CoolBreeze
04-13-2013, 08:41 PM
FYI: If you are interested in a private facebook page that ONLY allows metsters living with active disease, let me know via PM. While we are all in this together and pain is pain, a lot of what a metster in treatment goes through is different than what an early stage person goes through. And, sometimes it is hard to find somebody to talk to - do you know there are only about 30 groups for BC metsters in the entire US?
We talk about our treatments, our scans, our successes, our failures, new tx's just for metsters, etc. (It is not limited to HER2 so tell your friends). If you are lucky enough to have been NED for many years, I don't think this group is for you as it is to share treatment stories and current experiences but you obviously are what we dream about becoming!
So, let me know and I'll connect you. It's private and nobody will read it but others with mets. It's a quiet group so far but maybe we can get it more active.
We talk about our treatments, our scans, our successes, our failures, new tx's just for metsters, etc. (It is not limited to HER2 so tell your friends). If you are lucky enough to have been NED for many years, I don't think this group is for you as it is to share treatment stories and current experiences but you obviously are what we dream about becoming!
So, let me know and I'll connect you. It's private and nobody will read it but others with mets. It's a quiet group so far but maybe we can get it more active.