Andrea Barnett Budin
10-31-2013, 01:59 PM
I recently saw a post on FB about a woman with ovarian cancer seeking compassionate care of BioMarin. She'd been denied. She was told if they made an exception for her, blah, blah...
A flood of calls went into Rep Huffman's office in Texas.
Supporters started an aggressive lobbying campaign and a dear friend posted a petition on CHANGE.ORG
I signed that petition last month. I, and apparently, many others, found her story compelling.
In cancer drug battle, both sides appeal to ethics - CNN.com (http://www.cnn.com/2013/09/28/health/compassionate-drug-use/)
And the pharmaceutical company has changed it's mind.
BioMarin denies 'compassionate use' of experimental drug, considers adding cancer patient to clinical trial - Marin Independent (http://www.marinij.com/novato/ci_24036728/biomarin-denies-compassionate-use-experimental-drug-considers-adding)
As Lani's thread INTERESTING ARTICLE FROM NYT indicates...
We must never give up. Sometimes, we must find a way around...
Andi
A flood of calls went into Rep Huffman's office in Texas.
Supporters started an aggressive lobbying campaign and a dear friend posted a petition on CHANGE.ORG
I signed that petition last month. I, and apparently, many others, found her story compelling.
In cancer drug battle, both sides appeal to ethics - CNN.com (http://www.cnn.com/2013/09/28/health/compassionate-drug-use/)
And the pharmaceutical company has changed it's mind.
BioMarin denies 'compassionate use' of experimental drug, considers adding cancer patient to clinical trial - Marin Independent (http://www.marinij.com/novato/ci_24036728/biomarin-denies-compassionate-use-experimental-drug-considers-adding)
As Lani's thread INTERESTING ARTICLE FROM NYT indicates...
We must never give up. Sometimes, we must find a way around...
Andi