Just wanted to share

[Emelie B]

I don't post often as I have been so lucky to remain NED on Herceptin only for 20 months now. Had scans two weeks ago, and all is good.
Just wanted to share for those who are just starting this journey and wonder what will be. Well, as you can see, anything is possible.
Stay strong ladies,
Emelie

[Delaney]

Emelie,
Thats great news. The scans are so nervewracking, its good to see a positive result. Best wishes.

[Ellie F]

Brilliant news. Hope you remain NED forever.
Ellie

[KristinSchwick]

Emelie B, (http://her2support.org/vbulletin/member.php?u=3870)
That is such inspiring story of hope for us in the stage IV boat. Its so nice to hear that hope exists and that you are doing so well. I bet your more grateful than ever before- I hope you can share your story round the world to give others hope. Thanks for posting- and PLEASE continue to post to give us all that inspiration.

[schoolteacher]

Emelie,

Thanks for the post.

Amelia

[hutchibk]

Yay! You must have a great doctor... ; )

(I'll be in D on Thurs... maybe coffee?)

[Elizabethtx]

Congratulations, May you stay NED forever! Hugs!

[KG1993]

Thanks for posting. My mom was diagnosed stage 4 about one month ago today. She is doing 2 chemos and herceptin. She had mets to bones and 2 small spots to liver. Your news is extremely encouraging.
KG

[Laurel]

Terrific news! May you stay dancing with NED forever!!!!!

[Pray]

Emelie, Awesome news!! Gods blessings to you! I pray you are free from it! Good health and happiness to you!

[Jackie07]

Thanks for sharing your good news. Indeed anything is possible!

[caya]

Emelie, thanks for sharing your good news... we LOVE good news here!

all the best
caya

[jml]

Emelie~
Fabulous, encouraging, WONDERFUL news!
Successful treatment for any one of us is a victory
for ALL of us!
We celebrate with you~

Keep the Faith!

[Mtngrl]

Thank you! I think the tendency is to reach out when we're scared, worried, progressing, etc. It's great that you realize how much the rest of us need stories like yours. Twenty months NED is awesome!!!

[Mary Jo]

So happy for you Emelie. Thank you for posting and offering hope to many.

Love and many blessings,

Mary Jo

[Jean]

Emelie,
Thank you for sharing your heart warming wonderful news. I needed to read this today....had to endure a day with ungratful people (in the business world) complaining over nothing.

Your great news made my night.
Blessings,
Jean

[stefanie s]

I am glad to hear the good news. That is very inspiring since my aunt will be beginning her her breast cancer treatment (http://iuhealth.org/cancer/) soon. I can only hope that one day she will be sharing the same good news at 20 months. I am encouraging her to join this forum so she can have an e-support system. She has always been shy and not one to open up her feelings. I have showed her how she can just simply read and still get any information she may want. And if the time comes, she can post and say hi and tell about her journey.

[YellowTail]

Thanks for sharing your good news....I have just passed my halfway point of the AC/T regiment my breast MRI was clear and all is going as well as can expect on this journey. I am not up on some of the abbreviations, such as NED. Can you explain? Thanks and continue being healthy!
Yellowtail

[CoolBreeze]

That is amazing news.

[Bunty]

Thanks for sharing this wonderful news Emelie - this kind of good news gives us hope.
Cheers Marie

[chrisy]

Great news! Keep up the good work;)

[caya]

NED = No Evidence of Disease.

all the best
caya

[NEDenise]

Congratulations, Emilie!
I hope you are NED forever too!
Thanks for sharing your news with us.
God bless!
Denise

[norkdo]

to yellowtail:


hey canadian!! i am a canuck too in ottawa.
roslyn is a canuck in montreal who sent me a friendly note today.
we should start a canadian thread.

there are too many unorganized threads on this website.
I notice nobody answered your request for a translation of abbreviations. i dont have the answers either.

why do people talk in abbreviations? how can we ask them to not do that?
I tried to help the situation by creating a thread called glossary.
nobody picked up on it.

