View Full Version : Auntie Em! Auntie Em! Danger Will Robinson...
NEDenise
11-09-2013, 07:17 AM
Auntie Em! Auntie Em!
Red Alert! Captain to the Bridge!
1-Adam- 12 ... see the man...
Danger Will Robinson!
Attention all personnel... Incoming wounded!
You get the idea...
Soooo...Now that I have your attention.... let's travel back it time to Tuesday night when all hell broke loose (un-necessarily to my way of thinking) As many of you know... I am soooo not a panicker... very low threshold on my drama meter!
Tuesday afternoon, I was scheduled for an echo and a CT of my chest, Ab and Pelvis. Well, friends, I had been feeling so blechy for so many days that I was pretty sure it had been at least 3 days since my last actual shower. And I had a sneaking suspicion they were going to try to admit me once I was there...
I tried to muscle the nerve and energy to get ready and go...
but seriously... getting dressed would have been plenty.
riding the hour in the car to the city
traveling to the echo lab - even in a wheelchair
waiting around for my turn
laying on that table for 45 - an hour (because of all my scar tissue)
and THEN having to drink that nasty liquid and do the CT stuff.
It was just more than my little spirit could handle in one day. So I asked Ted to call and reschedule.
OMG! What a s$%@ storm that created! Now everybody and their CRNP was on the phone trying to convince me I needed to be admitted ASAP. The "bed crisis" of the day before be damned... there was a bed waiting for me as soon as Ted could get me there.
Through my wonderful husband, I explained that if getting ready to go, slowly, for two tests was an exhausting prospect... rushing around, packing up to be admitted as well... and getting the kids organized... was not likely to happen before morning.
They were NOT happy (poor things) but soon remembered that some things with our beloved NEDenise are simply not negotiable. So my devoted and quite obviously worried onc evoked a promise that I'd come in "first thing" the following morning to start all the tests they wanted.
Sooo here I sit... drinking the nasty contrast fluid and waiting for the CT. Already had some other stuff done since I've been here but no results yet... still trying to put together a picture of what we're dealing with.
I'm likely here till Monday. Missing My Son's National Marching Band competition _ Out near you Laurel - in the sweetest place of Earth!! :( In a different reality... I'd actually, maybe gotten to meet up with you for a hug! Oh well! Next time!
Everybody... keep those prayers coming for healing for me, and wisdom for my care team! We need it! And I appreciate it more that you can ever know!!
Love to all of you... and big HUGS too!
Denise
BTW - sorry for any missed typos - I am clearly typing under influence. :) Ativan, Percocet, Zofran.. oh my!
dearjilly
11-09-2013, 08:49 AM
Hi Denise,
I am praying for you and sending some healing thoughts over to you.
Please let us know what is happening.
I'll be thinking about you this weekend.
One question....is there any way you can get off the dex now?
Take care and chat soon.
Hugs, Jill
NEDenise
11-09-2013, 08:53 AM
Oh Hunny!
Not only am I not getting off it... they've tripled the dose!
I'm at 24 mg/day now. Have to admit though that I feel a lot steadier than I did without it.
Thanks for checkin in!
How are things going for you?
:) Denise
MaineRottweilers
11-09-2013, 09:04 AM
Praying that your team find solutions for you and have you feeling better soon.
dearjilly
11-09-2013, 09:07 AM
Why did they triple the dose?
What are they doing with you since admitting you?
I am, umm....I don't know. LOL...you probably get it.
I'm going for my 3rd infusion on Wed. Still have the neuropathy on the right side and still have no vision on the right side. They are watching my heart closely. MRI scheduled for Nov. 27th to see what's going on upstairs.
'lizbeth
11-09-2013, 09:54 AM
Ms NEDenise,
Inquiring minds want to know the latest. Keep us posted with the continuing drama. What the heck is going on?
NEDenise
11-09-2013, 10:43 AM
hmmm...
Let's see....
Lumbar puncture
MRI of brain
MRI of spine
CT of Chest, Ab and Pelvis
Multiple urine analysis
Multiple, multiple blood draws
And a poor guy down the hall who sounds like he coughs up and spits out his spleen a couple times each hour... ich! What is with THAT?!
