10 yrs brain mets - still NED ...

[StephN]

... in my head and everyplace else.

With all that has been happening in my life I was late with my annual screening brain MRI. I had to cancel my appt in May as I was gone, but had it yesterday.

Good news once again - no new spots, and the old ones do not show activity.

Had my test in the new machine. It is wider but LOUDER. Same cacophony of noises and sounds but louder even with headphones, music and foam wedges to hold my head still.

[suzan w]

That is great news...keep up the good brain waves!! I don't know why those machines are so LOUD!!

[Carol Ann]

YAY StephN!!

So happy to hear this, thanks for posting. :)

CA

[Laurel]

You inspire many here I am certain, Steph! Loved the "cacophony of noises!" It is so true and such a good discription! I never get used to it! Thanks for sharing the wonderful news. Glad you are enjoying life and living each day to its fullest!

[annettchen]

Thank you so much for sharing! It gives so much hope! Very, very happy for you!

[Pamelamary]

Great news Steph! You are one of our forum's heroes.
Best wishes..... Pam

[michka]

Your post brings a big smile on my face! 10 years...it seems long but it is only the beginning. Many more years to come!
Staying on our forum and sharing this good news gives hope to many. Thank you for that Steph!
Felicitations! J'espere vous revoir tous les deux Ã* Paris....

[LeahM]

Happy to read this news! Best to you always

[thinkpositive]

That is such great news! I often read your posts and your signature when I feel scared or worried about having my cancer come back. Knowing that you are doing so well even gives us all hope!

I hope you continue to have many more years of NED!!!

Take Care,
Brenda

[snolan]

Great news, hope for many many more years!

[tricia keegan]

So pleased for you Steph, you were one of the first people to reply to me when I was first joining this site and I'm so glad you're still doing well and long may it continue. xx

[JillaryJill]

Your story is amazing. I just read your entire signature. Wow!
So happy for you. You are an inspiration to us all.

[forher]

StephN, Congrats! And hoping for decades more for you. Thank you for posting this. It really helps me, being stage IV brain mets, hearing about your successful longevity of NED. I will be thinking of your StephN Superpowers in the next few weeks when I go in for my brain MRI.

[BonnieR]

So glad to hear your news and grateful that you are always here to share it with newcomers. Hope is everything!
Keep the faith

[Becky]

God bless you Steph. I remember it all so well. Stage 4 liver mets and NED then the brain mets discovered with no symptoms. And all goes well and continues to. As with Tricia, you were one of the first ones on this board to greet me. You are one great woman. A thousand hugs and kisses to you.

[lkc Gumby]

wonderful milestone. so happy for you.

[Kkmom]

Good good news - inspiring and always so good to read.

[Mtngrl]

Fantastic, Steph!

And thank you for posting. It does people a world of good to know anything is possible.

Love and light,

[carlatte7]

Wonderful news!

[KathyT]

StephN,
Hi! Congrats!! I have a question about your brain mets....did you have any symptoms? I have been getting headaches regularly but not constantly. I feel sometimes it is from sinus congestion or tension from my neck but don't want to overlook any symptoms. I don't want to overreact....
Thanks,
Kathy

[Lisalou]

Inspirational-Thanks and Congrats!
Lisa

[DizzyDo]

Wow! You are truly amazing! Here's to many more!

[Catherine]

Great news Steph! As you can tell from the posts, you are an inspiration to many. Keep good news and hope alive. Continued prayers for you and our sisterhood here on our Her2 site. Do the happy dance!

Hugs ,Catherine

[Andrea Barnett Budin]

Nothing new is a symphony! So happy for your good news. Well done my Sister.

[sassy]

You rock Steph!

[sarah]

Fabulous news!
we're just back from Italy and here for the summer should you be popping over this way again.
love sarah

[caya]

Big congrats Steph! Thanks for sharing, and may you have many many more years of NED!!!

all the best
caya

[karen z]

Steph,

Many congratulations to you.

I know you must continue to be thrilled (and as active and busy as ever).


Love,

Karen Z

[TKasander]

Congratulations, Steph! Good news is always welcome.

[Jean]

Dear Steph,
I am a bit late to the fantastic news....
You put a huge smile on my face when I read your post.
So happy for you and healthy blessings continue.
Hugs,
Jean

[StephN]

Thank you all! If I can give one more person some hope and a little peace of mind, my work is accomplished!

Kathy T - No I had no symptoms, just like Becky mentioned in her post. My revelation of two good sized brain mets was a shock to everyone.

I rarely have a headache and if I do it means I am getting the flu or have mega allergies!

[AlaskaAngel]

So good to hear that, StephN!

You are one of the backbone here. I do feel that Joe and Christine and their family can see the heritage they created with this website among us all as the years go by...

A.A.

[v-ness]

i have used you as an example to my boyfriend in one of my many pep talks about his stage 4 cancer (not in the brain, but still). stories like yours help him feel strong and in the fight and swear one day he will get to the base camp of denali in alaska. congratulations.

[Dakini52]

So happy to hear your good news! You are an inspiration to us all.

[valleygirl]

Congrats StephN!!!!! That's amazing and gives us all hope. what vaccine trial did you do?

[StephN]

Vaccine trial was out of the University of Washington.
A HER2 Peptide vaccine plus Ampligen. There were four arms for different doses of the Ampligen.
I don't know much about the outcome, except that I am still here!

Went to my cancer center today for an infusion of Zometa, which I am getting twice a year. Who do I see but the VERY FIRST nurse to access my port to see if it would flush and draw prior to my first treatment. She is working on some clinical trials, but heard my pump beep when the drug was finished. She was a young mother all those years ago and now her daughter is about to get married.

[Dakini52]

YEAH!!! So happy to hear this.

[agness]

Love reading about your story. Looking forward to beating the odds alongside you.

[forher]

Bumping this up for the new brain met-sters. Wish this was a sticky or whatever you call it. It is one of my (and my husband's) favorite threads.

[fireyfresia]

2 brain mets found & had gamma knife this week, still NED everywhere else.
was dx'd stage IV (liver) from the start 1/2014, THPx8 to NED! then, bi-mx/alnd, rads, and ongoing HP.

hoping gamma knife did the trick and am dreaming of following your path. you've definitely given me some hope. even better, overjoyed to share your story with dh & family - they are beyond thrilled to hear about you. In many ways, I think this disease can be harder on the loved ones than the patient.

I was 34 at dx. the thought of ten (progression-free years!? didn't know it was possible!!) gives me some serious warm 'n' fuzzies.

thank you for the priceless gift - so grateful to you for posting!