Why i take supplements

[Andrea Barnett Budin]

http://www.cancertutor.com/what_causes_cancer/
WHAT CAUSES CANCER AT THE CELLULAR LEVEL....


WHY I TAKE SUPPLEMENTS...!
http://cdn-cf.aol.com/se/clip_art/gstres/celebrte/celeb-boxer

What Causes Cancer At the Cellular Level? (the Cancer Tutor Website) (http://www.cancertutor.com/Articles/What_Causes_Cancer.html)




If you're interested, please check the SURVIVORS thread for my list of supplements I've been taking since October of '98, 2 mnths after my discovery of "very very slightly elevated liver enzymes".

One of my oncs is an integrative medicine specialist who is an expert on supplements, meditation and more. (In Manhattan.) He provided my annually tweaked supplement list -- tailored for me and my specific cancer.

My oncs were not concerned. Told me not to worry. 3 mnths later from regular blood work -- same scenario. 3 mnths later -- same same. My Inner Voice told me to be worried anyway.

My tumor markers were still within normal range. It was my insistence on a sonogram, that led to a CT scan, which led to a liver biopsy, followed by gripping fear and multiple opinions. Then my chosen chemotherapy.

(My metastasis throughout my liver occurred 3 yrs after my orig dx -- July '95 -- 4th stage bc, 9cm tumor in my left breast, 2 out of 21 lymph nodes effected.)

In Aug of '98 I asked to be tested for the HER2 gene, having read about it in the intervening yrs. I was 80% positive. Herceptin was still in clinical trials.

The demand was great. Women were being diagnosed w/4th stage bc
and given 3 mnths to live. THE FDA FAST-TRACKED HERCEPTIN ON SEPTEMBER 28, 1998, MAKING IT AVAILABLE TO ALL METASTATIC PATIENTS.

I was in the right place at the right time. (As you know, Vitamin H is now available to first liners!)

I bless Dennis Slamon all the time. I have met him, in an exam room, where I stood on the tables step, in my heels, and found him nose to nose, eye to eye with me. I threw my arms around him, and managed to say -- THANK YOU FOR SAVING MY LIFE!

That was around 5 yrs into being on Herceptin. I continued for another 5 yrs, and have been FREE and STABLE for nearly 5 years.

The above link I recently found summarizes to a large degree why I take supplements, religiously, every day, 2 x a day.

I believe we all can be miracle. We each can defy the odds. With a combination of approaches.

With all my love, compassion, dedication and gratitude,
Andi

[ElaineM]

Thanks for sharing this information.

[ElaineM]

I can't find you on the survivor's thread. Can you please provide a link to your list of supplements.
I also believe in integrative medicine.

[Andrea Barnett Budin]

Swallowing all these darn pills is a laborious task. One at a time. That's my method. My husband tosses a bunch of his pills in his mouth at one time. Misses a few on the way. I can't even entertain such an idea!

I put them all in the plastic lid of a container (so they won't roll away), situate myself in front of them and the TV and try not to think about anything other than what I'm captivated with on the screen.

I find swallowing pills difficult to say the least. I BUY ONLY CAPSULES, OR SOFTGELS. NO TABLETS! Impossible for my throat. I think of peristalsis which I learned about in high school. The power of the natural wave like muscles in our throats to move food or pills to their destination is compelling. The key is to relax and not over think...

My longggg list of supplements come from my oncological integrative doc in Manhattan, who helped save my life in 1998 when I metastatisized with tumors throughout my liver. I will share the key ones for those who are interested. (I purchase through Vitacost.com, as their quality is excellent and their prices can't be beat.)

Devoting the time in the AM with a meal, and again at 4 o'clock w/a banana -- every single day -- takes tenacity to be sure. But I feel I am worth it. So are you! The investment is serious. To me, it's a matter of Life and Death.

I DRINK WATER (FOR ME -- ROOM TEMP IS BEST). I DRINK 10 8-OZ GLASSES OF WATER A DAY! BOTTLED, FILTERED WATER. EVERY SINGLE DAY. YOUR ORGANS WILL THANK YOU. SO WILL YOUR SKIN. YOU WILL STAY HYDRATED. I HAVE SEEN WHAT DEHYDRATION CAN DO TO A PERSON. IT CAN LITERALLY PUT YOU INTO A LIFE-THREATENING SITUATION. IT IS YOUR JOB TO STAY HYDRATED, THROUGH NAUSEA AND FEELING LIKE YOU HAVE THE WORST FLU EVER.

I AM NOT A MEMBER OF THE MEDICAL PROFESSION. I AM A SURVIVOR. I HAVE GOOGLED EACH AND EVERY SUPPLEMENT I TAKE. I TRY ONE FOR 3 DAYS, LISTEN TO MY BODY'S SIGNALS, AND THEN PROCEED TO THE NEXT SUPPLEMENT.

Alpha Lipoic Acid 300 AM/PM -- detoxifies liver, antioxidant, neutralizes free radicals, protects cells from damage -- AND RELIEVES MUSCLE PAIN -- IN COMBINATION WITH THE NEXT 2:
Co-Enzyme Q10 -- 150 AM/PM -- which also enhances immune system, prevents cancer cell proliferation, energizes, healthy heart, good gums -- RELIEVES MUSCLE PAIN -- IN COMBINATION WITH Alpha Lipoic Acid and L-Carnitine 500 AM/PM
L- Carnitine 500 AM/PM -- assists gastric absorption, energizes, heart healthy, immune booster -- RELIEVES MUSCLE PAIN


B-6 50 AM, heart healthy, energizes, helps repair nerve damage, good for skin
B-12 sublingual (3,000) -- energy

WHEN I HAVE MY COMPREHENSIVE BLOOD WORK DONE I ASK THAT B-12 AND D BE INCLUDED SO I CAN KEEP TABS ON BEING IN THE NORMAL RANGE. I save every report ever written about me and keep them in a NO MORE CANCER file at home. I compare the new with the last, line by line.

That is how I -- yes "I" -- found my metastases. Asked for abdominal sono, which led to CT which led to biopsy. My tumor markers were still within normal range. But my liver enzymes were ever so slightly different from MY USUAL. Doc kept saying, I wouldn't worry about it. It is very very slight. Well, YOUR #s generally follow a trend. If they vary, I see red flags. Just saying...

C-1,000 w/bioflavonoids 1,000 -- enhances immune system, reduces recurrence of cancer
D-3 -- 50,000 a week. I take 10,000 over 5 days a week. For healthy bones, blocks breast cancer cell growth, meets your body's organs increasing need for D as we age. BE KIND TO YOUR ORGANS. THEY DEPEND ON YOU.
DL-Phenalalanine 500 AM empty stomach -- mood enhancer
Evening Primrose Oil 1,300 AM/PM -- relieves hot flashing, down-regulates HER2 by binding to extra cellular HER@ receptor, down regulates internal proliferation
Folic Acid 100 AM -- red cell booster, heart healthy
Gingko Biloba Extract 60 AM/PM -- mental alertness
Grapeseed Extract 150 AM -- anti-oxidant, can cross blood-brain barrier and protect brain and spinal nerves against free radical damage, enhances anti-tumor effect, protects liver, strengthen connective tissue, including heart system, supports immune system and slows aging
Resveratrol 250 AM/PM -- anti-oxidant, heart healthy, anti-cancer, HER2 blocker
NAC (N-Acetyle Cysteine) 600 AM -- supports healthy liver function, rids body of toxins
NADH -5Co Engzyme 1 (AM/PM) 1/2 hr before eating -- relieves chronic fatigue, boosts mental acuity
Omega 3 - 2,126 -- suppresses tumors, inhibits their growth, may slow or prevent recurrence of cancer, improves blood glucose, good for muscle/joint pain, anti-inflammatory, down regulates HER2 receptor
Phyto Formula -- 1 scoop w/OJ -- promotes energy BIG TIME, reduces chronic fatigue, boosts immune system and increases mental clarity + 1 banana a day!
Potassium Citrate 99 AM/PM -- bone healthy, energizes, healthy heart, prevents stroke
RM-10 Garden of Life Immune System Mushroom Blend VEGETARIAN CAPSULES -- AM/PM on empty stomach -- I take 2 instead of 3 a day because it's expensive but powerful in regulating and stimulating the immune system, anti-oxidant, detoxifier, reduces recurrence of bc
ZINC 30 anti-cancer



yes, there are studies and experts who disagree w/the findings above. i could have waited for more studies in '98, but my Inner Voice guided me to not go with mainstream conservative western medicine on this.

I began my '98 chemo regimen in September. In Oct I developed Shingles. Excruciatingly painful but the worst of it was -- no more chemo. Not till the Shingles is gone, said my onc. Your immune system is too compromised...

I "knew" I was 4th stage metastatic bc, now w/new information that I was HER2+... Highly aggressive form of cancer. Without the chemo, I feared I would die. My need was urgent, and of necessity was put on hold.

So I took all my supplements, used multiple bottles of calamine lotion and pain meds and in 10 days returned to my onc -- virtually unheard of. I was sitting on the examination table. My onc smiled and asked how I was doing. Good I reported, smiling back. Well, let's see. He was doubtful, skeptical. I lifted my shirt. He walked around me in utter amazement. YOU'RE RIGHT. ALL THE PUSTULES HAVE DRIED UP! YOU CAN HAVE CHEMO!!
Hurray!!

I am happy with my bold decision to this day. I continue on my supplements. It is grueling. I'll give you that. But, I KNOW it is my job to be healthy and well. I take that responsibility very seriously. I chase away all negativity!

I go through inscanity when I am due, same as always, but I tell myself -- this is yet another opportunity for me to see the fruit of all my hardwork. I try my best to hold my panic in check, along w/my husband's which is greater than mine. I get same day reports. And, I remain STABLE. No evidence of disease. 15 years from my metastasis. Almost 5 years off of Herceptin (after 10 years on). 18 years since my original 4 stage dx.

I have taken the time to share all this, because I believe in YOU. I support you with all my heart, my Sisters. With love always...


Andi

[Andrea Barnett Budin]

In my supplement list, I forgot to add:

Vitamin E 400 (2AM/1PM)
Selenium 200-- WHICH IN WITHIN THE RM-10 ULTRA IMMUNE BOOSTER I LISTED ABOVE IN PREVIOUS POST HERE
+ Echinacea w/astragalus 2x a day for a wk -- then Thymulus 2x a day for a wk -- then switch back to echinacea w/astrag. Supports the IMMUNE SYSTEM, which is so key! This alternating way -- ON 1 wk and OFF the next w/substitute -- helps you not build up a tolerance to the immune booster.

LOVE...

[KayeR]

Thank you so much Andi for taking the time to share this with all of us! I appreciate the fact that you have lived 18 years past your stage 4 diagnosis, and you still take time to post to this forum. I always read with interest any ideas and strategies you may have for us. I hope that you will continue to stay in touch and continue to share. Thank you again for your time and interest!

[Andrea Barnett Budin]

My amazing Sisters,

Please when you have some time, check out these threads. Their links are here for you to tap right in. I believe there's some really valuable information here!

MY PRAYER FOR SURVIVAL and what drove me to write it in 1998. Feels like a century ago...

My best advice when facing an adversity. We all have battles and challenges that hold us hostage. I surely had mine. And over the last few decades I've read voraciously, meditated daily, found mantras to live by and Lessons to enrich my life.

We must all feel joyful to offer our words to one another. To share ideas. (I learned a whole lot just hanging around chemo rooms in NY and Florida for 10+ years. The patients and the nurses were so full of wisdom, remedies, things my oncs never mentioned.)

Wayne Dyer, Eckhart Tolle, Gary Zucav, Ken Wilber and more have led me and taught me amazing ways of seeing Life!

It is my honor to share it all with you. Truly.

So when you have a few minutes, please read and ponder. And, then please let me know what YOU think!! Please. We're all here on earth to love and help one another, aren't we?!

With Love and Light,
Andi


WHEN CANCER CELLS DIE -- HOW DOES IT FEEL...??
http://her2support.org/vbulletin/showthread.php?t=57683&referrerid=338



SURVIVORS
http://her2support.org/vbulletin/showthread.php?t=57554&goto=newpost


IDEAS TO LET PERCOLATE LIE WITHIN THESE PAGES...

[NEDenise]

Thanks, Andi!

You better believe I'll be reading and re-reading.

