WayTooYoung
07-06-2016, 05:52 AM
Hello Ladies,
I am hoping someone can chime in with some advice or experience to share. Last May, I was told that Erubulin was no longer working for me and they took me off the treatment. The Drs said that I have pretty much "blown through every good treatment option available that targets Her2 and conventional treatment" and that I am running out of options. They ended up referring me to Princess Margarett Hospital to see if there were any clinical trials available to me. Currently, I am trying to get on their Phase 1b Trastazumab + Dervalumab immunotherapy trial. I did all my screening and scans yesterday and am awaiting a call from them. Although I am hopeful to get on some systemic treatment, I have also been off treatments for 2 whole months. Drs were unsure whether to give me any treatment in the interim or not because the trial requires a one-month wash out period to qualify (so they saw it as pointless). Since I have been off treatments, I noticed my weight has been rapidly declining, I also had a large pleural effusion in my lung which resulted in a nearly collapsed lung. I ended up getting a pleural catheter put in, and since then, I have been so depressed and miserable. My weight continues to drop rapidly despite me eating regularly, I have little energy, and I no longer feel I am able to do what I use to be able to do. I feel worried and scared, but worse, I have little appetite when I do eat. When I look online, it appears I may have Cachexia. Has anyone experienced this? How can this be reversed? My clothes are falling off my body and I look sickly, it really depresses me. Any words of wisdom or advice will be appreciated!
I am hoping someone can chime in with some advice or experience to share. Last May, I was told that Erubulin was no longer working for me and they took me off the treatment. The Drs said that I have pretty much "blown through every good treatment option available that targets Her2 and conventional treatment" and that I am running out of options. They ended up referring me to Princess Margarett Hospital to see if there were any clinical trials available to me. Currently, I am trying to get on their Phase 1b Trastazumab + Dervalumab immunotherapy trial. I did all my screening and scans yesterday and am awaiting a call from them. Although I am hopeful to get on some systemic treatment, I have also been off treatments for 2 whole months. Drs were unsure whether to give me any treatment in the interim or not because the trial requires a one-month wash out period to qualify (so they saw it as pointless). Since I have been off treatments, I noticed my weight has been rapidly declining, I also had a large pleural effusion in my lung which resulted in a nearly collapsed lung. I ended up getting a pleural catheter put in, and since then, I have been so depressed and miserable. My weight continues to drop rapidly despite me eating regularly, I have little energy, and I no longer feel I am able to do what I use to be able to do. I feel worried and scared, but worse, I have little appetite when I do eat. When I look online, it appears I may have Cachexia. Has anyone experienced this? How can this be reversed? My clothes are falling off my body and I look sickly, it really depresses me. Any words of wisdom or advice will be appreciated!