other women are getting it. Theyndid say we have phenomenol insurance....so if it is denied for some, it has to be insurance....even coverage on other items is so different....my insurance covered wigs and my sisters did not....I had to,pay for Neulasta and Neupogen shots...30.00 each and she did not...we both had blue cross blue shield but different plans.
My oncologist got Very involved.I have given Chris all the info for her Dr.

Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
 

I also think it has to do more w/ individual docs, hospital irb's, ins. and different state regs. It has been given off protocol at farber here in Boston. caes by case basis . I have heard that in Mass. ins co' s are required to cover off protocol. Comp use was granted in Fla for darlene gant ( FB, youtube ). That was before FDA approval for first line use only. That conditional decision , and its effectrs on late stage iv pts, must be publicized. I would go to media. report the ins co to the state board . and in the media .