On my way to the store to get primrose oil and grape seed extract today... :)
Denise

[Andrea Barnett Budin]

BOOSTING MY IMMUNE SYSTEM IS ONE OF MY MANY REASONS FOR TAKING SUPPLEMENTS DAILY. WHICH KEEPS ME HEALTHY AND WELL AND HELPS ME FIGHT OFF CANCER.

7 easy ways to boost your immune system - TODAY Health - TODAY.com (http://www.today.com/id/45022571/ns/today-today_health/t/easy-ways-boost-your-immune-system/)

HERE'S THE GIST: Get lots of sleep -- 7-9 hrs a night. (Like stress, fatigue can cause a rise in inflammation in the body, which is the source of all bodily dysfunction and illness.)

Do yoga or meditate -- for relaxation. Andreas Bocelli's Romanza gets me there every time. Music, so soothing.

Use olive oil, not canola. Take omega 3 or Krill oil. Move, exercise (10 minute walks sev x a day).

TakeVitamin D -- we're typically below normal (as we age our organs demand more). I take 10,000 mg 5 days a week and am within normal range but on the low side! Check what works best for you. Buy quality products, not the cheapest. I find Vitacost.com gives great value.

Vitamin C (1,000 w/bioflavinoids), E (400) x3, zinc 30, selenium (200).

Think colors of the rainbow. Eat a whole lot of veggies and fruits -- or take anti-oxidants to help your body fight off free radicals. Also eat protein (antibodies that fight off disease are actually made up of protein). Also protein has a lot of immune boosting nutrients.
Garlic and carrots and yams are especially good for you.


Watch sugar and fat intake! They hamper the ability of white blood cells to overpower and destroy bacteria.

Socialize, enjoy the company of people you love and like. Hug often. Laugh with exuberance throughout the day! Smile. Life is good. Be grateful for each day. Share your joy and serenity (from your enhanced immune system) with everyone you meet. Talk to strangers. (They carry message for me, and you for them...)

Echinacea w/astragalus 2x a day for 1 wk. Thymulus 2x a day for next wk. Then back again.

With love,

Andi

[Andrea Barnett Budin]

Good for you Denise! Getting a rein on THE HOTNESS makes for a happier you.

Next, maybe you can begin to boost your immune system. Trying not to be pushy. But I do believe I am here today because of more than the surgery and the chemo.

Attended a lecture yrs back given by one of my oncs who is among the top 100 in the country, so some magazine says. Paul and I went for the 7:30 A.M. lecture. (For me that is a huge mountain, but I really wanted to hear him, despite my ready access to him every 3 wks.)

He spoke of Herceptin and 4th stage and from a researchers point from view where we stand. He mentioned in the lecture that one of his patients has had miraculous success w/H. Really astounding that she has survived as long as she has.

Paul turned to me and said, You know he's talking about YOU. OMG... Not the first onc, or nurse, to tell me I am a miracle. Elates and stuns me every time.

EVERY THOUGHT IS A PRAYER. EVERY PRAYER IS A POTENTIAL MIRACLE IN THE MAKING...

With love,
ANDI

[ElaineM]

Thank you so much for sharing. I take some of the same supplements as you do. I will discuss the ones I don't take with my naturopathic physician during my next appointment.

[Andrea Barnett Budin]

Please let us know what you learn, elaine.

We need to share information. Network. Expand our awareness.

Thanks,

andi

[Andrea Barnett Budin]

I should have called this thread WHY WE SHOULD ALL TAKE SUPPLEMENTS. Sorry if I'm being pushy, but I believe they helped the surgery/chemo to get me to STABLE. And THAT is what I wish for all of you, my Sisters!!!!

Ever since my first chemo I have had a chronic case of IBS (irritable bowel syndrome). Was totally normal for the first 50 yrs of my life. My oncologist/nutritional expert in NYC told me to take 2 WOBENZYM 1/2 hr before meals.

WOBENZYM was/is a leading immune system booster in Germany, where it was developed in the '60s. I have read about it (googling) and find it is an anti-inflammatory!!!

Many yrs ago, I noted that Dr. Christiane Northrup (Women's Bodies, Women's Wisdom) was on Oprah -- when Oprah was on Oprah on NBC. Remember?? Dr. Northrup is a leading doc who specializes in women's issues. I found her extremely bright, warm and full of information.

She commented that the cause of all bodily dysfunction is -- INFLAMMATION. That is the root cause. Since hearing that a decade ago, I take notice when people describe their ailment/illness. And I recall what she said. I do believe she is right on.

Womenzym helped my irritable bowel, which apparently stems from an inflammatory situation. I definitely know it helped me feel 90% better, with way more anxious races to the toilette...

Since then -- I've read that it is an enzyme containing plant-based enzymes BROMELAIN and PAPAIN -- both -- anti-inflammatories!!

Those are enzymes which help support a healthy immune system, which I believe from all I read is firmly is essential not only to wellness but in fighting off free radicals, or cancer cells.

I am not a medical person. Not a biology whiz, but this concept makes such sense to me.


Wobenzym Information Guide (http://www.wobenzymps.net/)

So, it's good for muscle and joint pain (which come from inflammation). Good for preventing heart attacks and strokes. Good against chronic infection. Better than taking anti-inflammatory meds. NO NASTY SIDE EFFECTS.

It is known for benefiting viral injection treatments for herpes, cancer and Hepatitis C.

Lowers inflammation involved in allergies and allieviates the symptoms for the sufferer.


I now take 1 Wobenzym before each meal. Not sure if that is b/c I have a digestive tract issue or if it is best on an empty stomach. It says on the bottle that you should take 3 twice a day.

When things were acting up for me this past Sept/Oct (I was anxious and feeling stressed -- which causes flare ups) I upped my dosage to 3 twice a day.

Well, I don't recommend that. I started to shed. Losing lots of hair all over the bathroom floor. More than my usual shedding. After several months, I went to my trusty Google and asked it -- CAUSE OF HAIR LOSS IN WOMEN. I read for a while, then came upon -- too many anti-inflammatory meds!!!

So I have cut back to 2 and then 1.

BE WELL. FEEL GOOD. Supplement away, dear girl. I think it is key. Which no doubt you've heard me say. Repeatedly. Can't try to drive that point home enough.

I get most of my supplements from Vitacost.com. They have wide choices, excellent quality and discount all supplements.

I prefer capsules and softgels and avoid tablets whenever possible But Wobenzym only comes in tablets. HOWEVER, they are small round, coated and rather easy to swallow.

Garden of Life RM 10 Mushroom Blend vegetarian capsules have Selenium in them -- which Dr. Andrew Weill says is essential for all of us -- AND I SEE IT IS NOT ONLY AN IMMUNE BOOSTER BUT A DETOXIFER, ANTI-OXIDANT AND AN ANTI-INFLAMMATORY. Expensive (but the least so among the Immune Boosters). I take 2 instead of the recommended 3 a day -- on an empty stomach. First thing in the AM, last thing at night.

Just suggestions.

Oh, and MORE EXCELLENT IMMUNE SYSTEM BOOSTER --
Co Enzyme Q10 -- 150 mg x 2 is an anti-inflammatory. As are L-Carnitine 500 x 2 and Alpha Lipoic Acid 300 x 2.

IF YOU CHECK MY SUPPLEMENTS LIST IN PREVIOUS POSTS IN THIS THREAD, PLEASE NOTE MY P.S. MENTIONING THE SUPPLEMENTS I FORGOT TO ADD TO BEGIN WITH.

Sorry about that...

Andi

[NEDenise]

Hi again...
Started grape seed extract, echinacea and evening primrose oil today! Sitting here...deep in the heart of a hot flash...reeeeaalllly hoping evening primrose is the bomb once my level build up! :)

Already take CoQ10 and fish oil because my cardiologist said, "every adult in the entire world should be taking those daily" but especially anyone who's worried about their ejection fraction....like me!

And I've been taking calcium and big doses of vitamin D for about a year at the suggestion of my onc.

Any other major anti-inflammatories or brain swelling supps anyone's heard of?

Pro-actively, Pro-biotically Yours :)
Denise
(who is so sick of having moon face she'll try whatever it takes!)

[Andrea Barnett Budin]

Just another example of my human fallibility --

ECHINACEA W/GOLDENSEAL -- one wk on / 1 wk off

interchanged w/THYMULUS W/ASTRAGALUS -- 1 wk on / 1 wk off

when i do my mnthly pills i have 4 huge pill holders for AM and 4 for PM... and it takes over an hr to get all the guys into the right slot S/M/T/W/T/F/S.

please note these changes for yourself.

[Andrea Barnett Budin]

My dear NEDenise! (love that name)

Are you take 1,300 of Evening Primrose Oil AM -- AND PM?

I keep a few 500 mg ones w/me at all x, just in case I hit a rough patch.

It started working pretty soon for me, and of course better and better as time goes by. Been on it forever.

Met a lady/bcer decades ago and we were shvitzing away and noted one another. She said she is much better on EPO, which I'd dabbled in. She said it really worked. I think I was taking 500 x 2. I asked her, How much do you take?????!!!!!

She looked me in the eyes and said -- WHATEVER IT TAKES!!!!!!!! So, I upped my dosage to 1,300 x 2. And keep the 500 for emergencies, which rarely occur.

I suffered since my 40s with major all day hotness. Carried a Brookstone 4 large battery fan with me everywhere I went. Restaurants, weddings. My dghtrs were horrified. I don't care. I have a condition. I need intervention, I'd explain.

I am not a drama queen.

Denise, you have such smart docs. Very impressive. Co-Enzyme for sure! As your doc said. And Omega 3 -- essential. Everyone on the planet should be taking these. You are right on, as is your doc, Denise. And all the experts I hear and read on and in the news!!!!!!!!!

Also, my onc/nutritional maven put me on PERFUSIA (Thorne) to help my Ejection Fraction out. Ejection Fraction elevator and heart strengthens. I took at first once a day, then he upped me to 2x a day.

Also, I discovered (through Dr. Oz of all people) COLEUS FORSKOLI 125 mg w/20% forskolii.

Check that out -- google it. It's been around for decades and studied. It helps your body in myriad ways. I swear it has helped by triglycerides get normal readings. It has helped elevated my EF, to the point I thought the reading was a typo or something.

Did I list all the immune boosters in this thread? I think so. Though I added a few after my initial list I know.

Pro-active, pro-biotic Denise, I just love your attitude and wisdom!!!!!!!!! We must advocate for ourselves. Cause no one cares about us more than we do. And docs are busy. Spouses don't know what to do but to love us, which is essential. So as my fav dentist once told me (she was a bc survivor) YOU MUST PARTICIPATE IN YOUR OWN WELLNESS.

BTW, I didn't even know I had moonface yrs ago. But now when I look back at pictures, I am astonished. Melon-head. Some was steroids which I took the day before and the day of chemo -- for yrs. Not sure what it's all about.

But I do know, Denise, you are beautiful inside and out
-- you sparkle. Love your posts. Love you...

ANDI

[NEDenise]

Hola!
I could only find EPO in 1000mg gels, so I'm doing 1000 AM and PM.

When I restock, I'm going to check online...so I can up it then. Believe it or not, last night was the first time in over a year that I DIDN'T have my own personal fan blowing on me!! Oh, how I hope this is q harbinger of good (non-sweaty) days ahead!

I'm wondering...why do you alternate the echinacea with the other supplement?

And...about my name...I'm sooooooo hoping to live up to the NED part again one of these days!!

Thanks again for sharing all your wisdom and light!
Denise

[Andrea Barnett Budin]

Hello there NEDenise! I understand. My mantra is -- I AM STRONG, BRAVE AND DETERMINED. Even though when I started (in '98) I wasn't so sure on the brave part. I was trying my darnedest but it was -- a goal. NED is always our goal. Though in '99 what I got from my 3rd opinion and 4th opinion's radiologists who didn't know each other -- CAUTIOUS REMISSION. I grabbed it. And remain STABLE.

So -- Evening Primrose Oil (EPO) 1,000 AM & PM is starting to kick in!!!!!!!!!!!!!!!! It is soooo thrilling. Truly.

I recall during my 27 yrs of being clammy, feeling like I was in a sauna, flinching inside whenever someone hugged me, cause they'd notice I was damp, shaking hands w/someone I'd dry my hand on my pants first -- and then the relief. I too have retired my personal fan.

Remember, I keep 500 mg of EPO w/me @ all x. When a sudden flash hits I wait 5 min. If it doesn't dissipate, I pop 500 and amazingly I am good.

