SoCalGal
01-11-2011, 12:33 AM
Happy New Year to all - may we all find the strength, spirit and inspiration to continue to fight for our health and wellness. Have not updated in awhile, so here's what has been going on with me...
Good news:
My 6 month Pet/Ct shows I am still stable in the manubrium and sternum! Brain MRI remains NED since Feb 2008. Actually can be considered great news because I'm only on Herceptin & Zometa since stopping tykerb in July (dehydration from pooperias) and stopping Avastin in September (protein in urine) except there is always a little twist:
WEIRD news - lungs show "changes consistent with an inflammatory/infectious etiology"
Translation: DOUBLE OY.
Will repeat scan end of February with hopes for miraculous self healing unless I am suddenly symptomatic. If lungs are still looking crappy then "an MAI is suspected" and it will have to be confirmed with a bronchoscopey-ish thing that takes 4-6 weeks to grow and then treated with 6++ MONTHS of very harsh antibiotics. Again I say that having cancer should entitle you to a free pass from having anything else.
By the way, I feel fine and aside from an occasional allergy type cough, I am fine. I'm going to power through this thing or die trying. Coughing and typing right this very moment. HA! So my lesson is that eating marshmallow aren't killing me - in other words I'm her2 positive but Marshmallow Negative.
xo
Flori
Good news:
My 6 month Pet/Ct shows I am still stable in the manubrium and sternum! Brain MRI remains NED since Feb 2008. Actually can be considered great news because I'm only on Herceptin & Zometa since stopping tykerb in July (dehydration from pooperias) and stopping Avastin in September (protein in urine) except there is always a little twist:
WEIRD news - lungs show "changes consistent with an inflammatory/infectious etiology"
Translation: DOUBLE OY.
Will repeat scan end of February with hopes for miraculous self healing unless I am suddenly symptomatic. If lungs are still looking crappy then "an MAI is suspected" and it will have to be confirmed with a bronchoscopey-ish thing that takes 4-6 weeks to grow and then treated with 6++ MONTHS of very harsh antibiotics. Again I say that having cancer should entitle you to a free pass from having anything else.
By the way, I feel fine and aside from an occasional allergy type cough, I am fine. I'm going to power through this thing or die trying. Coughing and typing right this very moment. HA! So my lesson is that eating marshmallow aren't killing me - in other words I'm her2 positive but Marshmallow Negative.
xo
Flori