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phil
02-13-2015, 09:23 AM
" Right To Try Revolt : Terminally Ill Pt.'s are Fed Up with FDA Bureaucracy " - http://on.wsj.com/16JRV9O

Editorial in this weeks WSJ. We are marching on ! RTT is coming to 26 States this year ! To all of you who picketed This FDA with us in Boston , and again with us and Abigail Alliance in DC, who testified for RTT with us and Abigail - Your Activism is Saving Lives ! Join us - look up the RTT to see if it's pending in your state . testify . Join us on " Our Her2Cancer Struggle " (FB).
The FDA says it has simplified the comp use paperwork - so they basically admit it was too much . Now it will be " 45minutes " - hah - 45 minutes " Wash. DC time " is at least 2 weeks to a month in normal time . Literally a lifetime for some of our Stage IV. We want them out of the individual comp use process altogether . They need to spend more energy on speeding up and reforming the trial testing process - 10 yrs to approve 21st century drugs is way too long ...
Join us - be an Activist - more than an advocate , it is exhilirating, - Save Lives this year !!

phil
02-17-2015, 07:33 PM
Here's the website to track RTT state by state. Be a Pt. Rights Activist - contact the sponsoring Legislators - thank them and testify at the Hearings .
http://tracking.tenthamendmentcenter.com/issues/right-to-try/

SoCalGal
02-17-2015, 11:23 PM
Phil, thank you for your tireless activism on my behalf. I truly appreciate the work you and others do to make things better for us lifers...with much gratitude, socal gal

donocco
02-18-2015, 03:10 AM
Phil

Thank you. Once we get right to try in all states the laws can be amended and expanded. There is a cytokine caled Interleukin-6
which is very important in the whole cancer process. anybody intersted can do their own research. One of the reason that breast cancer spreads so often to the bones is that the bone stroma is rich in Interleukin-6 producing cells.

Common sense dictates that an anti-Interleukin 6 drug MIGHT have value in cancers, particularly if used early, like right after surgery. Two such drugs do exist: Actemra and Sylvan (Siltuximab). Actemra is approved only for Rheumatoid Arthritis andSiltuximab for a rare aids syndrome called Castleman's syndrome. Maybe with the help of right to try laws these limited approvals couls be circumvented. Of course we have to get the right to try laws passed state by state first.

Paul

KDR
02-18-2015, 08:21 AM
Phil,
Thank you, thank you, thank you...(and Lorriane),
Karen