I get most of my supplements from VITACOST.COM. Excellent quality, many choices, discounted prices across the board, easy website, fast service, free shipping w/$50 order. That's where I get my 1,300 mg EPO. $24 for #300 of 1,300. (I checked -- $6 for #60 of 1,100.)

If 1,000 is working for you -- great.

We can build up a tolerance to any pills. It has been suggested that switching on one wk and off one wk and then back on means Echinacea/goldenseal gives me full benefits and all the efficacy I could want.

In between (on the off wks -- I take Thymulus w/astragalus, which is well known for its immune boosting properties. (When my rescue Maltese came to me he had mange which is tiny mites attacking the immune system. He wouldn't eat or drink. He was 4 mnths old and had been stuffed in a cat carrier all day while it's owner went to work. All the hair on his face and neck fell out. When I looked at him all I saw was something like a burn victim. Red, raw skin. I was sooo scared. Filled with fear.

The rescue lady gave me a book by a Cornell trained vet who after 10 yrs of practicing conventional medicine, discovered the power of supplements. In desperation, I skipped the food nutrition section and found myself in The Spiritual Realm!

The doc mentioned lots of supplements he used for various conditions and for a compromised immune system he used "astragalus". So I gave some to my boy, along w/the prescription meds that previously didn't seem to be working. I added lots of love, tender loving care, just sitting and petting him and transmitting positive healing energy. When I looked at him I said out loud YOU ARE BEAUTIFUL. I LOVE YOU. I AM GOING TO HELP YOU GET WELL. WE'LL DO THIS TOGETHER vs thinking OMG he's going to die...

He is now 10 yrs old and healthy and well.

Always love your posts, Denise.

You've been through so much. Guess we all have. But the stress of it can show itself in lingering fear that puts our back in jeopardy. I've been there. It is totally painful and effects our every move, including brushing our teeth. The more pain we feel, the more fear we feel, which causes our bodies to imperceptibly tighten up and squeeze on nerve endings which causes -- more pain. Thus, we get stuck in a cycle of PAIN -- FEAR -- PAIN -- FEAR and we become trapped.

When you feel an especially gasping moment of pain -- try STOPPING EVERYTHING AND GO BACK. It is difficult, but try. WHAT WERE YOU THINKING AT THAT PRECISE MOMENT???

For me, it was always something that was tension producing (including what am I going to make for dinner). Once I proved that to myself, I SAW the connection of my thoughts to my pain
-- and the pain had encompassed my life for 2 yrs slowly dissipated in 2 wks...

Something to think about and give a whirl...

Sorry once again for my long posts -- guess I feel I have soooo much I want to tell you all.

Always With Love and Light,

Andi

[jacqueline1102]

Hello all,

I, too, take many supplements which has been discussed in another post. What I would love to comment on today is our wonderful Andi. Andi, you may not realize it, but you are implementing and living the practice of visualization. I am a clinical psychologist working in a family medicine residency clinice alongside doctors and nurses and I am also a patient. Your suggestions have proven validity. We are learning much in the field of medicine and mental health the power of the mind's ability to harness health. And the health care world is just now getting it. You may read about terms such as integrative health care, biopsychosocial approach, etc... Fortunately, my team is coming around to this. The nurses were already on board. Anyway, my point to this post is our Andi comes from a spirit of knowing.

Take care,

Jackie

If anyone is interested in research along these lines please let me know. I still work fulltime and hubby and I are busy trying to just do life. Please PM me if you want or if you feel this information would be appropriate to pass along to everyone.

[europa]

Anyone know how to find a good integrative medical professional with oncology experience? I feel like this is a field that is a bit mysterious.

[jacqueline1102]

Hello,

Dr. Keith Block is a specialist with integrative medicine and oncology. He is located in Chicago, Illinois. My treatment team supports his work. I have yet to make an appointment but have talked with them. You may also check around your area (the medical schools within your area). DO's support the integrative component of health care and may know other physicians whose speciality is oncology. Hope this helps,

Jackie

[NEDenise]

Andi...
Have I mentioned lately how much you rock!?
I love the story about your boy! I have a giant black lab who came to us through a rescue. They said no one wanted him. He was only 6 months old and had already been abandoned...then rescued twice and returned because he was too aggressive. When I went to meet him, they warned me. Andi, I am not exaggerating when I say that I sat down on the ground, and this 50 pound pile of gentle love crawled right into my lap. It was absolutely love at first sight. Clearly, someone had been mean to him. He was on guard...but he knew his new "mom" the minute he saw me. His foster parents were amazed! Evidently, he normally growled and avoided new people (even them at first) for days before warming up at all!

Is he protective? Absolutely. When new people come into our home, he has to be crated. But on a walk, or at the vet...he couldn't be friendlier. I tell him constantly how beautiful he is, and he answers to Good Boy as well as his real name! Positive energy, and love...the keys to happiness...and HEALTH I hope!

Now...on to less interesting things... :) ... fortunately,, I don't have any pain. My only brain swelling symptom is that I lose my balance and my hands shake when the pressure increases. All things considered...things could be much worse. Now...don't get me wrong...I'm no martyr...I'd LOVE not to have any symptoms. But compared to what some of our sisters are dealing with...especially our dear Chrisy...I'm blessed.

You've inspired me to talk to my body as it's healing. I've been narrating the decreased swelling. I do it in my best movie narrator voice. As an elementary teacher, I've grown pretty adept at the whole reading in different voices thing. So inside my head, I sometimes get to chuckling as the narration gets more and more elaborate...but then...laughter is my best medicine!

Right now, the swelling is just a stupid, amorphous blob, that doesn't say much. But, the key players on my team are real hardasses. Yesterday, the lead butt-kicker was a Tony Soprano type guy...with a heart of gold, of course...for me it's really about the accent and the way he talks. Today, perhaps the immune boosting echinacea will have YOUR face as it kicks things into gear! Now that should be entertaining!!

Oh, and please don't ever apologize to me for long posts! I love long posts myself...and if people get bored...they don't have to finish reading. And, I like changing fonts and colors too!

Hope you have a day filled with everything that makes you glow!
Denise

[Andrea Barnett Budin]

Oh NEDenise... Hi there!

I am thrilled to hear that LOVE conquered all. Sitting down on the ground/floor w/pups and babes is one of the smartest things we can do. Though, it gets harder and harder to get back up, I must admit.

Your positive energy is felt EVERYWHERE. My computer is lighting up from you!

Just have to give you the whole story here. My rescued Maltese survived till 4 mnths w/his bro. The rescue lady wanted them to be taken together cause they'd been through so much together. So -- we took both. And both are now fine. The one I mentioned previously was the sickest, though both had mange. The littler one protected the big lug, who we thought was just dumb. But when all his hair fell out, we realized how truly sick he was. And we changed vets, which meant changing his meds. New vet said, totally wrong tx. My BOYS are now 10. AND -- we just rescued another maybe 1 yr old.

Looks like a Maltese and a Jack Russell got together. He bounces when he walks, little Jack ears. He was emaciated as he didn't fare well lost somewhere in Coral Springs. A cop found him and brought him (and his flea infestation) to the Humane Society. They shaved the poor skinny fella. He wasn't much to look at, but the moment our eyes met, I was in love. He's been with us since Feb. 1... Oh -- and we discovered -- he is deaf! All the more reason to love him. We do hand signals. And use a small flashlight to try to get his attention. Sooooo sweet. We have 3!!!!!!!!!!

So, on to less exciting things, as you say, Denise. I am hoping that the supplements will help your symptoms. Is the hotness still raging? http://cdn-cf.aol.com/se/clip_art/gstres/badday/flaminghead-runner I truly hope you get cut a break with that one at the very least.

I love that you use method acting to tease your body into cooperating. I too use the voices when I read to my grandkids or their classes. I really get into the roles. Fun is so healthy!

The body talks to us. We have to listen. Take its cues. When it is distressed it tells us -- w/sometimes subtle and sometimes not so subtle -- symptoms. Every ache or pain is telling us we're doing something right, or we need to switch to Plan B.

Keep us all posted re your reactions. When my husband couldn't walk (from the large dosage of statins he absolutely needs to be on) I read about the L-Carnitine/Alpha Lipoic Acid/Co-Enzyme Q10 combo. In a very very short period of time he was not in pain. Was limber. Getting down on the floor w/my grandsons and playing marbles (as he'd done as a kid). You could see the joy he was having. And the kids were excited to have a playmate.

The glow from that reminds me why I am still here. I don't want to miss a thing. Not the birth of the first grandkid (who's now 16) or the second, third, fourth or fifth. Went to the Bat and Bar Mitzvah of two so far. Ready and eager for lots more to come........................

Andi

[Andrea Barnett Budin]

Feeding your Soul / Spirit is as important as taking supplements. Which means giving yourself the gift of -- seeing yourself IN VIVID DETAIL far far far into the future!!!!!!!!! Using VISUALIZATION as Jackie mentions is part of the recipe for success w/canser. Your posts are fabulous, Jackie. So much good stuff. Please -- KEEP IT COMING!!!

I have been using this Guided Imagery technique since '98 -- seeing myself at my then 2 year old first grandchild's Bat Mitzvah (which occurs on your 13th Bday).

I am past the services, at the celebration. I'm standing and clapping with all in attendance, as Josie enters the dance floor. I am surrounded by my husband and family and friends. Radiant. I look great. (If you're going to visualize, you better believe you should be glowingly beautiful, from deep down inside out!)

I LIVED THE DREAM, and then some... My granddaughter is now 16!!!!!!!!!

Elaine -- please update us. I know you take lots of supplements, but were considering more. Did you ever run any by your onc??

Denise -- gosh, I am totally aware of alllllll you are going through, but was still wondering how the hot flashing was going with the Evening Primrose Oil. You should have at least that not to worry about. In fact, I was searching for your latest update. Did I miss it? I think of your witty and wonderful Self all the time!!! Honestly!

I'm presently reading OUTLIVING CANCER -- Cancer Doesn't Grow Too Much, IT DIES TOO LITTLE & Why That Matters (Robert A. Nagourney, MD). I am only 1/4 of the way through and I am quite motivated to keep returning to it when I catch a moment. Fascinating read.

This onc is all about eliminating chemoresistance! You know how I tout CAM -- complimentary alternative medicine...

He believes that cancer is a metabolic disease; a metabolic disorder, a disease of changed energy production. That heart health equals cancer prevention. That appropriate management of blood lipids and maintenance of blood sugar are key.

Exercise induces changes in cellular physiology, effects bone density and well-being associated w/endorphin release which has a profound influence on cellular metabolism.

He speaks of psycho-neuro-immunology (one of its' father Hans Selve, MD) which our Brenda introduced me to many years ago and I readily embraced. It made such sense! Emotional stress causing disability, adrenal hypertrophy, gastric ulceration, immune deficiency -- all byproducts of chronic stress.

The close association between the sympathetic nervous system, the hypotalmic-pituitary-adrenal axis, the disruption of momeostasis that can PREDISPOSE HUMANS TO SUCH VARIED ILLNESSNES AS CARDIOVASCULAR DISEASE, PARKINGSON'S DISEASE, THE METABOLOIC SYNDROME -- AND CANCER.

In answer to Europa's quest for an integrative doc, Jackie mentioned Dr. Keith Block. Well Dr. Nagourney who wrote this book I am raving about, also speaks of Dr. Block, Medical Director, Block Center for Integrated Cancer Treatment and Director of Integrated Medical Education, University of Illinois College of Medicine. HE IS STATED AS DEFINING A PERSON'S SUCCESSFUL RESPONSE TO ILLNESS AS THE INTERSECTION OF IMPROVED LIFESTYLE, BOOSTING BIOLOGIC COMPETENCE (DOES THAT MEAN SUPPLEMENTS AND EATING HABIT????) AND ENHANCING TREATMENT OPTIONS. REDUCTION OF OXIDATIVE STRESS AND INFLAMMATION.

As Dr. Christiane Northrup says, All bodily dysfunction begins with inflammation!!!

WE MUST BE ECLECTIC. ELECTICISM, THE CAPACITY TO DRAW UPON DISPARATE DISCIPLINES, IS THE WAY TO SUCCESS.

Dr. Nagourney says, I given conventional treatments unconventionally and give unconventional treatments conventionally. Hmmm...

Einstein told us that, "What you cannot see can be".

