kadcyla

[clare147]

ive just been diagnosed with secondary breast cancer thats metasistes into my lungs they are going to start me on a chemo drug called kadcyla has anyone had it on it that can give me any information
what are the side effects
what side effects have you had
how long are you on it for

[michka]

Kadcyla saved me in april 2012 and I am still on it. This is the first thing to consider. It does not always work but has good results.
I read your other post and understand your fear of side effects. For many women it is easy, for others it is not. It is not easy for me (nausea,fatigue, dryness, neuropathy) BUT nothing to do with my first chemo (FEC). And you will keep your hair. So you can do it. And if it works and unfortunately it is tough on you, you can ask to lower the dosage. Stay strong, we are with you. Michka

[Ceesun]

My thoughts on kadcyla are similar to Michka. I was on it for 14 months and it did clear my lungs (left clear and right marked decrease) but I don't think I will be on it going forward. I found it to be a rough ride, but don't worry many women breeze through it...you can do it! Your oncology team will help you with any side effects you may have. Good Luck, Cathy

[clare147]

what do you mean by dryness is that dry mouth
i saw my oncologist today and she gave me a list of side effects for kadcyla and they dont seem to bad
im hoping im ok with the side effects as just found out got to have for rest of my life

[michka]

I mean dry eyes, nose and mouth.

[Ceesun]

I had dry mouth and eyes and a slight bloody nose a few times.

[KeriK]

I have been on kadcyla for almost 2 yrs. the first few treatments were extremely rough for me. Achy hips, stomach cramps, nauseated. But it did get easier.
I make sure to take my zofran, Zantac, Allegra when I get home and Advil
Best of luck

[clare147]

I am due my second one next week my first one wasn't to bad felt really tired felt like I had a bad cold got stomach pains quite a bit and a bit achy

[GJeanette]

I started Kadcyla in September. Just had my fifth infusion. BC Mets to my lungs. Tumor markers have decreased from 24 to 13. I have dry mouth and eyes also. Some constipation but drinking lots of water and fiber helps that.
My oncologist is watching liver enzymes, which is okay now. Does anyone take anything to support your liver while you are taking Kadcyla? I will ask my MD next visit but just wanted to check with others. Thanks.