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embur102
07-20-2014, 07:04 AM
What a wild month it has been!

I set out for a Dirty Girl Mud Run, spent some time in Stage 4 land, and ended up NED, all within the space of 5 weeks. Wow! Welcome to the roller coaster of HER2+ !

Here's a quick rundown: Seizure Friday June 13.....CAT scan and MRI revealed solitary 2 cm brain met. Gamma Knife June 24. Zapped it!

Subsequent bone scan....all clear.
Body scan showed 5 mm spot on liver....subsequent MRI showed nothing!

July 17 declared NED. :) I will take it!

Follow up brain MRI Aug 19. If nothing new, will do MRIs every 2 months. If/when something shows, we'll deal with it then.
Full body/bone scans every 3 months. Again, if something shows up, then we deal with it.

Until then, I am embracing NED, and getting back to the business of Living!

Though I have only met a couple of you in person, I feel like I know each and every one of you on this board. The love and support here is amazing....whether it's a "good" day or a "bad" day, I know that I can always find strength, wisdom, and inspiration on the HER2 board.

You ALL are Brave and Courageous Women! I am grateful to have each of you in my life!

Many blessings to you all
xoxoxoxoxoxoxoxoxoxoxox

'lizbeth
07-20-2014, 09:22 AM
Wow. That is a Her2 roller coaster ride. I am so happy to hear that it was only 1 met, and that you were able to zap it with Gamma knife.

So pleased of your NED news. Wishes for NED to continue.

Carol Ann
07-20-2014, 09:29 AM
Embur 102,

Wonderful news, you made my day!

And I feel the same way you do, that I know everyone here, and so grateful you're all in my life. I was reading the posts last night about the Amazing Christine, who started this forum, and just feeling so thankful for her, too.

Have a beautiful NED Sunday!

Carol Ann

Pat94
07-20-2014, 11:25 AM
Thanks for the update. What terrific news.

DizzyDo
07-20-2014, 01:39 PM
Wow, wow, wow!

Great news, thanks for sharing.

Mtngrl
07-20-2014, 04:01 PM
Embur,

I'm really happy for you. Thanks for checking in right after you got off your roller coaster.

Amy

carlatte7
07-20-2014, 06:05 PM
I love that you and NED are such awesome friends! PS- I love you. You-oooooo-oooo-ooooo-oooo!

leldredge1
07-20-2014, 09:35 PM
Great news, you are so strong!

Pamelamary
07-20-2014, 11:31 PM
Wonderful news indeed! may your embrace of NED be long and sweet.
Best wishes... Pam

JennyB
07-21-2014, 12:25 AM
Fantastic news - what a month!!

Jackie07
07-21-2014, 04:27 AM
Thanks for sharing the good news.

Yip, that GKRS is a God-send.

You might feel some fatigue the next couple of weeks from the radiosurgery treatment. Get plenty of rest and eat a lot of nuts, fruit/vegies and good protein to help the brain heal.

Sending you good vibes.

Pray
07-21-2014, 10:07 PM
Great post �� blessings to you and yours��

Adriana Mangus
07-22-2014, 06:19 PM
Dear Embur,

Congratulations on being NED!!!!



Adriana

linzer
07-22-2014, 06:23 PM
That's such wonderful news! So happy for you. Let the healing begin :)