Dr. Nagourney has had over 20 years experience. During his medical oncology fellowship at Georgetopwn University, he confronted aggressive malignancies for which the standard therapies remained highly unsatisfactory. Responding to an unmet need, he pioneered the development of PERSONALIED CANCER THERAPY, applying a laboratory platform to match patients to therapies based on their unique response profiles. FUNCTIONAL PROFILING in human tumors is his thing.

I have a list of docs he recommends in Huntington Beach, Calif, Greenwich, Ct, NYC, Phoenix, Az, Mesa, Az, San Francisco, Calif, Portola Valley, Calif -- for anyone who lives anywhere near there or is willing and able to travel there. Please, just ask...

[europa]

Hey Andi!

Could you post the docs he recommends in NYC? I'm in DC so that's only a 3 hour train ride.

Thanks!

[Andrea Barnett Budin]

Okay Europa, Dr. Nagourney suggests:
Henry Dreher, MA
Cancer Guide Consultations
84 East 3rd Street, #2C
New York, New York 10003
347 - 344 - 7057

" Mr. Dreher conducts research for patients with all types of cancer, providing expert consultation on the most effective cancer treatments available. In phone consultations and written communications, he educates patients on the most promising therapies; guides them through the process of testing of their own tumor tissue for the design of personalized drug therapies; refers them to leading experts in their cancers; and empowers them to develop their own 'team' of oncologic experts.

"He also helps patients to integrate scientifically grounded complementary therapies (nutrition, natural compounds, mind-body medicine, fitness, etc.) with cutting-edge mainstream therapies."

More than 25 years experience as a researcher, educator and patient advocate. Brings a unique body of knowledge to his practice. Has authored nine books. His most recent is Mind-Body Unity: A New Vision For Mind-Body Science and Medicine (John Hopkins University Press)

Please let us all know what you learn and how you're doing. Wishing you Life's best... Keep the faith. Listen to your Inner Voice!

Love,
Andi

[ElaineM]

I believe in integrative medicine too. Does the doctor you mentioned have a website Andrea?
I promised to share the names of some of the supplements I take, so since I visited my naturopathic physician last week and he adjusted my supplements I thought it would be a good time to share the names with you.
Co Q 10
Milk Thistle
Calcium and vitamin D
B 12 (He found a deficiency.)
Maitake mushrooms or I cook with shitake mushrooms
Selenium
baby asprin
Evening Primrose oil
Curcumin or I cook with tumeric
(The active anti inflamatory ingredient in tumeric is curcumin.)
for an explanation of what these supplements and other supplements do follow the link below.
http://www.lef.org/magazine/mag2012/nov2012_Epigenetics_Breast_Cancer_01.htm

[Andrea Barnett Budin]

This is an amazingly great link, Elaine...! Thanks for sharing.

I know the importance of selenium (which is included in my RM-10 mushroom blend immune booster). So that's 1 pill I can skip. I think 200 mg is what Dr. Andrew Weill recommends on the selenium.

So glad you had your B-12 level checked. I do this periodically along w/Vit D. I have to request that my docs include those among my blood orders.

Your article speaks of the enormous control we as individuals have within our grasp!! EMPOWERING, RIGHT?!!!

That's how I feel about my supplements. (With IBS issues since chemo, there are many foods I cannot tolerate (digestively speaking). So I can't rely on diet alone. And the large portions of fruits and veggies we are supposed to ingest a day is not so easy even for those who enjoy and can eat them. Again, the supplements supplement my diet. Sounds funny, I know...

I take 1 baby aspirin every night. Very important! (I take a whole one on Sundays.) Guards against stroke too.

I take Green Coffee Bean Extract cause I don't drink coffee (don't even like coffee ice cream!) and I know how important it is to our lives, medically speaking. It lengthens our lives, AND it helps fight against cancer.

I take Resveratrol and Green Tea. I have Lycopenes in my Phyto Formula for my chronic fatigue (w/OJ). I take 10,000 Vit D 5 days a wk and still register in the low end of the normal range. As we age, our bodies' demand for D increases. Our organs need help to function well.

I am missing a few, but I think I can't swallow one more pill -- CAPSULE/SOFT GELS O N L Y...

I do not take soy though I did at one time take soy insoflavones. My nut onc (nutritional oncologist) in NY told me to only take natural soy, no powders or pills. My hot flashes at the time were so drenching horrid, I swear if they sold Estrogen in the vitamin store I would have bought it. (I was on hormone replacement therapy for a very very short period of time, trying to stop menstrual bleeding that was more like hemoraghing (no idea how to spell that!). I am post menopause now. But the hotness continued. The evening primrose oil seems to be controlling it now, after 27 yrs of flashing...

Elaine, and those interested -- I found the following:

Henry Dreher | Omega (http://www.eomega.org/workshops/teachers/henry-dreher)

I see a 212 - 228 - 0322 phone # on line for Henry Dreher.

Also -- www.henrydreher.com (http://www.henrydreher.com)

AND -- came upon --

Naturopathic Medicine for Cancer Treatment | CTCA (http://www.cancercenter.com/complementary-alternative-medicine/naturopathic-medicine.cfm)

HERE'S TO HEALTH & WELLNESS. I'm sipping wine while typing... :o)

Andi

[ElaineM]

Thanks for the link. I will look at it later.
Oh yeah. Mushrooms have selenium. I decided to look and see which foods have it. According to the website below several kinds of mushrooms are on the list.
http://nutritiondata.self.com/foods-000127000000000000000-1.html?
Yes. I agree. We have a certain amount of control over our bodies even with cancer.
Take care.

[Andrea Barnett Budin]

http://www.mnh.si.edu/exhibits/ocean%20views/gallery/SeaLions_KevinSchafer_sm.jpg (http://www.mnh.si.edu/exhibits/ocean%20views/gallery/sealions.html)

SEA LION???? I couldn't possibly... Selenium by pill only...

Andi

[kvogler]

I heard a news story the other day saying that Gingko Bilboa has been found to cause tumors in rats and that it may be pulled off the shelves. I don't take it so I didn't give it more thought. Of course, everything seems to cause cancer one day and not the next. I'm just enjoying my coffee today because a report came out stating it prevents a recurrence. But give it a week, and it will be causing something.

[Andrea Barnett Budin]

Please, if you haven't already -- check out the GARLIC, WINE AND CHOCOLATE thread.

More about supplements and foodstuffs that help inflammation, promote tumor cell death (apoptosis) -- and energy medicine!

I am having grand success w/a simple 2 minute ibs technique for -- diarrhea -- if anyone is interested in this.

Plus energy medicine for boosting your energy. Insomnia. And more. Takes a few minutes to do and works almost immediately.

I am amazed. And delighted. Life-changing...

Any interest???

LOVE,
ANDI

[Andrea Barnett Budin]

It occurred to me yesterday, midst OUTLIVING CANCER book (Dr. Robert Nagourney) -- MUST READ! -- that my supplements are in fact my MAINTENANCE THERAPY.

They aided me in not succumbing from all that nasty but effective Taxotere -- gotta just bite the bullet and go for it. My supplements helped keep my ejection fraction up (Arginine 500 immediate and 500 sustained release) actually works. Opens the blood vessels. Keeps the heart strong to withstand it all.

The stuff I still take for energy, just always low on the stuff, truly HELPS BIG TIME.

And though I am nearly 5 yrs off Vit H (Herceptin as I always refer to it, after 10 yrs on it) -- I would not even consider for a second stopping my MAINTENANCE THERAPY aka supplement regimen.

It's a pain in the butt. 2 x a day. Every darn day. Swallowing one at a time, stationed in front of the TV, focusing on whatever rather than the swallowing process -- is a true chore. But I am dedicated. I see the miraculous results. I feel the results. I KNOW I am doing all I can to remain healthy and well, stable, energized, no pains (co enz q10, alpha lipoic acid and carinitine), also Wobenzym 1 pill 1/2 before meals. D. All the Bs. C. Calcium. Omega 3 (RB is surely proud of that).

I go in to detail way above in this thread, for those who are interested in dabbling. I order on line @ Vitacost.com cause their quality is good and their prices discounted. Order $50, easy, and you get free shipping.

HERE'S TO YOU ALL! HEALTH AND WELLNESS!!!

Much love,
ANDI

[Cat]

Hi! I have a question. I have read so many things regarding nutrition etc. from fasting before during and after chemo to "starve" the cancer cells to adding all sorts of supplements. Is it different in remission vs treatment? I am so frustrated because I want to keep my body healthy and do what I can to beat this thing back. I asked my onc about the idea of not nourishing the cancer during a previous tx and he suggested holding off on supplements around tx days. Now I am reading about other things I was not aware of like selenium etc. and don't know if it's something to worry about if/ until I get to remission. Thanks for all the great info I get from this whole site you ladies are so informative and fun to listen too.

[Andrea Barnett Budin]

Hi Cat,

I hear you. I was just where you are now in '98 (when my 4th stage bc spread throughout my liver). After my initial dx/mastec/tram flap reconst ('95) I received loads of beautiful flowers, heaps of books and an outpouring of love and support. I was 50 yrs old. Way too young to die, I kept thinking.

I'd read Dr. Mitchell Gaynor's book (one of the stacks of books I'd received). It was 5 AM and I'd gone into the bathroom to read, not to wake my husband. With the lid down, I sat and read. On the 1st page I was covered in goosebumps. I KNEW I WAS GOING TO LIVE! Dr. Gaynor is an integrative oncologist, including meditation, guided imagery and sound therapy. He is an expert in all and most especially in nutritional supplements. I call him my nut onc.

He is not your average brilliant onc (I had accrued about 5 between NY and Fla where I lived at that time).

He totally believes in the mind/body connection -- WHEN THE MIND SPEAKS THE BODY LISTENS is a thread I started, you may want to find (if it isn't on page 1 -- it's on page 2 of the threads). I'd had personal experiences with 2 yrs of debilitating back pain, when my kids were young and really needed me 24/7. Also when I had a kidney stone the size of Texas that I refused surgery to remove and used my mind. And gallons of water to help move it along. I personally experienced the power of our minds and it was AWESOME!

So on tx in '98 my oncs all said -- wait to take the supplements -- which mainstream docs just don't know much about and don't trust. I repeated this to my nut onc and he said, rather passionately -- NO! DURING TX IS THE MOST IMPORTANT TIME, THE TIME YOUR BODY MOST NEEDS HELP TO COPING WITH THE SIDE EFFECTS OF TX!!!!

My Inner Voice told me that made perfect sense. I tend to listen to my docs direction, but in this case, with my gut feeling so strongly against what they were saying -- and it being MY LIFE we were talking about -- I bravely chose to take the long list of supplements, every one, that my nut onc recommended.

I KNOW it helped me get through the ravaging effects of Taxotere! I KNOW it helped me stop the shingles I acquired about 1 mnth into that tx (my immune system being so compromised). Generally shingles can last mnths, even yrs. I was firmly told I COULD NOT RECEIVE CHEMO WHILE I HAD THE SHINGLES. I knew I had less than a 15% chance of living for a year, 5 yrs tops. I planned on living till I was 100, and in good health with a sharp mind!!

I took more supplements targeting the Shingles virus. And in 10 days I returned to my oncs office. How are you doing?, he smiled and asked congenially. I'd known him for 3 yrs and we were close. He had 3 dghtrs and empathized perhaps even too much w/my situation(s).

I'm good, I said. He almost laughed I could see. He said, Let's have a look. I was seated on the exam table. My husband in a chair by my side, as always. I lifted my shirt. My onc circled me, checking out my torso, and was amazed. You're right! All the pustules have scabbed over and healed up. You can have chemo today if you want.

I wish you the very best, Cat. I almost said best of luck. But I believe we help create our own luck with knowledge, insight, unwavering fortitude, positivity, self talk (talking to your body and leaving commands for it to get its' act together), an open mind and an open heart.

I am sending you Love and Light. Please keep us all posted on your journey. Sharing is what this fabulous site is all about. We are here to help one another and grow...

Andi

[Cat]

Andi, Thank you so much for your positive input and support. I became teary eyed when I realized how long you have been going strong. It does make a lot of sense when you put it that way. I think I have tolerated the chemos I have been through quite well and have missed only 1 tx due to a staph infection and fever so I wonder if it has something to due with my attitude of "it's not my time". I hope so. I have always taken eating right and getting lots of water seriously even though I "supplement" my healthy food with some "junk food" too! My onc has come to respect my instinct so I will be looking for Dr. Gaynor's book and hopefully I will get goosebumps too. Thank you again

[Andrea Barnett Budin]

Keep listening to your Inner Voice. That's your Spirit talking to you. It is full of eons of wisdom and it wants what you want. It loves you more than you love yourself. So trust it. Stay in touch with it. Connect with it. Align yourself with that "Knowing". It is the True You. Many call this Inner Voice their gut. Their instincts rising up...


