Cathya
01-13-2018, 02:29 PM
Hi all;
I finally saw an oncologist for my ovarian cancer who actually knows about breast cancer. My ca125 numbers have been going up. I had an abdominal CT and it was clear expect I have a gall stone which may be causing it to raise....I pray so. In any case he told me he wants me to get genetically tested again. He said that he is 100% convinced that I am BRCA positive and when I was tested I had only a VUS. He said that testing is much more extensive and better now than even 2 or 3 years ago so referred me back. He said there is a new (or several can't remember) treatment for BRCA+'s now. I have had chemo twice and having additional treatments of it apparently would cause me to be ineligible for clinical trials of these exciting new drugs. I don't know if that applies in the states or just Canada but I thought this might be of interest to some here. Then this past weekend, right after I got home I found a lump on my inner shoulder. I saw my MD who thinks this is either a lymph node or a fat lump but is sending me for an ultrasound this Wednesday. I guess it never really ends.....the fear of recurrence. Take care all. Cathy
I finally saw an oncologist for my ovarian cancer who actually knows about breast cancer. My ca125 numbers have been going up. I had an abdominal CT and it was clear expect I have a gall stone which may be causing it to raise....I pray so. In any case he told me he wants me to get genetically tested again. He said that he is 100% convinced that I am BRCA positive and when I was tested I had only a VUS. He said that testing is much more extensive and better now than even 2 or 3 years ago so referred me back. He said there is a new (or several can't remember) treatment for BRCA+'s now. I have had chemo twice and having additional treatments of it apparently would cause me to be ineligible for clinical trials of these exciting new drugs. I don't know if that applies in the states or just Canada but I thought this might be of interest to some here. Then this past weekend, right after I got home I found a lump on my inner shoulder. I saw my MD who thinks this is either a lymph node or a fat lump but is sending me for an ultrasound this Wednesday. I guess it never really ends.....the fear of recurrence. Take care all. Cathy