Re: Prayers needed for Sheila
 

I am very very sad to hear this. I wil continu eto pray for God's grace and peace for dear Sheila, Jen and all family members.. so so sorry.

Re: Prayers needed for Sheila
 

Jen, holding you both in my prayers and thoughts and in my heart, I love your Mum and she's an amazing lady and has been a friend to me too. xx

Re: Prayers needed for Sheila
 

Sheila and Jen,

My thoughts and prayers are with you both and your entire family.
Sheila you are love and light.
May God hold you in the Palm of His Hand.



Jeremiah 29:11
New International Version (NIV)

11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."

A future that extends well beyond this life.

Re: Prayers needed for Sheila
 

She says there are only two prayers:
“Thank you, thank you, thank you”
And “help me, help me, help me.”
The psalmist says help comes from God,
But God works through people.

When I close my eyes and summon them
I see the God-bearers in my life
And feel their love,
God’s love
enveloping me,
enlivening me,
sustaining me,
sustaining the world.

They have names and faces and stories of their own
But for me they’re also the face, voice, hands of God.
The grandmother who always had time for me,
who always made me feel capable and worthy.
The babies I conceived and birthed and suckled
whose warm little bodies once curled against me,
trusting me completely.
The little girl with the broken, battered spirit
who didn’t trust me at all
sent by the God with whom all things really are possible.
The lover who showed up at such an inconvenient time
and showed me
how to be fully present,
how to love with nothing held back,
and then how to let go but never stop loving.

Loving, letting go.
Cherishing, learning, being present.
Treasuring, remembering, reminding.
Opening my hands, my arms, my heart;
Surrendering control
Then learning there’s no need for it.

Help? It’s already here
I already know what I need to know.
“It’s alright, it’s alright, it’s alright”
is God’s answer to prayer.

Re: Prayers needed for Sheila
 

Today my sister Heather and I are taking Jasmine and her children to see our Mom. I will bring all the love for her here on Her2 Support with me and give it to her for you.

Re: Prayers needed for Sheila
 

Looks like we will not be going to see Mom today with the kids. My sister spent the night with her last night said she isn't waking up at all so they are going to try and cut back on the pain meds to see if she will wake up a little. Please keep Sheila and her family in your loving thoughts and prayers.

Re: Prayers needed for Sheila
 

I'm sad to read this and will of course remember Sheila in my prayers.xx

Re: Prayers needed for Sheila
 

Thanks for the update, Jen. Keeping all of you in my prayers.

Re: Prayers needed for Sheila
 

Keeping all of you in prayer, Jen

Barb A

Re: Prayers needed for Sheila
 

You are always in my prayers.

Re: Prayers needed for Sheila
 

Thinking of you all often xx

Re: Prayers needed for Sheila
 

Praying for you and your mom and family. Please give your mom a gentle hello and touch from all of her Her2 friends.

Hugs and love,

Re: Prayers needed for Sheila
 

Sheila is in my thoughts. May God protect her and comfort her and her family.

Re: Prayers needed for Sheila
 

Praying for your heart's desire.

- Penny

Re: Prayers needed for Sheila
 

The ladies here at the San Antonio symposium are all thinking of Sheila constantly. She has our undying love.

Re: Prayers needed for Sheila
 

I am praying for your mom Sheila.....prayers best wishes for her....She will have the strength to bounce back !!!!!!!!!

U must have courage...for her.....

Re: Prayers needed for Sheila
 

Dearest Sheila~
Sending you prayers, so,so many, but mostly for your peace and comfort.
You have so often been my guide in this 10 year journey, as my diagnosis date was a few months after yours, way back in 2002. I have looked to you for courage, for treatment options, for experience, for guidance, for a soft place to fall or a kick in the a** when I needed it, shared celebrations of good treatment respone, but then all too often the disappointment of another treatment that has failed or just stopped working.
I am heartbroken at the thought of losing you. This disease has taken too many of our sisters, one more loss is too much.
You have been so strong for so long.
I promise you I will continue to carry our Ten Year Torch, and light the way for our sisters (& brothers) that may follow in our footsteps, to help smooth out the bumps in this unpredictable journey.

And to sweet Jen and your entire family, prayers for your comfort. Thank you for allowing us into your lives and support and pray for you during such a difficult time.