If you KNOW a thing (deep down at your core) -- it will be. IOW, if you KNOW you're going to fail -- you are sealing your destiny. Whereas, if you KNOW you can and will prevail -- you are calling your desired goal to you!!!!

Your gut is your Inner Voice. It's your SOUL! It guards and protects you. It nurtures and sustains you. LISTEN TO YOUR INNER VOICE. It is an eternal sacred entity that is always with you! You are never alone. Never. (I talk to mine all the time!! Yes, I talk to my body, and I talk to my Spirit -- at the very Essence of my beingness.)

And Dr. Gaynor understood this as I read his book, Healing Essence. I couldn't even make sense of the title when I read it in 1995. Now, I see! Your Essence is your Spirit. Your Essence is alive and getting well. Believe in its power!


Sending Love, Light and Positive Energy. I live in the Land of Yes! Join me, please...



Andi

[conomyself]

I like to visualize too...

I picture my husband and me at age 100 living in the old folks home with our iPads :)

I try to really imagine it in detail every day...

Thanks for all your great posts Andi, I love to read them!!

Rachael

[Andrea Barnett Budin]

Guided imagery and affirmations or mantras are amazing tools. Essential to wellness.

I tell myself every day, throughout the day -- I AM STRONG, BRAVE AND DETERMINED. Even when I was scared to death, felt vulnerable, frail and emotionally shaken, I did know I was/am stubborn as all get out. The rest were goals. I drummed them into my brain, which communicates with my body all day long, and takes its cues from the mind's thoughts, images and emotions.

I would add, HEALTHY AND WELL. And after a while, I included -- NO MORE CANCER...!!!!!!!!! To be perfectly clear.

Stating my Intention and Expectation emphatically. Never wavering. Okay, yes, I had my weak, scary moments, naturally, but I did breathing, in and hold and out, over and over, to calm myself. And replaced my OMG I could die. I could be missing at all the holidays. My family gathered and me absent. Then I got myself together and literally saw myself there, for many yrs to come, laughing, loving, hugging, eating (of course) and being full of gratitude.

Every day, I look up and say, Thank you for my life. It brings me watery eyes as it comes from my Soul, my core. I know how blessed I am. I never get cocky. Never take anything for granted.

And I remain all along on maintenance therapy. 10 yrs of Herceptin. And 14 yrs of supplements twice a day, every darn day. (I've been off H for almost 5 yrs. My now annual scans due in June. Along w/my now ev 6 mnths bloodwork.) I expect to remain stable.

Wishing you all the same.

Love,
ANDI

[Andrea Barnett Budin]

What is Alpha Lipoic Acid?

Alpha lipoic acid is a fatty acid found naturally inside every cell in the body. It's needed by the body to produce the energy for our body's normal functions. Alpha lipoic acid converts glucose (blood sugar) into energy. Other names for it include lipoic acid, thioctic acid, and ALA.

Alpha lipoic acid is also an antioxidant, a substance that neutralizes potentially harmful chemicals called free radicals. What makes alpha lipoic acid unique is that it functions in water and fat, unlike the more common antioxidants vitamins C and E, and it appears to be able to recycle antioxidants such as vitamin C and glutathione after they have been used up. Glutathione is an important antioxidant that helps the body eliminate potentially harmful substances. Alpha lipoic acid increases the formation of glutathione.

Alpha lipoic acid is made by the body and can be found in very small amounts in foods such as spinach, broccoli, peas, Brewer's yeast, brussel sprouts, rice bran, and organ meats. Alpha lipoic acid supplements are available in capsule form at health food stores, some drugstores, and online. For maximum absorption, the supplements should be taken on an empty stomach.
Why People Use Alpha Lipoic Acid

1) Peripheral Neuropathy

Peripheral neuropathy (http://adam.about.net/encyclopedia/infectiousdiseases/Peripheral-neuropathy.htm) can be caused by injury, nutritional deficiencies, chemotherapy or by conditions such as diabetes, Lyme disease, alcoholism, shingles, thyroid disease, and kidney failure. Symptoms can include pain, burning, numbness, tingling, weakness, and itching.
Alpha lipoic acid is thought to work as an antioxidant in both water and fatty tissue, enabling it to enter all parts of the nerve cell and protect it from damage.
Preliminary studies suggest that alpha lipoic acid may help. In one of the largest studies on the use of alpha lipoic acid, 181 people took 600 mg, 1200 mg or 1800 mg of alpha lipoic acid a day or a placebo. After 5 weeks, alpha lipoic acid improved symptoms. The dose that was best tolerated while still providing benefit was 600 mg once daily.
2) Brain Function

Alpha lipoic acid can cross the blood-brain barrier, a wall of tiny vessels and structural cells, and pass easily into the brain. It is thought to protect brain and nerve tissue by preventing free radical damage (http://longevity.about.com/od/researchandmedicine/p/age_radicals.htm).

FOR MANY (INCLUDING ME) THE COMBINATION OF CO-ENZYME Q10 (150 MG AM/PM), L-CARNITINE (500 MG AM/PM AND ALPHA LIPOIC ACID (300 MG AM/PM) -- HELPS PREVENT ACHES AND PAINS, NERVE DAMAGE (FROM CHEMO)...



This 3 supplement combo is like a secret recipe -- for deep muscle and joint pain and for all the above reasons.

HERE'S TO YOUR HEATH...!!!

Love,
Andi

[Andrea Barnett Budin]

L-ARGENINE -- 500 x 2 (AM) on an empty stomach -- Dr. Best brand w/time release -- EJECTION FRACTION ELEVATOR, STRENGTHENS THE HEART

Also, as I've mentioned Co-Enzyme Q10 -- 150 (AM/PM) to strengthen heart + good for gums and energy +++ more

[bmorr7]

Hi everyone,

What an amazing thread. After all of my reading, we're thinking of the following regimen for Rachel while she's on TCH. We'll need to review all of these with our oncologist and also try to figure out the right doses. Not sure we can take all of them so if others can let us know which are the most important, pleaes let us know.

Thanks!

Ben

1. Vitamin D (to protect bones/heart)
2. Fish oil (to protect heart)
3. Coenzyme q10 (to protect heart)
4. Biotin (to protect skin/hair)
5. Alpha lipoic acid (to protect nerves)
6. Magnesium (to protect muscles/heart)
7. L-carnintine (to protect nerves/brain)
8. L-arginine (to protect heart)
9. Evening primrose oil (not sure what it's supposed to help)
10. Milk thistle (to protect liver)
11. Tumeric (not sure what it's supposed to help)
12. Green tea (not sure what it's supposed to help)
13. Aspirin

[Andrea Barnett Budin]

Hi Benjamin,

I am thrilled you are interested in supplementation, as I do believe it has been a part of the recipe that keeps me alive and well.

In '95 I was dx w/4th stage lobular carcinoma (L). The surgeons did a surgical biopsy of both breasts. Only the left was involved. And may I add -- when I metastasized in '98 -- Herceptin was not yet a possibility (still in clinical trials) and therefore I didn't have the benefit of receiving that which may have prevented my recurrence.

In '95 I had a mastectomy and tram flap reconstruction, on the same table. This was very important to me, and my sanity. You can read my protocol below in my signature.

In '98 I learned that I was 80% positive for HER2, which though it meant my highly aggressive bc was even more of a mountain to climb, I felt I could potentially have benefit of Herceptin to target the defective gene that has been found to be responsible for about 20% of bc.

I went with not the kinder gentler chemo (Navelbine) recommended by 1 of my oncs, and not with Taxol (a cousin of Taxotere) recommended by another of my oncs. I went with Taxotere because my 3rd onc said it was the most aggressive weapon they had in their arsenal. I DETERMINED TO TAKE THE HARDER ROAD, AND FIGHT FIRE WITH FIRE!

I'd read much re supplements and integrative therapies between '95 and '98. Learned a lot. Went immediately to the integrative onc who specialized in supplements, meditation, guided imagery and working with the patient to help them heal in ways others oncs raise eyebrows over.

2 of my oncs did NOT want me to do the supplements until AFTER I was done with chemo. Because they didn't know how their properties would interact with the chemo drugs. I asked my nutritional oncologist (who I have come to adore, and who I lovingly call my nut onc) -- What do you think? He believes that DURING CHEMO IS WHEN YOU MOST NEED TO BE ON SUPPLEMENTS!! And, though it took much courage, I KNEW I was talking about MY life and MY body -- I chose to take the supplements from the getgo in '98...!

I am forewarning you that your docs are likely to frown on supplements and especially during chemo. But it is a decision you and Rachel need to make based on your gut (what I call my Inner Voice) and proceed as you feel comfortable.

I've learned much more since '98, as you can imagine. I am not a medical person but I am an avid learner and this topic is one I am strongly interested in, as a matter of Life and Death, if you will.

I imagine you've glanced through my ridiculously long list of supplements.

I always offer them to those who ask, with my dosage (as recommended by my nut onc) and I give the reason why I take each. I've googled and read up on each and every one.

I am happy to share. To encourage you to increase the odds in your favor (and of course Rachel's). Don't get caught up in dreary statistics. We are each a potential miracle.

I will tell you my Richard Bloch story one day, if you like (H & R Bloch). He beat 4th stage lung cancer back when no one was winning on that front, when his docs told him to get his affairs in order and I chose to survive anyway! There are lots of such stories. Read about those and throw the books about poor odds aside!

After to review my list in this thread -- please ask any and all questions you may have! I stand ready and more than willing to guide you as best I can.

Andi

[bmorr7]

Hi Andi,

I've looked through this thread and can't find your list of supplements with doses. Can you post the link to that.

Thank you so much.

Ben

[Andrea Barnett Budin]

HERE'S MY LIST, AS REQUESTED:


Swallowing all these darn pills is a laborious task. One at a time. That's my method. My husband tosses a bunch of his pills in his mouth at one time. Misses a few on the way. I can't even entertain such an idea!

I put them all in the plastic lid of a container (so they won't roll away), situate myself in front of them and the TV and try not to think about anything other than what I'm captivated with on the screen.

I find swallowing pills difficult to say the least. I BUY ONLY CAPSULES, OR SOFTGELS. NO TABLETS! Impossible for my throat. I think of peristalsis which I learned about in high school. The power of the natural wave like muscles in our throats to move food or pills to their destination is compelling. The key is to relax and not over think...

My longggg list of supplements come from my oncological integrative doc in Manhattan, who helped save my life in 1998 when I metastatisized with tumors throughout my liver. I will share the key ones for those who are interested. (I purchase through Vitacost.com, as their quality is excellent and their prices can't be beat.)

Devoting the time in the AM with a meal, and again at 4 o'clock w/a banana -- every single day -- takes tenacity to be sure. But I feel I am worth it. So are you! The investment is serious. To me, it's a matter of Life and Death.

I DRINK WATER (FOR ME -- ROOM TEMP IS BEST). I DRINK 10 8-OZ GLASSES OF WATER A DAY! BOTTLED, FILTERED WATER. EVERY SINGLE DAY. YOUR ORGANS WILL THANK YOU. SO WILL YOUR SKIN. YOU WILL STAY HYDRATED. I HAVE SEEN WHAT DEHYDRATION CAN DO TO A PERSON. IT CAN LITERALLY PUT YOU INTO A LIFE-THREATENING SITUATION. IT IS YOUR JOB TO STAY HYDRATED, THROUGH NAUSEA AND FEELING LIKE YOU HAVE THE WORST FLU EVER.

I AM NOT A MEMBER OF THE MEDICAL PROFESSION. I AM A SURVIVOR. I HAVE GOOGLED EACH AND EVERY SUPPLEMENT I TAKE. I TRY ONE FOR 3 DAYS, LISTEN TO MY BODY'S SIGNALS, AND THEN PROCEED TO THE NEXT SUPPLEMENT.