Of course... now it's the weekend so results are not forthcoming...
And my neuro guy is at a conference in Europe till next Friday
And my onc is on a MUCH needed 4 day weekend...
And of course... I want ALL the results, and to consult with ALL my experts...
before I'm ready to decide on ANY next steps.
So... right now, I'm eating ice cream and fresh fruit (that's what I'm craving) and waiting for results to trickle in. I think after the batch of tests tomorrow... I might just go home to do the rest of my waiting. We'll see... access to info seems a little easier here... but home has my own food and my puppies!
Keep praying and checking in Dear Friends!
:) Denise
Coux92
11-09-2013, 12:46 PM
Tons of prayers and positive energy being sent your way! Can't wait to hear good things for you
Denise,
Please know I am thinking and praying for you! You never cease to amaze me how you can keep your wit with all thats going on. Please know there is much love and good wishes for speedy healing coming your way. May God bless you, your family and healthcare team!
Love
Pat
Laurel
11-09-2013, 06:10 PM
Well, wel,l Miss Denise! I miss a day or two from this site and all hell breaks loose! I have been praying for you daily. From the sound of things I'd better step up my prayers! It would have been wonderful to meet up with you in Hershey this weekend. I am sorry you are missing your son's band competition and stuck in a hospital. Stinks.
Well, keep your chin up. Prayers headed upward on your behalf.
Much love, admiration, friendship, and affection--Laurel
valleygirl
11-09-2013, 07:10 PM
keeping you in my prayers Denise
Denise
Bunty
11-09-2013, 07:14 PM
Denise, oh my goodness me! As usual, you have amused with your not so amusing post. Just to remind you, big hugs, hope and prayers are being sent to you from my part of the world.
Enjoy the ice cream and fruit, and the triple dose of dex!
Marie xx
Denise,
Me and my family and family of friends are sending loving, healing wishes,
Yours,
Karen
LeahM
11-09-2013, 07:59 PM
Denise I am sending you love and hugs. I hope you can get some rest when the dude down the hall isn't hacking.
LoisLane
11-09-2013, 09:25 PM
Hey Denise I have been waiting to hear what is going on with you. Well they are certainly covering all the bases. Keep eating that ice cream and what ever your dear heart desires. Sending warm hugs and big prayers. Lois
suzan w
11-09-2013, 09:29 PM
With that triple dose of dex (that first auto corrected to sex...good thing I proofed it!!!) you probably need a triple dose of ice cream. Hope you rest easy tonight!
Hey there Denise sweetie - enjoy that ice cream... Is it chocolate? :)?
Sending prayers that you will get great results from all your scans.
xoxoxoxo
all the best
caya
SoCalGal
11-10-2013, 01:56 AM
Don't make me come there and scare the crap out of that cancer. Feeling so pissed off at this disease. It sucks, it robs us, and while we can see our own strength at dealing with this crap on a crapstick (hi Brenda in "heaven"), and we can see miracles and possibilities and some good things from the "journey", right now, I am just so pissed off.
Sending you all my wishes for cancer to leave and for the docs to figure out the next magic trick and for you, Denise, to get back the quality of life you most certainly deserve. Love, Flori
Saygoon
11-10-2013, 09:06 AM
Well... sounds like you're not in Kansas anymore Toto but keep your eye on the yellow brick road your journey is far from over but its going to all end up with you back home and doing great. Just keep clicking those heels! HUGS!!!
ammebarb
11-10-2013, 09:51 AM
Love to you, Denise, and all good test results soon!
jaykay
11-10-2013, 04:03 PM
Thinking of you and sending positive thoughts. Ditto "crap on a crapstick"
Xoxo
Janis
carlatte7
11-11-2013, 09:49 AM
Well, crud...this is what happens when i miss checking in for a few days...although i saw the title and knew it was from you before i saw yoursignature! So...fingers crossed..waiting to hear from you...rememberingthat our God is greater....
Andrea Barnett Budin
11-11-2013, 01:39 PM
So, forget SOS -- COC crap on a crapstick is apropos here!