God bless & Keep the Faith~

Jessica

Dx-5/17/02 - 33 yo; Stage IV - L IDC w/single liver met
1) Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets
2) ISIS 2504 + Herceptin - 6 mos, partial response
3) Taxol + Herceptin x 13 weeks to NED!
NED for 1 year
9/04 - Single liver lesion recurrence
Taxol + Herceptin - on/off to beat back lesion
12/05 - R Hepatectomy; Liver NED until 2009
3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy.
12/06 - L mastectomy + reconstruction through 8/07
10/07 - Recurrence - supraclav nodes
4) Gemzar + Herceptin - on/off controlling nodes thru
9/08 - 7wks Rads to supraclav nodes
10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents
Back on Gemzar + Herceptin, but no longer responding.
5) 05/09 - Tykerb + Xeloda - partial response x 5 mos
6) 10/09 - Xeloda + Herceptin - no response, disease progresses
7) 2/10- Ixempra + Herceptin - partial response x 12 wks.
Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study.
6/10 - Novalis to treat brain met - SUCCESSFUL!
8) 6/10 - Chemo-embo w/Adriamyacin to de-bulk liver lesion.
9) 8/10 - Screened & Started TDM1 EAP
Immediate response, disease in belly responds dramatically.
2/11- questionable progression of lung nodules
Discontinue TDM1
10) 3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated.
11) 7/11-Discontinue PI3Kinase + Herceptin study;
Disease progression - 2 small lesions in colon – docs have never seen this before in BC
11) 8/11 –Start new combo Halaven+Herceptin
10/14/11 -Completed 3 cycles (9 wks)Halaven+Herceptin...
10/18/11 - Scanxiety time -1st scans since starting this regimen
Good interval response, continue on H+H!
10/25/11 – new 2mm questionable spot in brain? Due to Novalis or new disease?
Re-scan in 8 weeks.
1/3/12- Disease progression; 50%increase size & SUV-R lung, middle lobe 6cm lesion.
R supraclav node multiple, miscellaneous nodes in belly. Colon lesions fired up.
12)Herceptin+ metronomic Cytoxan + Methotrexate.
…on a hope & a prayer. Only chemo I haven’t been on is Taxotere.
Hurry up Pertuzumab & TDM1!
Follow Up Brain Scan on 1/18/12…pleasepleaseplease be okay. I can’t take much more.
1/18/2012- 8 new spots in 8 weeks since last Brain MRI
one 2cm spot in brain stem, one 2cm spot in R temporal lobe.
No symptoms, THANK GOD!
1/25/12 – Start WBR x 15 rounds
2/10/12 – Oral Cytoxan WORKING! Melted supraclav node & undetectable by US!
2/14/12 – FINISH 15 rounds WBR;)
6/12/12- Continuing on oral Methotrexate BID & Cytoxan qpm, but on chemo break
for 3rd week due to low counts.
6/15/12 – Yay! Resume chemoJ
6/25/12 – Chemo break again due to low counts L
6/28/12 – PET Scan & Brain MRI this week…
NED IS BACK!!! NED in the HEAD, NED in the BODY!
10/26/12 – Still NED in the HEAD, but single troublesome node in chest, precariously close
to superior vena cava/heart. Not a perfect scan, but pretty darn good.
11/1 - Echocardiogram looks okay, but still nervous about SVC obstruction/compression.
12/7- Chemo break bc of cont'd low plateletts & pushing PET scan date up to bc
SVC symptoms increasing.
Scared.

Re: Prayers needed for Sheila
 

Sheila,
I send you my heartfelt thoughts and love. You will always be my hero. Jen, my thoughts are with you and your family.
Barbara H.

Re: Prayers needed for Sheila
 

Sheila,
You know you like a sister to me - making mischief, laughing, crying, getting royally po'd at this stupid cancer. I love you and carry you always in my heart.

Jen - my continued prayers for you and your family. You may not feel like it all the time, but you are one strong bunch o women. Your mom and I would use another word, but Jasmine is a little young for that yet. Peace on you all.

Chris

Re: Prayers needed for Sheila
 

Tons of love and prayers for Sheila who has give so much for so many for so long.