Alpha Lipoic Acid 300 AM/PM -- detoxifies liver, antioxidant, neutralizes free radicals, protects cells from damage -- AND RELIEVES MUSCLE PAIN -- IN COMBINATION WITH THE NEXT 2:
Co-Enzyme Q10 -- 150 AM/PM -- which also enhances immune system, prevents cancer cell proliferation, energizes, healthy heart, good gums -- RELIEVES MUSCLE PAIN -- IN COMBINATION WITH Alpha Lipoic Acid and L-Carnitine 500 AM/PM
L- Carnitine 500 AM/PM -- assists gastric absorption, energizes, heart healthy, immune booster -- RELIEVES MUSCLE PAIN


B-6 50 AM, heart healthy, energizes, helps repair nerve damage, good for skin
B-12 sublingual (3,000) -- energy

WHEN I HAVE MY COMPREHENSIVE BLOOD WORK DONE I ASK THAT B-12 AND D BE INCLUDED SO I CAN KEEP TABS ON BEING IN THE NORMAL RANGE. I save every report ever written about me and keep them in a NO MORE CANCER file at home. I compare the new with the last, line by line.

That is how I -- yes "I" -- found my metastases. Asked for abdominal sono, which led to CT which led to biopsy. My tumor markers were still within normal range. But my liver enzymes were ever so slightly different from MY USUAL. Doc kept saying, I wouldn't worry about it. It is very very slight. Well, YOUR #s generally follow a trend. If they vary, I see red flags. Just saying...

C-1,000 w/bioflavonoids 1,000 -- enhances immune system, reduces recurrence of cancer
D-3 -- 50,000 a week. I take 10,000 over 5 days a week. For healthy bones, blocks breast cancer cell growth, meets your body's organs increasing need for D as we age. BE KIND TO YOUR ORGANS. THEY DEPEND ON YOU.
DL-Phenalalanine 500 AM empty stomach -- mood enhancer
Evening Primrose Oil 1,300 AM/PM -- relieves hot flashing, down-regulates HER2 by binding to extra cellular HER@ receptor, down regulates internal proliferation
Folic Acid 100 AM -- red cell booster, heart healthy
Gingko Biloba Extract 60 AM/PM -- mental alertness
Grapeseed Extract 150 AM -- anti-oxidant, can cross blood-brain barrier and protect brain and spinal nerves against free radical damage, enhances anti-tumor effect, protects liver, strengthen connective tissue, including heart system, supports immune system and slows aging
Resveratrol 250 AM/PM -- anti-oxidant, heart healthy, anti-cancer, HER2 blocker
NAC (N-Acetyle Cysteine) 600 AM -- supports healthy liver function, rids body of toxins
NADH -5Co Engzyme 1 (AM/PM) 1/2 hr before eating -- relieves chronic fatigue, boosts mental acuity
Omega 3 - 2,126 -- suppresses tumors, inhibits their growth, may slow or prevent recurrence of cancer, improves blood glucose, good for muscle/joint pain, anti-inflammatory, down regulates HER2 receptor
Phyto Formula -- 1 scoop w/OJ -- promotes energy BIG TIME, reduces chronic fatigue, boosts immune system and increases mental clarity + 1 banana a day!
Potassium Citrate 99 AM/PM -- bone healthy, energizes, healthy heart, prevents stroke
RM-10 Garden of Life Immune System Mushroom Blend VEGETARIAN CAPSULES -- AM/PM on empty stomach -- I take 2 instead of 3 a day because it's expensive but powerful in regulating and stimulating the immune system, anti-oxidant, detoxifier, reduces recurrence of bc
ZINC 30 anti-cancer

There are studies and experts who disagree w/the findings above. i could have waited for more studies in '98, but my Inner Voice guided me to not go with mainstream conservative western medicine on this.

I began my '98 chemo regimen in September. In Oct I developed Shingles. Excruciatingly painful but the worst of it was -- no more chemo. Not till the Shingles is gone, said my onc. Your immune system is too compromised...

I "knew" I was 4th stage metastatic bc, now w/new information that I was HER2+... Highly aggressive form of cancer. Without the chemo, I feared I would die. My need was urgent, and of necessity was put on hold.

So I took all my supplements, used multiple bottles of calamine lotion and pain meds and in 10 days returned to my onc -- virtually unheard of. I was sitting on the examination table. My onc smiled and asked how I was doing. Good I reported, smiling back. Well, let's see. He was doubtful, skeptical. I lifted my shirt. He walked around me in utter amazement. YOU'RE RIGHT. ALL THE PUSTULES HAVE DRIED UP! YOU CAN HAVE CHEMO!!
Hurray!!

I am happy with my bold decision to this day. I continue on my supplements. It is grueling. I'll give you that. But, I KNOW it is my job to be healthy and well. I take that responsibility very seriously. I chase away all negativity!

I still (after allllll these yrs, go through inscanity when I am due, same as always, but I tell myself -- this is yet another opportunity for me to see the fruit of all my hardwork. I try my best to hold my panic in check, along w/my husband's which is greater than mine. I get same day reports. And, I remain STABLE. No evidence of disease. 15 years from my metastasis. Almost 5 years off of Herceptin (after 10 years on). 18 years since my original 4 stage dx.

I have taken the time to share all this, because I believe in YOU. I support you with all my heart, my Sisters. With love always...

Andi

In my supplement list, I forgot to add:

Vitamin E 400 (2AM/1PM)
Selenium 200-- WHICH IN WITHIN THE RM-10 ULTRA IMMUNE BOOSTER I LISTED ABOVE IN PREVIOUS POST HERE
+ Echinacea w/astragalus 2x a day for a wk -- then Thymulus 2x a day for a wk -- then switch back to echinacea w/astrag. Supports the IMMUNE SYSTEM, which is so key! This alternating way -- ON 1 wk and OFF the next w/substitute -- helps you not build up a tolerance to the immune booster.

[bmorr7]

Thanks Andi!!! That is so helpful. Thank you so much for all your hard work to figure all of this out. Do you have favorite brands for any of the supplements?

[Andrea Barnett Budin]

I use Vitacost.com -- for most of my supplements. The products they carry are of very good quality and are all discounted. Shipping is free over $50. As you can imagine, that is easy to reach. I order monthly.

Those I can't get from Vitacost, I get from VITAHEALTH APOTHECARY in Manhattan. Dr. Gaynor (my nut onc) recommended them. They ship to me free since '98...
212) 628 - 1110

I keep an alphabetized list of all supplements, along with dosage, time I take them, and why I take them.

Most docs are just annoyed by my list. They are impressed that I am organized and most respect my belief system. Mainstream docs don't really know much about supplements and think they are a waste of $$. Western medicine spends about a day in med school on the topic. It is shameful IMHO...

I wholeheartedly disagree, as Dr. Gaynor, Dr. Andrew Weill, and any # of respected docs.

Post surgery recently (needed a biopsy for something new -- first time since '99 -- but BENIGN) -- I discovered:

Zinc is also important in helping to repair wounds, optimal recover for everyday tissue damage. I don't exceed 30 mg as that can cause stomach upset.

The importance of Vitamin C to make collagen and ensure proper wound healing for optimal recovery from tissue damage should not be ignored.

Arnica Montana is also important in wound healing I have found out (meadowsweet extract). Can ingest and/or use gel...

My surgeon when he told me to use a dressing each day -- consisting of a bandaid (when he saw me a wk after surgery). I asked if I should cream or Neosporin. You can, but it won't do anything! Seriously. No after surgery wound care. 1 of my 3 laparoscopic punctures looked and felt like a bullet wound. He said it wasn't infected. Just very red, perhaps from irritation due to its location at my waist. I asked about the yellow oozy stuff. He shrugged... That did not please me. As you might have already guessed. I used Neosporin. Increased my immune system booster and Vitamin C for a wk...

I had a wonderful endocrinolgist who used to ask, Do you also take eye of newt??? I loved her. But she moved too far from me. She did write down Evening Primrose Oil from me to deal with her hot flashes.

I like docs who are open-minded. My fav onc has (reluctantly) added a nutritionist and other alternative therapist to his practice. He is sharp and extraordinarily compassionate, but just kind of smiles at my list! I was his first patient, in 1995. My husband and I adore him. I have his email address and cell #, just in case, which he responds to within a half hr... I never take advantage of this privilege.

It is our responsibility as patients to make all our docs aware of what we are taking in addition to our meds list -- which I keep a typed alphabetized list of in my wallet. I have one for my husband as well that I keep in my wallet and give him a copy to keep in his wallet. Every doc wants to know what meds, the dosage, etc. you take.

My recent discovery of the combo : Alpha Lipoic Acid, Co-Enzyme Q10 and L-Carnitine -- all of which I take -- help enormously for muscle aches and deep pain. A local cardiologist wrote a book I read. He was a mainstream doc until about 5 yrs ago. He is now into supplements and discovered that combo for his patients on statins.

My friends all have aches and pains, comment that it's our age. I don't have aches and pains. THANK HEAVENS! I now believe it is because of those 3 supplements I've been on forever.

When we rescued our first 2 dogs, the rescue lady gave me a book by a Cornell trained vet. He too was mainstream until about 20 yrs ago, when he discovered the efficacy of supplements. Our 2 Maltese brothers were seriously sick. I went by his recommendations and added some supplements to their diet. I guessed at the dosage, based on their small size.

Our vet was quite amazed when we next brought our furry boys in. My husband asked why. He said, Because usually when they are that sick, they don't make it! (He had given the sicker one a mini chemo bath. One paw at a time over the course of a day. The meds he was giving weren't doing the trick.)

It's my pleasure to help. We're all here to help one another. Don't be shy -- just keep your questions coming...

Andi

[Andrea Barnett Budin]

Saw my onc yesterday. My now ev 6 mnth checkup.

He has known me since October '95 after initial dx. And through it allllll....

He says I am his only 4th stage patient that has survived this long. THANK YOU GOD! And for me -- also -- thank you supplements... + meditation/mantras/guided imagery...

Onc says there are no guidelines for pp like me. I now get ev 6 mnth blood work and annual CT scans (chest/abd/pelvis) -- and now -- without contrast. He doesn't want to expose me to that stuff unnecessarily.

So, we're making up the rules as we go along. He was calm 3 yrs ago (then 2 yrs off Herceptin) when my tumor markers started trending upward and out of normal range. I was the one needing calming... But in 3 mnths -- my TMs plummeted right back to where they were.

I'd been sick for 3 mnths prior to that with a miserable, worst ever virus that wouldn't let go. Many others in town had the same thing. My body was out of whack. But within 3 mnths -- it recovered!!

Onc was sure I HAD to go for the biopsy when my CT abdomen/pelvis scan report said there was NEW stuff. It has been known, he now tells me, to spread to that area. And we HAD to check it out. I listened. Though I felt certain, as most of us did, that it was nothing. My Inner Voice told me I DO NOT HAVE CANCER. But I did what anyone in my position, given my medical history, which I carry with me...

The prep for the surgery sucked. The surgery was ok, though I wouldn't recommend it. :o))

Post op was a lot rockier than I anticipated, but 3 wks later -- I am back to being and feeling like ME! WITH A GOOD REPORT
-- BENIGN inflammatory nonsense, no longer mystery mass mess... NO EVIDENCE OF DISEASE...

I am sticking with my supplements...!!!!!!!!!!!

TAKE GOOD CARE OF Y O U , my Sisters!

With LOVE, as always,

Andi

[Ellie F]

Hi Andy
I always enjoy reading your posts, they often give me a lift.
What do you take for your irritable bowel ? I remembered that you had a bout of this prior to your scan. Have you found anything good that works? I have had this on and off since mt twenties and it often flares up under stress like getting scans?
Any tips appreciated
Hugs Ellie

[Andrea Barnett Budin]

Hi there, Ellie!

So glad to hear my words bring you a lift. We all need that!

I've had IBS since '95 w/and subsequently from chemo. In '98 Taxotere really did me in.

Since off Herceptin (5 yrs now) I have been getting better. Somewhat.

Key is my list of TRIGGER FOODS. I've kind of narrowed it down -- and don't touch anything w/fruit, nuts, corn, squash, bok choi. Eat as little sugar as possible. Did go totally off for -- 4 yrs -- but have decided to cheat a bit. Dark chocolate is actually good for you! Especially w/red wine and all those resveratols! DO YOU HAVE A LIST OF TRIGGER FOODS FOR YOU??

I can eat bananas, and do daily. And an occasional apple. ALL other fruits create havoc w/me. I read labels judiciously, scouring for a hint of corn. I've read they are processing it in a new way and many have allergic-like reactions to it. Guess I'm among those. NO popcorn, corn niblets, corn flour... THINGS I LOVE.

I was convinced cancer loved sugar, and I didn't want to feed it. So now, I just do small treats here and there.