I turn my back for a few days, and look at you! Denise! In the hospital. On the weekend! Over Veteran's Day weekend. Obviously, not well-planned, but probably the best place for a person who can't get the strength to get dressed and go through double tests AND MORE!
Did you put the seat back flat, so you could rest on the way? I've done that.
Being where you are rather than in a waiting room is, can't believe I'm saying this -- preferable. Love your post from God. He's got your back. I know it.
You're on Zofran? You're nauseous on top of all the other crap you are going through????
CRNP, please tell me what they are? Peeps of some sort. RNs? PAs? NP (nurse practitioner). Am I getting close?
I do know Ativan, and 1 mg is the highest I can go. Anything more and I cannot turn my head without flying through the ceiling. Percocet? So you're in pain?
I know you're unsteady. I mean like a whole lot! Shaky, literally... And I remember thinking, and maybe posting, that I absolutely hate all of your symptoms and insist that they disappear! (I didn't mean for them to triple your Dex, but whatever makes your body happy, including ice cream of course, is what I was demanding in your name!)
Your brain, your wit, your ability to type without typos and in varying colors along with messages from God -- is stunning, given what you are going through physically, emotionally, blah, blah.
Geez. I had no idea. I am thinking of you all the time, and sending prayers out with DENISE boldly blazing and attached to them all the time, so no problem that I didn't know of your latest chapter.
It's just a chapter. Not the whole story.
I am waiting with ALL to hear news. Is there anybody actually working in the hospital today? Yesterday? Not so nice long weekend yet, better than hanging by a thread at home, Neddie. Hate to say.
Glad the docs are covering all bases and then some. Could they throw in a mani/ped and facial while they're at it?
Anything you want to eat that they don't have, Ted can bring you! Pastrami on rye? Go for it. You name it. You deserve whatever your heart desires.
We're all with you, Denise!
Sending LOVE, and HUGS galore,
Andi
Vicky
11-11-2013, 01:47 PM
Thinking of you Denise- sending big love, hope and saying lots of prayers!
Laurel
11-11-2013, 05:57 PM
Ok. I am impatiently awaiting good news from you, Miss Denise! You get well! Praying.
Aussie Girl
11-11-2013, 06:01 PM
Hope you get out of hospital as soon as your can. And I hope the staff can figure out what's going on (with your help!) It isn't easy not knowing what is happening in your body. I'm wishing you an end to blehiness and hoping this is either that infection lingering or a medication imbalance.
Cheers
Aussie Girl
Andrea Barnett Budin
11-11-2013, 06:05 PM
Ditto what Laurel said and Aussie Girl too!!!!!!!!!!!!!!!!
KsGal
11-12-2013, 05:30 AM
For gosh sake, Denise, must you always lead such an exciting life? Surgeries and mickey mouse...and this? Who knows what craziness you will pull next. But seriously, Im so sorry you are holed up in the hospital, but I am glad you are getting all these tests and will finally be able to know exactly what is going on and what you need to get to feeling better. I know you would much, much rather be home with your family and your puppies and your food, but try as hard as you can to view it as a short vacation. You will be home before you know it, especially as stubborn as you are.
I wish, well a lot of things right now, but mostly I wish we would all catch a break and stop suffering. I am so sick of being sick, and I know everyone else is too.
Im sending all the prayers you requested plus extras, and as always big big hugs.
Redwolf8812
11-12-2013, 08:09 AM
Wow, Denise. You are the ultimate cancer soap opera. Still praying!
Love, Penny
norkdo
11-12-2013, 08:12 AM
Praying like crazy for you, darlin denise. Keep them laughing around you. Hugs, Nora, xoxoxoxoxoxoxoxoxoxoxoxoxooxxoxoxo
Rolepaul
11-12-2013, 10:56 AM
So I am not in Kansas, but close by in the Denver area. It takes almost a week for me to get information such as yours. Life is definitely slower here.
I am back in the office and have time to look at the web site. I hate hearing about the bad things happening to you! If the disease is in the spinal area, all the more so to get on Intrathecal Herceptin. I think that adding Topotecan to the brain is also a good idea. Nina still remains clear four years after it was first found in the brain and two years after it was found in the spinal nerves. All I can say is that this disease is a rough roller coaster! Send a personal message once the doctors are done with the coffee grounds and tea leaves.
