TDM-1 Assertive cancer patient

[Nancy L]

I think this U Tube deserves more hits than it has had. I know many of you have the same issue and I may some day soon too. We can only hope the FDA (she calls it the Federal Delay Agency) approves extended access on 8/31.

http://www.youtube.com/watch?v=C-nai8GCDP4

[StephN]

Thanks for posting this, Nancy. I happened to have taken part in this as I have known Jeanne for many years. The person Jeanne reaches for to stand up is me. I look rather stilted as that was probably our 3rd take, and we had rehearsed and shot for 2 or 3 hours prior to that.

This is my little bit as an activist hoping to encourage the FDA to agree to Genentech's plan for patients already getting TDM-1 to stop having to travel to a trial site and get it in a clinic close to home.

[StephN]

Here is a link to Jeanne's blog, which has been quite active the past two weeks.

http://assertivecancerpatient.com/

She mentions how to contact the right people at the FDA, if you are so inclined.

[Sheila]

I put the video on Facebook....a good way to spread the word and get people to contact the FDA