Re: Progression. :(
 

Thanks everyone

My first dose of TDM1 was a little harder than I expected, it seems everyone is saying it is so much easier than most other chemos. I think I must just be a sookie la la (medical term of course!) I had terrible headaches, nausea and had to nap for approx 3 hours each day at lunchtime, just to get me through to an "acceptable" bedtime. In saying that, at 8 days out now, I am feeling really good! Must be the chocolate I just had.

Phil, I have been following Lorraine's story, and I thank you for your good wishes, which I also send back to yourself and Lorraine. I would also like to thank you for the hard work and effort that goes into all that you do, it benefits us all with breast cancer.

Dawn xxx

Re: Progression. :(
 

Re: Progression. :(
 

Lol Denise

My last post about my muga scan going down from 67 to 50, was all a big fib! The STUDENT, told me that, but on treatment day the onc said there was no problem, it was at 65! So all that stress and worry that I would get kicked off the trial was in vain. What is the saying girls. DONT BORROW TROUBLE!

So I had my 2nd cycle of TDM1, and it was easier than the first. I changed anti nausea tabs, so I think that was the main reason. So I wasn't as big a sookie la la as the last cycle!

Thanks for checking on me Denise, it's nice to know
Dawn. Xxx

Re: Progression. :(
 

Glad the second one was better - I found the first the worst. Are you at Footscray for this trial? I have a friend starting next week. I don't think it is as easy as everyone says but the big thing for me was that my bloods were totally normal throughout and that's a good thing. Here's to it doing its job and so pleased the echo was a furphy - Don't borrow trouble - YES I like that!

Re: Progression. :(
 

Amanda, I am at Peter Mac for the trial. Peter Mac was a shock to the system. I was at St. John of God, private hospital in Geelong. The only option they gave me was Peter Mac, so I went from a small hospital where all the nurses know not only your name, but also your husbands, children's, where they go to school etc, to huge overcrowded, awful Peter Mac. They are building a new hospital, but that is about 4 years away. I was horrified as I walked through a corridor to have a muga, that there were people who had just come in ambulances, on trolleys,nwith oxygen I.v, etc just abondaned in the hallway, also it looked as though some patients had just come out of surgery, hospital gowns open, but no curtains, no privacy, it made me feell ill to see these people in a time of need, look as though they had been discarded into a corridor/room, without a thought. My nurse said the hospital had a policy of not turning anyone away, and are therefore 30% over their patient limit. The nurses are rushed off their feet, working extra long hours, I am afraid that mistakes will be made in that kind of environment.

Sorry, that turned into a bit of a rant didn't it? I hope your friend does well (and that Footscray is nicer! Lol)

Dawn. Xx

Re: Progression. :(
 

I've never been to Peter Mac but was at Morabbin for one trial - quite a difference to Cabrini and Frankston Private. Just soooooo busy bt I have to say that even at Morabbin they got to know me by name. I think you get a little more TLC when you are on a trial too.
It's crazy in the public system and I am grateful I am currently at Cabrini but I am glad we have a system that keeps accepting people I just wish it were better funded.
xx

Re: Progression. :(
 

Yes, I agree Amanda, I am glad Peter Mac keeps accepting people, but they definitely need more funding to treat said people. There just never seems to be enough money in the health system, does there?
I am online booking a holiday to Byron Bay at the moment. I find it hard to plan too far ahead, but I am going ahead and booking in October. Can't put everything on hold for stupid cancer.
Dawn xx