Rolepaul
DianaMK
11-13-2013, 05:20 PM
Any Word from Denise? Thinking of her and praying all is well!!
Denise...we are waiting to hear from you...hope you are still awaiting good news from your onco.
Warmly,
Karen
Andrea Barnett Budin
11-13-2013, 05:58 PM
Still at hospital, Denise? More tests? Any results?
We're all on the edge of our seats. Waiting.
Are they treating you with care, as they should?
Are you feeling all the love traveling directly to you?
OXOXO, ANDI
'lizbeth
11-13-2013, 06:18 PM
NEDenise, Inquiring minds are back! Did the scans show anything in the Parietal & Occipital lobes?
How are you holding up? Do you have a plan?
We miss you.
Laurel
11-13-2013, 06:36 PM
Me, too! Trying not to get worried. Lifting you up and believing for good news.
suzan w
11-13-2013, 07:16 PM
Adding my voice to the chorus hoping you are feeling better and getting some answers. Be well, my friend!
Jackie07
11-14-2013, 12:05 AM
Adding mine as well. Sending our prayers and hoping to hear from you soon.
linn65
11-14-2013, 07:19 AM
Me too!! Saying a prayer for you right now!!
Mtngrl
11-14-2013, 07:58 AM
My dear Denise,
I read this update on your Caring Bridge site, and I've been praying for you ever since.
You are loved and appreciated and cherished. Rest in that knowledge.
NEDenise
11-14-2013, 09:39 AM
Hi friends!
Sorry to be away so long. Just not feeling very good. Still wobbly... still a little nauseous... and tired.
Let's see...
Nothing new on body CTs - so I'm not a Herceptin wash out :)
No new lesions in brain but they did find some "floating cells" so no more Lapatnib. Omaya reservoir goes in next week. Still deciding what meds.
Fell out of/ off of the bed ... face broke my fall YIKES!... so my face hurts... is several shades of black/blue/yellow... but nothing is broken so... that's good.
Home again... since Tues. night... late. Good to be "out"!
Keep those prayers flowing friends! I can definitely feel the love!
I'll try to be better at updating.
Denise
'lizbeth
11-14-2013, 09:43 AM
Ouch. Sorry about your face.
Thanks for the update. We get it - you are a little busy right now!
I hope this gets you on the road to recovery soon!
I've been away awhile.
Oooohhh ouch! Hope your face feels better soon. Glad you're home though. Recoup is good at home (usually). I don't understand "floating"cells = no tykerb? How come? Glad to hear CT is clear and sounds like things are at least under control. Praying for an upward climb for you. Just stay off real ladders, doesn't sound so safe for you right now!!! Hugs
StephN
11-14-2013, 01:43 PM
Face plant, huh? Hope you have some soft carpeting!
Glad they will go ahead with the direct approach to your brain treatment. The more this is done, the way is being paved for others.
You may need a bed rail that is like an "L" and one side goes under the mattress. Medical supply places have them. That is if your spatial awareness is not as aware as normally.
Prayers and healing thoughts coming your way!
So glad to see you checking in, Denise, we have all been waiting! I hope you are on the up and up soon, and hope someone videotaped your son's outing.
Feel good, my friend,
Warmly,
Karen
Andrea Barnett Budin
11-14-2013, 02:27 PM
Reposting this from SAD & VULNERABLE THREAD.
Falling out of bed, Denise, I am distressed for starters. Agree -- bed rail (like when the kids move from crib to bed) -- you definitely should get one of those.
Could you have vertigo???? Besides maybe other stuff going on???
They did the spine test???
Hate to bother you. Know you don't feel well. Nausea and vertigo kind of go.
Like sea sick. I use wrist bands for those (from drug store). Help...
My dghtr had vertigo, went to 4 specialists and they were puzzled as to what to do. Said she (of course) had the bad kind, not easy to fix.
Holistic chiropractor asked if she'd been eating a lot of sushi. She had. She said, You have parasites. Gave her a supplement for that, and in a short period of time the dizziness, etc. went away.
