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Kim in DC
12-01-2010, 11:24 AM
When I last reported, I had just failed TDM1 with a soft tissue met in the chest, sternum, and possible liver mets. I got some great suggestions.

Lori, the Queen of Cryo, suggested freezing the liver mets. The cryo guys looked at my scans (ct) and said that they didn't think I had liver mets. A pet/ct a week later proved they were right!

So I found a rad on who says she can zap the chest area and I should start next week.

The goal is to become NED so that I can qualify for a vaccine trial at hopkins. I don't know if anyone on this site is in that trial (if so pm me), but when I get in I will definitely tell you guys all about it

So I would like to personally thank Barbara H because I am now on Tykerb and Herceptin, Lori R who introduced me to Cryotherapy and Darlene Denise who suggested rads to the chest area.

Kim

michka
12-01-2010, 01:34 PM
Hi Kim. I was so sorry the TDM1 did not work better but the fact that there are no liver mets is a relief. The plan seems good and I hope you can qualify for the trial soon once you will have zapped away the %/!§$£!z! chest met. Michka

Barbara H.
12-01-2010, 05:34 PM
Hi Kim,
I hope that Tykerb and Herceptin is a good combination for you. I have been on it for over a year now and it is still working. My thoughts are with you.
Kind regards,
Barbara

Delaney
12-02-2010, 09:58 AM
Hi Kim,
What does a 'soft tissue met to the chest' mean? Is it visible like a skin met?

ElaineM
12-02-2010, 10:55 AM
I have my fingers crossed for you. I hope Herceptin and Tykerb works its magic. Have a great holiday season.

Kim in DC
12-02-2010, 02:25 PM
Hi Delaney,

My soft tissue met is in my reconstructed breast, not visible, just underneath the skin. I have had skin mets before but tykerb/xeloda cleared them up.

Ellie F
12-03-2010, 04:53 AM
Hi Kim
Glad you are moving forward again.
Please could you tell me which trial you are meaning?

many thanks
Ellie