How many years NED? Give others hope

[pscheer]

I was diagnosed in September 2009, finished all treatments in November 2010. I am still NED. Just checking in to give others hope. I am ER/PR- HER2+, Had partial mastectomy, chemo, rad and herceptin.

[karen z]

8 years here

['lizbeth]

5 years, 8 months. I finished my last treatment (vaccine trial) last summer.

[Jackie07]

Just got a clean bill from the oncologist last Tuesday (except I needed to get more sunlight/Vitamin D... :)

It's been exactly six years (now 9 years - as of summer, 2016) since my mastectomy for stage 2B ...

[ljbm]

Stage III-5 years, 10 months and counting NED. Praise God and MD Anderson.

[snolan]

3 years and counting.

[Mary Jo]

8 years. :-)

[SusanN]

AMEN...Glory to God!! :)

[Gabrielle]

13.5 years, Stage IIIb. No recurrence. Keep the faith.

All the best,
-Gabrielle

['lizbeth]

WooHoo! SusanN . . . 6 days post final chemo and counting! Are you feeling better yet?

[Becky]

In a few weeks, I will be 9 years

[JennyB]

2.5 yrs in to a long lifetime x

[lkc Gumby]

8 years and 3 mos from Stage IIIC and doin the happy no BC dance everyday!

[sassy]

Eights and a half years!

[CindyE]

I am 5 years NED! Giving thanks to God for all of you that He's keeping safe in His arms.

[whatz]

4 years, 3 months. Giving thanks to my Heavenly Father with a humble heart and glad to have found all of you!

[caya]

Next week I will be 7 years out, no recurrence.

all the best
caya

[tfabre]

I am now 5 years NED....and still loving whatever God blesses me with:)
Toni

UPDATE!!! As of May 11,2015, I made 5 years and grandbaby #4 (my daughter's first baby) just turned 1 in April! God is so good!!!!

[DogLover]

It is heartwarming and encouraging to read these NED stats. Thank you all for sharing!

[ljbm]

6 years 2 months NED

[Ruth2]

Thank you for making me feel more hopeful. I usually am, pretty much, but this thread helped.

[margaret]

I wanted to add my positive story.
13 years NED !!!!
I feel great! Take no medicines. Grateful for every breath :)

I had stage 3b, 9cm, er/pr - and her2+++ ,16 pos. nodes in Nov. 2001 at age 38. My daughters were 8 and 10.
Mastectomy, 4 ac, 4 taxol plus herceptin and 1yr herceptin and radiation.
No reconstruction.

Blessings and prayers to all those going through treatment and still battling the disease. There is hope!!
Every new breath brings potential joy.

[rondo]

6 years. I intend to live forever. So far, so good!,:-)

[JillaryJill]

3 years and 7 months, my first grandchild is due October 30. She is a girl and my son and his wife already named her Everly "Ev". We can't wait!!! I never thought I would see this day!!! Feeling blessed everyday!

[lkc Gumby]

9 years for me!

[cafe1084]

I was diagnosed ER/PR-, HER2+ in August 2006, bilateral mastectomy with 3months adriamycin, 3 months taxol, and 18 months herceptin...so its been almost eight years. The only problems I have are some nerve damage to my left hand and to a few toes from the chemo. I feel I may have a potential heart issue from the adriamycin, but so far all is well. I havent been here for a few years, but I feel so blessd to have found this site and the people who created it...it got me through many dark days.

[ljbm]

Nine years since diagnosis and still cancer free! Thank God and MD Anderson.

[lkc Gumby]

Now over 11 years and thankful everyday!

[Cathya]

NED since treatment in early 2005 so 12 years. Diagnosed stage 3C. I am so happy. Now to beat ovarian cancer lol. I miss this site since I'm now focused on the ovarian.......there is NO site like it!!!

Cathy

[ljbm]

10 years and counting. I am blessed.

[melruth]

Wow! Great to see ljbm!! Thanks for posting xx

[Becky]

I am almost 13 years now

[StephN]

Nice to see this thread revived.

I am now close to 15 years stage IV. I surprise myself when I see that number!!! I am going to my high school 50-year reunion in about 3 weeks!

NED I would have to say 12 years at this point.

Hope to hear from some others.

[Melissa]

Diagnosed first 3b then 3C 11.4 years ago. My girls were 4,6
And 8 and now a junior in college, a senior
In high school and One a sophomore!
Lots of hope now and for the future!

[Kkmom]

Triple Positive - TCH - 4 Years and 8 months - NED!!!

[Laurel]

It is 9 years for me. Triple positive, Stage 1b, ACTH. Still here and thankful!

[pscheer]

I am still Ned

[DianaMK]

So much good news!!! 7 years-stage 4 here!! My nurse reminded me this week I was receiving my 124th Herceptin treatment...Feeling blessed and may God bless each and everyone of you...

[Nurse4u2day]

3 1/2 years NED

[caya]

Update - in a couple of weeks I will be 11 years NED.

Did a 5K run/walk today for the Cure here in Canada.
My daughter has raised over $20,000 for the CIBC Run for The Cure in the 10 years we have been doing this walk.

all the best
caya

[Kkmom]

5 years NED in December and so thankful for each and everyday
Pam

[Gabrielle]

18 years, stage III

[Melissa]

12 years this month

[Nurse4u2day]

I was dx Nov 2013 with IBC ..stage3c node positive. I had my last Pet/Ct Feb 20 ,2018 I still remain NED

[cvaughn]

I'm 5 years out as of April of this year. Diagnosed in 2013. Such a life changing experience. Last year I donated my wig. I was afraid to let it go. Today, I put two pairs of prosthetic forms in the mail as a donation to a group that collects them.