Just mentioning. Stranger things have happened.
Your tests so far as I/we know sound good. Unrevealing. Meanwhile, LOOK AT YOU! Black and blue and red and pink with some yellow no doubt.
I'm thanking Steph for her words in other thread:
I I googled the song she mentioned. It's below, for all y'all...
? Mandisa - Overcomer (Lyric Video) - YouTube (http://www.youtube.com/watch?v=z29olPjFbqg)
Valley's bring mountains...
IF WE LOOK UP...
FAITH IN ALL CIRCUMSTANCES!!! Right, Denise? I KNOW you know this...
I demand your docs FIX YOU! Figure it out. Some help here, please!
Also look at link below (published on Feb 19, 2013)
My nut onc is very much into sound therapy. Especially crystal bowls.
So, I'm sharing... Energy medicine therapist Jason Wood conducts a meditative sound healing ceremony at the Unitarian Society of Ridgewood NJ. During this spontaneous presentation, Jason uses the alchemy of sound to assist the listener in achieving a state of heightened awareness and a space for transformative emotional healing. Composition has been developed specifically to invite a multidimensional experience, leading the listener to an altered state.
You can check out Jason's live interview on "The Bridge of Truth," which includes a powerful 10 minute sound healing meditation too:
http://www.youtube.com/watch?v=sQT6jN... (http://www.youtube.com/watch?v=sQT6jNHqvBc)
Please contact Jason Wood at:
http://www.pandorahealing.com (http://www.pandorahealing.com/)
I AM CONTINUING TO BESEECH HEALTH AND WELLNESS FOR YOU, DENISE!!! NEVER STOP. UNENDING FLOW OF HEALING, LOVING ENERGY RIGHT AT YOU!!!!!!!!!!!!!!!
Love & Light All,
Andi
Glad you checked in sweetie, not so glad to hear about falling on your face...
Still sending prayers for you, will not stop until you are back to NEDenise...
xoxoxoxo
all the best
caya
ammebarb
11-14-2013, 02:51 PM
Denise, It was so good to hear from you! Lots and lots of prayers have been and will continue to bombard heaven for you!
suzan w
11-14-2013, 04:23 PM
Good to see your post today! Not that we worry about each other here at all...!!!
Mtngrl
11-14-2013, 05:43 PM
Good to hear from you, Denise.
Love and kisses.
Amy
Coux92
11-14-2013, 06:03 PM
Thanks so much for the update... Sorry about the face plant, hope everything begins to heal and improve quickly. Prayers have been at least daily for you and will continue. Please be well!
Laurel
11-14-2013, 06:17 PM
Denise, did your hair blow in the breeze while in your bed when I let out my huge sigh of relief to hear from you? Bet it did, 'cuz it was a biggie! Steph's suggestion of a bed rail (home care stores have them) is a good one. Not sure what circulating cells mean. Will try to discover on the net. Glad you are home and will certainly keep the prayers going.
Andi, I LOVE Mandesa's "Overcomer." What an inspiring song! Makes my spirit soar!
Sending warm fuzzies, dear Denise.
Andrea Barnett Budin
11-14-2013, 06:30 PM
Hey, Laurel. I've been to Hershey PA! Cousin lived in Harrisburg. Stayed at the Hershey Hotel. I NOW get it -- THE SWEET LIFE! Duh...
Denise, I have been searching for this for days.
Sharing with you, and All...
Love the poem. Love the song. Check it out.
And Ted, tuck her in good!!! No more falling out of bed or bumping your head, Denise!!! BED RAIL for sure. Easy fix. No going to the bathroom alone. Period. Not good. I am worried.
You need to get to the bottom of this.
I guess we all have circulating tumor cells after our tumors dry up and go away (and those are the lucky ones). Oh dear. Just don't fret about it all. Let it go. I am not one to let go of control, but this is a time for you to focus alllll your energy on healing (whatever the hell is ailing you!!!) and envisioning yourself dancing up a storm, partying, loving Life and enjoying your family. SEE it vividly. FEEL precisely what you will when it happens. LAUGH! What exactly will you be thinking as you're reeling about, in a good way, having fun and being healthy and well????? LET THOSE THOUGHTS KEEP CIRCULATING IN YOUR BRAIN AND YOUR BODY, and forget about the circulating cells, please. Let them wash away...