[NEDenise]

Nora and Yellowtail,
I think the glossary thread is a great idea. I bet if we posted specific abbreviations we needed help with...on that thread...some of the more expert members would be glad to help us out.
The abbrevs sv a lot of tm! We nd 2 catch up! LoL!
Denise

[YellowTail]

Agreed :) LOL. I noticed on your bio that you have completed the same regiment as I am currently just half way complete (AC/T). I have a question about the taxol, I had my first session on Tuesday with a shot of Neulasta on Thursday and woke up with some aches in my muscles today Friday. Just curious as to how you reacted? I know that we all react differently depending on doses etc... My onc gave me some ty3's but I have not used them,just a little ache and a very cold neck probably because I have no hair haha to absorb the sweat from the flashes. This is so bizarre or surreal at time to feel normal and then to so not normal....if you can shed some tips on how you handled different situations it certainly helps. Thanks so much :)
Marlene (YellowTail)

[fullofbeans]

Good News and continue the NED thing!

[NEDenise]

Marlene,
uh oh! The abbreviation bug seems to have bitten you too! ty3's!!!?? Well done!!

If you are under 50, (God forbid) your reaction to Taxol, may be similar to mine. If you are over 50, Taxol is likely to be a walk in the park. Don't know exactly why that is...don't care either. Just glad it's over!

This is my post from the "Is pain normal with Taxotere" thread. (You might want to go read that whole thread.)

My fellow survivor...
I have been where you are.
People kept telling me how strong and brave I was...and I was feeling that way too, until Taxol poisoning hit.

Oh, my Dear God!
I have never been more frightened or miserable in my life. I hesitate to call the pain a 10, because there may, actually be something worse...but it was pegged at 9 out of 10, for days!

After 2 rounds of that...I told my onc., "If there isn't a way to manage the pain better, I can't do this again. The pain is more than I can bear." I was actually more afraid of the pain, than I was of the cancer at that point!

It was only then that 'magically', Advil was no longer out of the question. You might want to try that same tactic. The combo of the advil (600mg every 6 hours) AND the narcotic (oxycodone is what I took) made the pain something I could tolerate. It only ever went down to 2 or 3, like a headache, but at least I didn't have to stop treatment.

In hindsight, I realize that "being strong" doesn't mean suffering without complaining...it sometimes means complaining until someone helps you stop suffering!!

Please...insist that the doctor finds a way to help you manage the pain. It's his job. And, more importantly, you deserve it.
You're entitled to good pain management!
Please let us know how you make out, I'll be thinking of you.
Denise

And, of course, if you have any questions you don't feel comfortable posting, please feel free to send me a private message any time. I'll be praying for you this weekend...just in case "Taxol Poisoning" strikes. Let me know how you make out!
Denise
PS-Neulasta can give you aches too. Is this the first time you've had it?

PPS- it should be against some natural law to have hot flashes followed by chills...just as I've always thought that zits and wrinkles should not be able to coexist on the same face!!

[YellowTail]

Thanks for making me laugh as I pour my self a hot lemon and honey less the gin a make me feel better drink I usually only have when I get a cold or the flu....since this is much like that I figure why not have this drink without the gin, not the same flavour or effect but that's ok. I am going to be 50 in November so I am on the cusp, the pain is more of a 3-4 at this point however if it compounds over the treatments I will certainly complain and get some acceptable pain management like you suggest. I just had my honey rub some Voltaren on my my shoulders like A535 without the smell and intense heat, seems to be working.

What I find amazing is the spirit of women who can support one another with out even knowing one another....it is magic and I so appreciate it! Thanks for the tips :)
Marlene

[NEDenise]

Marlene...
I think we're all glad to be able to "pay forward" the help we've gotten.
Hope you never get beyond the 3 or 4 point. And, let me be the first to wish you a Happy Birthday (in November) but I forget everything these days...so I didn't want to forget that!
Denise