So far, so good.

[Carol Ann]

4.5 years! So far, so good!

Carol Ann

[kpretzel]

Originally diagnosed stage 1 in 1995.
After several recurrences, received my stage 4 diagnosis in December 2006.
11.5 years at stage 4. Currently on no treatments for the past 4 years.

[karen z]

13 years here.

Karen Z

[lkc Gumby]

just hit 13 yrs , from stage IIIC. Well and grateful every day!

[Laurieanne]

10 yrs Ned and doing well :)

[Kkmom]

6 years NED - in December
Life is Good

[Colleen]

5 years since stage IV denovo dx, still in treatment but still here.

[qiolis]

Some people stories are really inspiring. Thanks for sharing and giving support and hope to others. I am from https://worldpostalcode.com/united-states/california/ and two of my friends have completely different results of treatment. But every single positive story deserves a lot of attention as it proves that every patient can hope for the same happy scenario.

[Nurse4u2day]

Going on 8 years NED

[Becky]

17 years for me. I am humbled by everyone on this board every day

[lkc Gumby]

Congrats Becky , so happy for you! Right behind you at 16 years ! Blessed and grateful everyday!

[Nurse4u2day]

Nov 19th I will be 8 years since diagnosis of stage 3c IBC , no recurrence

[jaykay]

8 years NED. Fingers and toes crossed. So nice to see everyone ��

[4angel]

9yrs NEAD
new oncologist just suggested stopping Herceptin...anyone one else MBC and stopped. worried about a reoccurrence...

[Gabrielle]

22 years. Stage 3

[caya]

15 years for me. Stage 1.
Cancer found while undergoing a breast reduction.
Clean mammogram and ultrasound 3 months before that surgery.

[Melissa]

Hello everyone,

April 2022,
I'm a 16 year survivor! (two days)
I'm going to celebrate by working in my garden and then by having dinner with my family.
My daughters then: 9 year old is now in PA school, 6 yr old is now a senior in college and my 4 is now a sophomore in college. I'm immensely grateful for everyday and getting to see my girls grow and flourish.
I always think of the many courageous and caring supporters on this site, the survivors and the angels above!
Love to all of you!

[Becky]

I am at 17.5 years. My school aged girls are grown and one is married. I am a grandma to a boy, Asher. I never thought I'd see this day. All I wanted was to live long enough for my girls to not be "messed up" from not having a mother. This site was my lifeline and helped me advocate for Herceptin of which I was not really eligible. I got it and maybe that's why I'm here. So grateful. Thank you Her2 friends

[sherri]

It was December 24, 2004, and I was 48 years old when I received the news that would change my life forever. I was diagnosed with inflammatory breast cancer, a rare and aggressive form of breast cancer that was difficult to diagnose. My diagnosis was ER- PR- and Her2+++, stage 3C. When I searched on Google, I found out that the survival rate was only 5% in 5 years. I wasn’t devastated, I thought I’ve been lucky all my life and had more share than a lot of people in this world, so if it’s my time to leave, I would accept it gracefully but I’ll try my best to survive and fight it.
Before my diagnosis, I was the picture of health, climbing mountains, running marathons, and running my own successful IT business. But now, everything was different. They started me on a very aggressive chemotherapy regimen, hoping that I would respond to the treatment. The chemo was intense, with three types of chemo drugs given together every other week - usually they give these drugs in a period of one year, one at the time. Despite the side effects, I tried to keep up with my active lifestyle and went hiking every week until I couldn't do it anymore.
After three months of chemotherapy, I had surgery (mastectomy) and then started radiation. The doctor advised against removing my lymph nodes because it would cause problems for me due to my active lifestyle. I trusted his advice, even though other oncologists advised otherwise.
But the battle was not over yet. Herceptin, a new drug in clinical trials, showed promise in treating Her2 positive breast cancer, but it was only given to those in stage 4. I knew about Herceptin because I was a member of this site and even met Christine, the founder of Her2 group and many other beautiful members of this site. I asked my oncologist to give me Herceptin, but he was hesitant, not knowing if it would work for me. However, after attending a cancer conference, he called me and urged me to try Herceptin. I agreed and began a year of injections every week.
After my treatment with Herceptin, I felt grateful for my recovery and wanted to contribute to the fight against cancer. I participated in Phase one of the University of Washington Vaccine Clinical Trial for Breast Cancer HER2 positive. Many people told me it’s risky to participate in phase one, especially now that I didn’t have any sign of disease, but I felt it is my turn to pay it forward!
I was lucky to have a loving family, husband, son, daughter, and an army of relatives and friends who supported me throughout my journey. Science and time were on my side, but I also knew that active participation was key to solving any obstacle in life.
Today, I have been cancer-free for 18 years, and I know that there is always hope. With the help of science, community, and family support, I was able to live longer and healthier. My journey taught me that no matter how difficult life may get, there is always hope and a reason to keep fighting.
This June I’ll participate in Cancer Vaccine Institute – UW Medicine. It’s free for everyone if you are interested. For full details, visit https://www.uwcvi.org/post/join-the-cvi-circle-this-june

[Nurse4u2day]

As of yesterday I hit 10 year mark since diagnosis and I remain NED