? You Are A Child Of The Universe - YouTube (http://www.youtube.com/watch?v=PNq_DTmVCWs)
Go placidly amid the noise and haste, and remember what peace there may be in silence. As far as possible without surrender be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even the dull and the ignorant; they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit. If you compare yourself with others, you may become vain and bitter; for always there will be greater and lesser persons than yourself. Enjoy your achievements as well as your plans. Keep interested in your own career, however humble; it is a real possession in the changing fortunes of time. Exercise caution in your business affairs; for the world is full of trickery. But let this not blind you to what virtue there is; many persons strive for high ideals; and everywhere life is full of heroism. Be yourself. Especially, do not feign affection. Neither be cynical about love; for in the face of all aridity and disenchantment it is as perennial as the grass. Take kindly the counsel of the years, gracefully surrendering the things of youth. Nurture strength of spirit to shield you in sudden misfortune. But do not distress yourself with dark imaginings. Many fears are born of fatigue and loneliness. Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. Therefore be at peace with God, whatever you conceive Him to be, and whatever your labors and aspirations, in the noisy confusion of life keep peace with your soul. With all its sham, drudgery, and broken dreams, it is still a beautiful world. Be cheerful. Strive to be happy.
I LOVE YOU, DENISE... Andi
KsGal
11-14-2013, 09:22 PM
I really, really love that Andi. I think I will print it off. Thanks so much for sharing.
Now Ms. Denise..please dont make us come there and bubble wrap you! Having said that, I also fell this week, but Im so ridiculous I was standing on my bed trying to change a lightbulb. I also face planted, but on the bed thankfully, and then bounced off onto the floor on my butt. o.O I was just fine, but glad that no-one saw my "fall from grace". I probably could have won a prize on Funniest Home Videos the way it felt.
Im so sorry you are bruised and feeling yucky. Im thankful that you have no new lesions or detectable tumor. It also bothers me that you have no tumor load, but all these symptoms. Maybe stopping the Tykerb will help?
I have a friend with Meniere's disease (inner ear) and she has a lot of the same symptoms. Idk if there could be a component of that here caused by medication or radiation, but thought it was worth a mention.
Im just so happy to hear from you. I will light a candle for you tonight and intensify prayers. Sending you so much positive energy and good juju and warm wishes. Big hugs...Im glad you are home.
Denise so sorry I've been unable to check in. Please know not a day goes by with out prayers for you and your family. His peace my friend.
Pamelamary
11-15-2013, 12:06 AM
Good to hear from you, Denise, and so glad you are back home. Not so happy about the face though - it sounds an extreme method of uncovering those cheekbones!
Best wishes.... Pam
dearjilly
11-15-2013, 09:38 AM
Yes...what Andi said...let those cells wash away. I like the sounds of that.
I took myself out the other day, cuz I didn't see the door frame. You should have seen the eye print on my glasses.
Listen...I'm here with ya. I am praying for health and recovery for you.
I blame the dex for everything, so as soon as you're off the dex, you will feel SO much better!!!!
Love Jill
SusanN
11-15-2013, 08:39 PM
Dearest Denise...I MISSED YOU SOOOO VERY MUCH...that is what happens when I don't get on here in a week...and you know I've had you in my heart and prayers...GOD KNOWS...HE IS IN CONTROL!!! HUGE HUGS & PRAYERS COMING YOUR WAY!!
Andrea Barnett Budin
11-16-2013, 02:12 PM
Denise,
Today's perspective -- your tumor is lashing out in its dying gasps.
And you are surrounded by love.
Hard to feel gratitude at such a cruddy time but you are making your way to normal!
My take, my prayer, sent with hugs galore,
Andi
JennyB
11-16-2013, 10:36 PM
Denise sending all my positive juju as ever - I hope you catch a break soon but please not of a part of you!
