Tykerb/Herceptin Update!!

[Ceesun]

Her2 friends, I have some encouraging news to report following a ct and then pet scan. The tykerb/herceptin combo is continuing to keep things in check for me. The lung nodule is stable and the other few millimeter area does not light up on the Pet so my oncologist said no cyberknife for now, no chemo change, just continue on this for now. That was good news for me and it has been 18 months now on these two drugs. We all have to just keep on keeping on....right?!

[ElaineM]

I am happy for you. Congratulations !!

[chrisy]

That's awesome news!

[hutchibk]

Fantastic! I also did well on Ty/Herc and was very sad to see it go... but I am in the wonderful hands of TDM1 now.

[KDR]

Hi, Ceesun,
Congratulations, and was this ever something that I need to know! My markers took a nosedive on my first 1.5 cycles of the new regimen: Tykerb, Herceptin, Xeloda, and I'm almost in the normal range again. I'm hoping that this trend continues and we can drop the Xeloda at some point, keep just the targeted therapies and look into a vaccine. All the best,
Karen

[Jackie07]

So happy for the good news! Yes, keep on keeping on...

[Trish]

Indeed that is great news Ceesun and so is yours Karen. May it continue thus.
trish

[Chelee]

Ceesun,
That is fantastic news! I'm so happy for you. Sounds like a great combo for you...big congratulations. :)

Chelee

[Ellie F]

Many congratulations Ceesun. This is just the news we all needed to hear. Praying you have many,many more years on this combo.
Ellie

[Sheila]

Ceesun.....that is wonderful news.....hoping this is your perfect combo for a long time....we needed some good news and here it is!!!!

[Ceesun]

Thanks to all...you are so very kind. I just want us to all do well...it would be such a miracle if we could just stop dealing with all of this, right! When I think of members here that we have lost, it just hurts so much. Brenda: yes, you had a long run on this combo for sure. And Chrissy three years on TDM1 is wonderful. Sheila, Chelee, you have worked so hard and long. Kris, if I can help in any way let me know...I had a good run on Xeloda,too. I have a friend whose hubby was diagnosed with early onset alzheimers in his early 50's(abruptly left his dental practice) and she had lymphoma....geez...she always says "stay present." That is what I try to do and I keep my Lourdes water with me much of the time.... Ceese

[Joan M]

Ceesun,

Great news about the T/L combo.

Joan

[krisvell]

Ceesum,
WhoHoo! GREAT NEWS.
I am very happy for you.

Hugs,
Kris....

[pibikay]

Wonderfull encouraging NEWS
Better keep it up

[Elizabethtx]

Great news, may all your news continue to be fantastic!

[SoCalGal]

Great news! I am curious - how much tykerb are you on each day? I have a hard time getting past 2 or 3 pills a day.
Flori

[KDR]

Flori
I take 6 (3AM/3PM) Xeloda on ON week.
No Xeloda on OFF week.
I take 4 Tykerb daily. No days off.
I have Herceptin infusion every three weeks.
So, one week I take 10 pills, one week I take 4.
So far, so good.
Karen

[JennyB]

Great news Karen and Ceesun long may it continue!!

[Ceesun]

Flori, I take 1250mg--the 5 tablets a day---and usually 2 immodium pills a day, too.

[Nancy L]

I have been on this combo for 30 months and continue NED as of this month's Pet/CT Scan. I take Herceptin every three weeks and 750mg of Tykerb nightly. Dr. Slamon told me we are in "unchartered waters" with this combo so he said we would talk about next steps if I stay NED for 3 years. What I know he means is that there isn't much data to show how long this combo might continue to work for metastatic disease. I am grateful it continues to work with minimal side effects that I can deal with after everything else I have experienced on this journey. I hope my post gives others hope. Never never give up HOPE.