My nut onc gave me WOBENZYM N -- 2 tablets 1/2 hr before a meal. I take twice a day. That made a huge difference! I had graduated to 1 tablet twice a day, but since the Milk of Magnesia -- to clean me out prior to abdominal surgery (just over 3 weeks ago) -- my stomach hasn't yet come back to itself.

Until recently, at the first sign of stomach gurgling (like water in a rusty pipe) or cramping -- I started taking LIQUID IMODIUM. The tablets stopped working for me. Even if I took 20 in a day! I turned myself into my doc, and he said, Ok. If you take all that, then what happens? I said, the bathroom drama stops. Ok, good. And what happens the next day? I am normal. Good. Don't worry about it...

But when we lost our much loved Brenda, I began reading her old posts. I think I was searching for a reason for her sudden decline. Well, she mentioned that when on TDM 1, she would take liquid Imodium and 1/2 cup and she'd be good to go...

I tried it. Can't understand why that works. But it's quite amazing.

When 2 -- 1/2 cups don't work -- I move to my backup plan. DIGESTIVE ADVANTAGE for IBS. If I take that soon enough, before my stomach has crossed the line (kind of like catching a migraine headache before it is too late to grab hold of it and stop it), it works! It's a probiotic.

I used to take Acidopholus. Thought it wasn't working and stopped. This drug store brand DIGESTIVE ADVANTAGE FOR IBS has -- a specially patented Ganeden BC, which is considered a healthy bacteria that works within the Intestinal Ecosystem. You can take 2 if needed. You can get this at Walmart (best price).

I also take DIGESTIVE ADVANTAGE GAS -- for relief -- daily, at night, and it is remarkable how much it helps!

If all else fails -- I take a Roxicet -- or anything with codeine in it. I remember my onc telling me (during chemo days) at the very first sign of pain -- take the Roxicet. I asked, Really??!! He said, absolutely. There is no reason for anyone to suffer! That's why we offer these drugs! And, he added, if nothing else -- it'll stop the diarrhea. Sure enough it does.

So I save that (still working off a 2005 bottle I keep laying around) -- if all else fails. I rarely need to resort to it. And, my problem begins around 2 AM for some unknown reason, so it also helps me sleep.

I've been to 5 gastro guys and was given a dozen different remedies. And nothing worked. Well, but for something like Lotromax -- and they took it off the market. People were dying. It was my guess they were miss diagnosed and created a blockage and died. The outrage was huge. People were relying on that drug in order to live a normal life! Me included.

I have heard that it is back, and that docs give it sparingly, super careful. But I haven't been as bad as I was during chemo, which kept me home for days, and in fear if I did venture out. I knew where every bathroom was, in every store, in every restaurant, so I could make a mad dash. I carried a bottle of water at all times, w/my meds to take when needed! The fear factor is huge!

One gastro guy prescribed OPIUM, I kid you not. I still have the unused bottle. I just couldn't go there...

If I am caught for many hrs on the seat, KY gel is miraculously soothing. I'm just saying...

Please tell me what YOU do. All tips are gladly received!

This was one of the main topics of discussion in the chemo rooms, as we patients sat for all those many many hours. We'd compare notes. Nurses would chime in. They've seen it all. Including those suffering from the opposite problem -- constipation. Milk of Magnesia and magnesium (starting at 400 mg, and increasing another 100 mg every half hour till successful is the scoop on that). Not my concern. I have other issues.

I keep a book or two by THE SEAT along with pen and paper, to occupy myself as it gets really boring sitting around waiting for the next... My kids can't stand when I discuss this topic. All grown up and so squeamish... :o)) Their children's poops are not a problem for them, as Moms, you do what you must...

Well hope this helps. I await your input. Anybody and everybody's input!

FEEL GOOD...

Andi http://cdn-cf.aol.com/se/smi/2b00001c91/06

[Andrea Barnett Budin]

SOMETHING NEW TO REPORT...!


SOME FASCINATING THINGS TO THINK ABOUT:

I'VE BEEN TAKING OIL OF OREGANO, as my IBS reached ridiculous heights after my abdominal surgery experience 6/27. I saw a doctor on Dr. Oz, who was touting the use of this supplement specifically for diarrhea and digestive problems. She said she would recommend taking it at least 3X a day.
I started with 1 a day. After a few wks, I have moved to 1 twice a day, with food.
What is the ORAC Value of OREGANO? 15,300 µTE/100g

Why be bothered with this number? ORAC stands for Oxygen Radical Absorbance Capacity. It tells you the antioxidant capacity of a food item. Antioxidants have shown to reduce the risk of age related conditions and cancer! This was developed by the USDA researchers. For instance: Spinach = 1,260; Clove = 1,078,700. Wow! The number for clove is NOT a typo!
Most Interesting Historical Reference?
Did you know that Oregano is contained in Hildegard’s Medicine Book? Hildegard of Bingen (1098-1179) was known as the first herbalist and naturopath of the middle ages. Her book documented over 12,000 remedies for symptoms and diseases. Wow!

What are the Plant Properties? Antifungal, antiviral, anti-aging, antibacterial, anti-inflammatory, antiparasitic, immune stimulant and antiseptic.

What are the Documented Uses and Benefits of Oregano? Abscess, anthrax, asthma, bacterial infection, boils, bronchitis, bursitis, cholera, chronic pain, cold sores, cough, corns, diarrhea, digestive problems, diptheria, dysentery, Epstein Barr, fibroids, flu, food poisoning, fungal skin infection, gallbladder infection, gangrene, ganglion cyst, gonorrhea, immune system, infections, influenza, lyme disease, oral infection, mouth ulcers, rocky mountain fever, pancreatitis, parasites, pneumonia, radiation damage (internally), respiratory infections, scoliosis, sore throat, strep throat, syphillis, ticks, tonsillitis, tuberculosis, typhoid fever, whooping cough, viral and bacterial pneumonia, viral colitis, arthritis and rheumatism, muscles and vaginal yeast infection.

Of course, I had to share...

Anecdote: My dghtr was suffering from vertigo. Really bad. Has 3 children whose schedules require her chauffeuring services daily. She couldn't drive of course. She went to 3 specials. She had extensive testing, hours long... All the (independent) docs told her there are different kinds of vertigo and the kind she had was the one that isn't easily resolved. The easier vertigo would just go away in a few wks.

My other dghtr had recently discovered a local holistic doc woman who is also a chiropractor and deals with the energy of the body. Vertigo dghtr went to her, in desperation, with nothing to lose. After a while the doc asked if she ate a lot of sushi. Yes. She loves sushi. Well, the holistic lady said she thinks my dghtr has parasites as a result. The stop the sushi thing and to take some supplement that is an anti-parasitic.

Within a wk, the vertigo disappeared. She has been fine since.

I suppose my point is the experts and specialists are great. They look at you from their perspective. The holistic lady sees you as a being with a mind and a body, with energy coursing through you. She thinks outside the box, so to speak.

I believe in that kind of thinking. When I had a slipped disc that herniated (oozing stuff onto sensitive nerve endings surrounding the injury), I was in constant pain. Immobilized. It was 1980. 3 different pp who didn't know one another told me to go see this amazing doc in Manhattan. I lived on Long Island. A friend drove me to the city.

This man who a physiatrist. Dealing with the physiology of the person. Viewing the person as a mind and body. He spoke with me for a full hour. He demonstrated several things to me. And -- I KNEW I would be cured. The orthopedic surgeons had told me I had degenerating disc disease. I wasn't yet 40. Degenerating meant I would only get worse. I began to think of myself as an invalid. Fragile. I moved cautiously, KNOWING pain would strike with each action (reaching, bending, sitting, standing, brushing my teeth...).

The physiatrist was at NYU Medical Center. Head of the Outpatient Clinic. He also taught at Rusk Institute. He showed me how to go back in my mind -- each time I felt the gripping pain (vs the steady gnawing pain). Each time, he said, I would prove to myself that I had just been thinking of something that was stressful (from anticipating pain with a movement, to figuring out what I was going to make for dinner, and so on).

Once I proved that EVERY time, he was indeed right, if I managed to search my mind for the precise thought that I was pondering just before the gasping pain -- I was focused on something that brought about stress.
He calls the disorder TENSION MYOSITIS SYNDROME. TMS. He discovered it as he was a victim of it himself. Within 2 wks the pain I'd experienced for yrs, dissipated...


Andi

[Andrea Barnett Budin]

I think it's important to bump this up -- it's so important to our health.

There are a number of posts from Elaine this past April.

She sounded great, as always. A survivor striving daily to remain one. She knew it is a 24/7 job, even when you're NED.

She was proactive, even aggressive, insisted on a quality from her docs and moved on if she felt they were failing her tests. I am the same.

She believed in integrative medicine of all kinds.

This sudden hospital and nursing home story is so distressing to me. We had no clue.

Was she not wanting to bother us? Did she think as it was not cancer related that it wasn't worth mentioning here? I wish she'd share. I would hope we could have put our heads together and supported her when she needed it most.

She was so inspiring to all of us, wish we could have been for her.

She did everything right. 14 yrs a survivor. Like me. I feel shattered and shaken. But I will rally, as I always do, because I must. We all must!

Love,

[Andrea Barnett Budin]

"Fate is a future you didn't try hard enough to change."


- Joe Konrath


HERE'S MY UPDATED SUPPLEMENT LIST as of JANUARY 2014, as some have requested:

ALWAYS BUY CAPSULES VS TABLETS. Much easier to swallow. I order from Vitacost.com Excellent product quality, variety to choose from, easy to navigate website, always at discount prices, delivers quickly.



ALPHA LIPOIC ACID 300 AM/PM -- detoxifies liver, anti-oxidant, neurtralizes free radicals, protects cells from damage, can cross the brain barrier, gives energy, RELIEVES MUSCLE AND JOINT PAIN
B-5 -- 500 AM (Pantothenic acid)
B-12 concentrated METHYL CARBALAMIN 1 mg (I take 2
-- ENERGY BOOSTER! ALSO -- Goes to cerebro-spinal fluid to be used by central nervous system. Donates to MYELIN SHEATH that insulates certain nerve fibers!)
CALCIUM 1,000 -- easy to swallow gel capsule -- increases bone density
CARNITINE 500 AM/PM EMPTY STOMACH -- assists in gastro absorption, energizes, lowers triglycerides, RELIEVES MUSCLE AND JOINT PAIN, assists in weight loss
C-1,000 w/bioflavonoids 1,000 -- enhances immune system, reduces recurrence of cancer
CO-ENZYME Q-10 -- 150 AM/PM -- HELPS RELIEVE MUSCLE AND JOINT PAIN, energizes, good for heart, gums and multiple other reasons!
CHROMIUM PICCOINATE -- 400 mcg ( AM EMPTY STOMACH) -- maintains sugar levels, energizes
D-3 -- 50,000 a week. I take 10,000 over 5 days a week. For healthy bones, blocks breast cancer cell growth, meets your body's organs increasing need for D as we age. BE KIND TO YOUR ORGANS. THEY DEPEND ON YOU.
DL-Phenalalanine 500 AM empty stomach -- mood enhancer
DIM-Plus (Diindolylmethane) 100 AM PM
Evening Primrose Oil 1,300 AM/PM -- relieves hot flashing, down-regulates HER2 by binding to extra cellular HER@ receptor, down regulates internal proliferation (I'VE STOPPED THIS AS OF 12/13 AS MY 25 YRS OF HOT FLASHING ALL DAY LONG HAVE CEASED. A CONCOCTION MY HOLISTIC CHIROPRACTOR GAVE ME HAD SOME PORCINE GLANDULAR CONCENTRATE IN IT. WITHIN 2 MNTHS I WAS HOTNESS-FREE, BUT MY TSH FLATLINED! SO I STOPPED THAT AND NOW ON RARE OCCASION TAKE 500 OF EVENING PRIMROSE OIL WHEN THAT 'IS IT HOT IN HERE OR IS IT JUST ME' FEELING COMES OVER ME...)
DR. BEST FOLATE W/QUATREFOLIC 400 mcg AM on empty stomach -- red cell booster,
heart healthy
E 400 AM/PM (heart healthy, helps relieve hot flashes, immune booster, inhibits metastases, decreases tumor burden)
ECHINACEA W/GOLDENSEAL AM/PM for 1 week then alternate with ASTRAGALUS 1,000 AM/PM
FLAXSEED OIL (ORGANIC) 1,000 AM -- anti-cancer, heart healthy, detoxifies, improves brain functions, helps painful, severely dry eyes (since Taxotere '98-'99)
Gingko Biloba Extract 60 AM/PM -- mental alertness (I'S IN A HOLDING PATTERN ON THIS CAUSE OF ALL THE NOISE AND FUSS ON THE NEWS. NOT COMPLETELY SOLD, SO DIDN'T TOSS MY SUPPLY JUST YET.)
GLUTAMINE 500 AM EMPTY STOMACH -- assists in gastro absorption, energizes
LYSINE 500 AM EMPTY STOMACH -- assists in gastro absorption, energizes, lowers triglycerides
RESVERATROL 250 W/Grapeseed Extract 150 AM AND Green Tea Extract -- anti-oxidant, can cross blood-brain barrier and protect brain and spinal nerves against free radical damage, enhances anti-tumor effect, protects liver, strengthen connective tissue, including heart system, supports immune system and slows aging, anti-cancer, HER2 and tumor blocker
NAC (N-Acetyle Cysteine) 600 AM -- supports healthy liver function, rids body of toxins
NADH -5Co Engzyme 1 (AM/PM) 1/2 hr before eating -- relieves chronic fatigue, boosts mental acuity big time
OMEGA 3 -- 2,126 AM/PM -- suppresses tumors, inhibits their growth, may slow or prevent recurrence of cancer, improves blood glucose, good for muscle/joint pain, anti-inflammatory, down regulates HER2 receptor
Phyto Formula -- 1 scoop w/OJ in AM-- promotes energy BIG TIME, reduces chronic fatigue, boosts immune system and increases mental clarity + 1 banana a day!
Potassium Albion 99 AM/PM -- bone healthy, energizes, healthy heart, prevents stroke
RM-10 IMMUNE SYSTEM PROTEN-ZYME MUSHROOM BLEND w/200 SELENIUM -- AM on empty stomach (regulates the immune system, anti-oxidant, detoxifier, reduces recurrence of bc)
ZINC 30 AManti-cancer
TYROSINE 500 AM EMPTY STOMACH -- boosts energy, helps focus and recover from night of poor sleep