Jenny x
dchips1
11-17-2013, 02:26 AM
I Have also seen side rails at thrift stores as well. I love you opening sentence!!! My 3 and best face plant back in July was over the dog into the dishwasher then the nice soft ceramic tile!. Full on bend the glasses bruise the fat steroid cheek, and holler for help, my 13 year old tries to pick me up, and told him I think I need Dad. I have a 4 wheel rolling walker that I lock into place as my side rail pull my self up out bed thing. I hate steroids and the muscle wasting!! Why do they make most handicap BR stall with no upright bars. It is so sanitary to waste so many seat covers and toilet paper if you can't trust the toilet paper roll with no quad muscles to off the pot!!!!!
Peace and healing prayers to my fair lady
Darita
healing
11-17-2013, 06:51 AM
Denise,
Thinking of you and sending healing thoughts and prayers your way! I thought you might enjoy this youtube of Dean. If only it was a marshmallow world, you would have bounced!
Kim
http://m.youtube.com/watch?v=qndaGVvoDsM&desktop_uri=%2Fwatch%3Fv%3DqndaGVvoDsM
'lizbeth
11-17-2013, 09:43 AM
How did I ever miss this Dean Martin song? That's perfect. I'm so stealing the phrase - "it's a whipped cream day"
CarolineC
11-17-2013, 04:56 PM
Love that song-Marshmallow World-it's been on my list to put on my Ipod.
Denise, how are you today? When do you have your procedure this week? How are you feeling after the lumbar puncture? I had one years ago when it was thought I had MS and the head pressure can be incredible. Please tell you've been laying down as much as possible because after the procedure- that is what was recommended for me otherwise when I stood up the pressure got worse.
Geez, your poor face! I hope getting the reservoir in will help to zap those stupid cells! You and others are paving the way for IT Herceptin, but it most be so daunting. I am sending healing thoughts and prayers to you and am glad that there is nothing anywhere else.
norkdo
11-18-2013, 07:39 AM
denise!!!!!!!! yay!!!! SO GLAD to hear from you!! I ditto Susan's comment!!! I have been looking for you everywhere, cannot get in again to caringbridge's denise kasander site for some reason...no doubt my tech idiocy! missed you very very much. Nora
norkdo
11-18-2013, 07:42 AM
i could not be happier you are in the American Health system in the best of care in the world!!
Ommaya reservoir
From Wikipedia, the free encyclopedia
Schematic representation of an implanted Ommaya reservoir.
An Ommaya reservoir is an intraventricular catheter system that can be used for the aspiration of cerebrospinal fluid or for the delivery of drugs (e.g. chemotherapy) into the cerebrospinal fluid. It consists of a catheter in one lateral ventricle attached to a reservoir implanted under the scalp. It is used to treat brain tumors, leukemia/lymphoma or leptomeningeal disease by intrathecal drug administration. In the palliative care of terminal cancer, an Ommaya reservoir can be inserted for intracerebroventricular (ICV) injection of morphine.[1]
It was originally invented in 1963 by Ayub K. Ommaya, a Pakistani neurosurgeon.
norkdo
11-18-2013, 07:56 AM
darita! what an awul fall!!! so sorry bout that.
KsGal
11-19-2013, 03:36 AM
Just wanted to let you know I was thinking of you this morning, and sent up lots of prayers. Hope things are starting to improve. God Bless you, Denise.
Laurel
11-20-2013, 07:07 PM
Hey fellow Pennsylvanian! Just stopped by to see whether you had posted an update. Hoping and praying you are feeling peaceful and improved. Turning blue holding my breath....
BonnieR
11-20-2013, 07:21 PM
Thinking of you here too. Hope we get an update soon
Kep the faith
StephN
11-21-2013, 06:09 PM
I am very sorry Denise's last post here was on Nov. 14, 2013.
She would have come back here if she could have. We ALL know that. Now it is time to go to her Funny T-shirts thread:
http://her2support.org/vbulletin/showthread.php?t=51648
There are other Humor Threads also started by Denise in that forum. To laugh with her is to know her.
norkdo
11-23-2013, 12:20 PM
Denise started this thread 11/9/13. Reading the humour, the smartness (travel back in time comment etc) of the initial post, and realizing she would be dead 11 days later, I need a lot more info.
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