FOR MY IBS ISSUES:
GARDEN OF LIFE PRIMAL DEFENSE PROBIOTIC

WOBENZYM-N -- 2 about 1/2 hr before eating (AM/PM) -- THIS IS ALSO AN ANTI-INFLAMMATORY AND AN IMMUNE BOOSTER

TO HELP SLEEP -- ATIVAN (anti-anxiety, helps thoughts bashing into my skull from the inside), AMBIEN (sleeping pill which also depletes the body of natural melatonin!), MELATONIN, THEANINE (natural calmative)

WE ALL NEED TO SLEEP, TO ALLOW OUR BODY TO HEAL AND REPAIR! And to be able to function well the next day!

I truly do hope this helps you my Sisters...
LOVE AND LIGHT ALWAYS,
ANDI

[Andrea Barnett Budin]

I painstakingly highlighted each supplement in yellow. I colored various sections for cohesion.

It seems there's a new format for posting and colors do not transfer anymore!

That is so annoying, I have no words. Our Denise would also be irate, as we both loved to speak in colors...

Sorry.

[Andrea Barnett Budin]

I would just add -- be careful to read ALL the ingredients of a supplement.

Though they may say METHYL COBALAMINE -- they may add other ingredients like biotin, folate, etc. which I already take and don't want to increase the dosage.

Too often this happens, that I discover when reading the full ingredients that I do not want to purchase that brand of the supplement I am seeking, cause they have created a whole cocktail I do not want in my regimen.

BTW -- this concentrated form of B-12, which protects nerve fibers and energizes is a SUBLINGUAL cherry tablet. Placed under the tongue, and moved around, it acts quickly. I take it in the AM as I don't want to feel energized beyond a certain hour, which I try to reserve for relaxation, winding down, preparing for sleep.

[Andrea Barnett Budin]

Hi Sisters,

I keep getting PMs asking for my SUPPLEMENT LIST.

Last time I posted an updated version was 2/6 -- in this thread. So please check it out.

And -- what's up with the old way of doing colors in your post??????


Mysterious...

LOVE,
ANDI

[waterdreamer]

Hi Andi,
Please would you share with me, the integrative doctors he recommends in the Los Angeles, or Ventura county areas? Thanks, and I found your supplement list - Thanks.
Fern

[Kkmom]

Andrea,
Do you take iodine?

[KathyT]

Wow Andrea this is amazing! I just started a thread on what vitamins to take to prevent recurrence and then found this! How kind and wonderful of you to take the time to post all these vitamins. I have made my list and plan on doing this every day to prevent any recurrence. I know it will be hard to do but will be worth it:)
Thank you!!

[Andrea Barnett Budin]

Hi Kathy. So glad you found this! Saved my life! Literally...

We need to fight back against Assembly Line Medicine. Integrative Oncology is the answer.

I used Dr. Mitchell Gaynor in NYC. He alters the lives of 4th stagers. Boosts their immune systems and gets you firing on all cylinders. Supplements help create miracles, my Sisters!

Wish I could remember the ones in Cali I came upon over the yrs, Fern/Waterdreamer. If you PM SoCal Girl she might recall. I e'd her all the info at the time. Searched through my piles and checked my puter files, such as they are, and can't come across them. If I do, I will alert you, and any and all who are interested. Just keep googling, or goggling as I like to say. The ones I came upon I actually contacted, out of curiosity. One guy was so on my page I wished I could meet him!

Listen to your Inner Voice ladies. Not the voice in your head. It can be so negative. But your Spirit, your Guardian Angel has eons of wisdom and totally adores you. That sacred entity will guide and protect you. You can trust that Voice!

I would advise y'all to search around, ask around, network. You can come upon some great alternative care pp.
************************************************** *************************
I do NOT take iodine, KK. It kind of scares me. Though Rachael on this board is very knowledgeable re this.

************************************************** ********

Love you,
Andi

[Andrea Barnett Budin]

fyi -- CONOMYSELF is Rachael and she is fab!

Dr. Gaynor's book, Healing Essence is on Amazon! I suggest you grab it.

Cat, how are you???

Appreciate all the kind words. I put a lot of time into all my posts and all my heart so it is encouraging to me that it I am helping/uplifting some...

Been busy celebrating Life. Just turned 70...! Yikes. I was 50 when first dx. And well, you can see my tale below... May it inspire you! That's why I share.

Sharing is what Life is all about. We need to share our feelings and our experiences, to help one another.

Love,
Andi

[KathyT]

Andrea,
Do you take Turmeric? If so, how much....there is no research done on this so I haven't been able to find the amount on the Internet!
Thanks
Kathy

[Andrea Barnett Budin]

Hi Kathy!

No, I don't take TUMERIC. Whenever possible I would add the



spice to what I'm cooking (which admittedly is kind of not



happening).





When I google/goggle any supplement alllll the webmd and



other medical sites tell you not to take supplements as there



is not enough known, blah, blah. I've been encountering this



for decades! It infuriates me. Just saying.


Without my longgg list of supplements, meditating daily, talking to my body and instructing it to keep me HEALTHY AND WELL, NO MORE CANCER several times throughout the day -- I would not be where I am. It's just foolhardy to tell me that I am a miracle (as my docs do consistently) and not investigate why this miracle occurred. I do believe it's far more than luck. It's resolve, unflinching determination, remaining open to offering and accepting LOVE and kindness, compassion and understanding. Seeking to be strong and brave.

I've always seen myself as being on a path, and through the 10 yrs of chemo and all that entails I would always summon the strength for that victory lap...





Livestrong has some good advice I find.





Check out this article.







Recommended Dosages for Turmeric | LIVESTRONG.COM







Tumeric's anti-inflammatory and anti-oxidant properties



make it a great candidate for helping a variety of diseases.



Dr. Christiane Northrup (WOMEN'S BODIES, WOMEN'S



WISDOM) says -- THE ROOT OF ALL BODILY DYSFUNCTION



IS -- INFLAMMATION.





I believe this!!!





And, I view cancer as a bodily dysfunction (vs a thing to



reviled and hated).





To me, negative energy is of absolutely no use in working



toward to becoming victorious, or in any endeavor or challenge



we wish to undertake.





Hugs,



Andi

[KathyT]

Thank you Andi!!

[Juls]

Andi
Just read this post & wondered if you took all while on Herceptin? When I asked Onc if I could or should take vitamins/ supplements. She was non-committal.
I am on H, P and Femara.
Juls

[Andrea Barnett Budin]

Hi Juls, and ALL,

I recurred in August iof '98. I began chemo in Sept of that year. Herceptin (Vitamin H as I like to call it) was fast tracked by the FDA on September 28, 1998. I was sooo lucky. After 2 mnths of Taxotere, doing CTs chest/abd/pelv, I added H. Docs wanted to see if Taxoterror was working. It was.

I had asked to be tested in August upon recurrance throughout my liver, as my husband and I had been keeping on top of all things bc since July of '95 when I was originally dx. I was 80% positive for HER2. That's how they graded back then.

I went to my integrative oncologist in Manhattan in October of '98. He gave me a longgg list of supplements. I researched each one, took notes, started one at a time. Waited 4 days to see what my body had to say, and if all was well, I proceeded to the next on the list. I believe I began with immune system boosters.

When I mentioned to my mainstream docs what I was planning on doing, each and every one balked. They felt it would be best for me to wait till after chemo. That didn't feel right to me. I asked my integrative onc or nutritional oncologist (who also taught meditation and holistic mind body spirit medicine, which felt exactly right to me) and my nut onc as I lovingly call him said, NO, IT'S WHEN YOU'RE ON CHEMOTHERAPY THAT YOU MOST NEED TO BE ON SUPPLEMENTS. Your body is under further attack then.

I (bravely) chose to follow his advice and began my supplements in October of '98. I still believe it was the right call.

I developed shingles in October, which I discovered getting a 4th opinion. Wanting to collect information and ideas from each who were all brilliant but each saw the situation slightly differently. I based my opinions, as the patient whose life we were talking about, on the collection of information I gathered.

The horrid news was that with shingles -- you cannot get chemo. I KNEW I needed the chemo to save my life. I also knew some had shingles for months, even yrs. I was desperate.

I have a book PRESCRIPTION FOR NUTRITIONAL HEALING by Phyliss Baulch, that was recommended to me and I started immediately taking supps for shingles, along with the medication prescribed for it. 10 days later I went to the oncologist.

He smiled and asked me how I was doing. Good, I said. Really? Yup. Well, let me see. I was dressed on the exam table. I lifted my shirt. He walked all around and said, with great surprise, You're right! All the pustules have crusted over and are healed. You can have chemo!

And, I was elated, even though Taxoterror was a ride through hell. I KNEW in the end, I would live!

So long answer to a short question, I know. Sorry. But cancer isn't so simple.

You are in a great place, on this site, with women who are full of experience and wisdom and generous with their advice though respectful.

Please feel free to ask me anything. I am here to help.

Also, please check out Pink's post of AndiBB's article -- that's me. It was posted today as today was the day this article appeared in the Florida Sun Sentinel in Broward and Palm Beach. I hope you find it interesting and inspiring. That would actually make my day!!

Thanks,
Andi

[Juls]

Thanks Andi.
Saw post by Pink yesterday - Great article and fab photo!!

[Andrea Barnett Budin]

I will post my newest updated list tomorrow for those who are interested.

It's a big challenge I know, swallowing all those capsules 2 - 3 X a day, every day. But -- I SWEAR THEY ARE KEEPING ME ALIVE, AND WELL... I believe this is why I am still here...!

It's a major commitment.

I do get most of my supplements from Vitacost.com because they have the biggest variety and the best prices. I have checked around. They deliver free with $50 order and yes that is easy to accrue every month.

I did my month's worth of supps yesterday. JUMBO pill dispensers -- 7 days -- AM -- and -- PM ... And it is so annoying to spend hours doing.

But, as I say, I do love LIFE.

I take this pills every day since October of 1998. And will take them till I die. Which I don't plan on doing any time soon.

I am on the 100 year plan. But only if I can maintain my mind and walk and talk and hug and laugh... Otherwise the deal is off...

HERE'S TO YOUR HEALTH MY SWEET SISTERS...!

Andi

[KathyT]

I am interested in your updated list, thank you Andi!

[Andrea Barnett Budin]

My updated list is in a new thread --


2016 MY UPDATED SUPPLEMENT LIST a must read.

Just posted it today...