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View Full Version : A Rainbow of Hope FINALLY!!!!


Sheila
08-10-2010, 11:32 AM
Just a quick update on my new reports...it has been since Mid May since the Avastin was stopped, and the pericardial window surgery. I have been on the Metronomic chemo since end of May..Cytoxan daily and Methotroxate 2x a day on Mondays and Tuesdays.
Just had scans and tumor markers done (CEA)
In May my CEA was 16 (normal is <3)
My CT's showed the mediastinal, hilar, axillary and nodes in my neck all enlarging, and wrapped around my pulmonary artery causing severe occlusion. Also, left lower lung lobe collapse and atelectysis in both lungs.

Today, all nodes have shrunk (shrinkage IS good!!!)
The pulmonary artery is barely occluded...some nodes are GONE, both lungs clear, and my CEA is 3.4, just a smidge over normal.....

I am feeling amazing....even got rid of the gray hair! Have been walking a mile a day with no problem, and spending as much time with my Mom as I can as she is now in Hospice at home.

There is always hope.....I will never see NED, and always need treatment, but hey, I am on cloud 9 right now...and i'll take this news and hold it for as long as I can!

vlcarr
08-10-2010, 11:37 AM
Dearest Shelia,

That is such WONDERFUL news! I'm so happy for you.

michka
08-10-2010, 12:32 PM
Sheila, if one person deserves good news it's you! I have a big smile on my face. I am so happy. Hugs. Michka

caya
08-10-2010, 12:43 PM
Great News Sheila - I am thrilled for you!!!

Thanks for sharing, we love good news like this!!

all the best
caya

Yorkiegirl
08-10-2010, 01:33 PM
Sheila this is such WONDERFUL news for you. Doing a dance around the room for you.

verainlove
08-10-2010, 01:51 PM
Thank you for such fantastic news. It gives hope all of us. You are an inspiration.
Wish more blessings to you and many happy years.

Peace and Love

Galina

AlaskaAngel
08-10-2010, 01:55 PM
Sheila!!! I'm holding my breath and so very very glad to hear it.

My onc wasn't using metronomic therapy when I was dx'd but the Wellness Center onc was, back in 2002. I went with conventional therapy. Four years later at a presentation by my conventional onc, he mentioned that he was very much interested in metronomic tx. A major change for him.

It is so good to hear that things are going so much better with you!

A.A.

schoolteacher
08-10-2010, 03:28 PM
Oh, Shelia. I am so glad to hear your good news.

Amelia

Pam P
08-10-2010, 03:43 PM
Sheila --- This is great news I'm so HAPPY for you!!!! This is a break you've deserved for a long time --- may this status last for a long long time on this tx. Interesting I just saw my onc. yesterday & asked about metromonic tx for myself. he said he wasn't impressed with it that he hadn't experienced that it ever "panned out". I'll be sure to share your news when I see him again 8/19 to discuss my next tx.

SO glad you are feeling well and have such good shrinkage! Sorry that life is still so hard with your mom in hospice now. You are always in my thoughts., Pam

tricia keegan
08-10-2010, 03:55 PM
I'm so happy for you Sheila, and hope you do see NED one day, but for now we'll take whatever good news we can get!!! :)

chicagoetc
08-10-2010, 03:57 PM
Sheila,

This is amazing. The walking is wonderful. You look great too!

Melanie

krisvell
08-10-2010, 04:42 PM
Sheila; I am so happy for you and glad that you are enjoying every minute of your new found good health and hope that it lasts forever. Your new hair style/color looks nice.
Kris....

StephN
08-10-2010, 04:46 PM
YES! Doing the fist pump in the air for you!

Tumor load - in reverse.

Fast forward to T-DM1 and NED. With this kind of result they won't want you for T-DM1 ...

Thank the good Lord above that you found some "old" drugs given a "new" way that are working the "right" way.

Your spirits are UP, and this will help you through this time with your mother.

Mary Anne in TX
08-10-2010, 05:07 PM
Awesome News!!!
Congratulations!
ma

Carolyns
08-10-2010, 06:05 PM
Yay Sheila!!!!!!!!!!!!!!!!

Amazing!

Love, Hope, Peace, Carolyn

ammebarb
08-10-2010, 06:28 PM
Sheila, that is such great news! I'm so glad these drugs are working for you. I took both of them almost twenty seven years for my bc (no HER2 testing then), along with vincristine and 5FU. It's neat that something that's been around so long is still doing some good!

You look terrific. Love the hair!

Barb A.

PinkGirl
08-10-2010, 06:36 PM
SheilaGirl!!! I was doing the happy dance for you over on
Facebook ... now I'll have to dance here too .... that is fabulous
darling ... simply fabulous.

Midwest Alice
08-10-2010, 06:46 PM
Oh Shelia what wonderful news!

Laurel
08-10-2010, 07:39 PM
Oh, Sheila, I am so glad I signed on tonight to share your wonderful news! Wow, there really is something to the metronomic chemo Rich so often writes about. The hair looks great and you sound so ebullient! I am so happy for you!

ElaineM
08-10-2010, 07:55 PM
This is absolutely fabulous news Sheila !!!!!!! Congratulations !!!!!!!! I think a little celebration is in order. Hugs to you and hugs to your Mom. Enjoy your time together.

sassy
08-10-2010, 08:13 PM
Sweet Little Sheila, you'll know her when you see her!
Glowing eyes and a brunette bob!
Her cheeks are rosey, some chocolate on her nosey,
Man she's kickin' cancer's butt!!!

I'm dancin with Pink!!!

Fantastic news Sheila!

Lori R
08-10-2010, 08:16 PM
Sheila,
Fantastic!!

I am so pleased that the TMs are back where they need to be.

Also good to hear that you are active AND glad you blasted both the cancer cells and the gray hair!!

AHHH....feels good doesn't it.

Happy, Happy for you....Lori

Gerri
08-10-2010, 09:33 PM
Shelia,

Your news made my day!! At long last you are seeing the results you so richly deserve!

Love the hair and love that you are walking and feeling great. Stay up on Cloud 9 - it is a great place to be!

Catherine
08-10-2010, 09:49 PM
Sheila,

What great news. So happy you can get your walks in too. We are all delighted for you as you can tell.

Hugs, Catherine

Diane H
08-10-2010, 11:06 PM
Am smiling from ear to ear and can't stop! SO glad to hear this great news from you.
Hugs,
Diane

Ellie F
08-11-2010, 02:03 AM
Hi Sheila
So happy to hear your brilliant news! I , like Laurel was thinking how much of an advocate Rich is for this metronomic approach. Glad it's working for you.

Ellie

TriciaK
08-11-2010, 07:30 AM
Sheila, I am sitting here with tears running down my cheeks---tears of joy for your good news!! Your new picture is beautiful! Love your hair!You are such a special lady and you give us all HOPE!! Thank you for your posts and especially for this one. We all feel more upbeat today because of it. I know I am not the only one saying a special prayer for you today! Hugs, Tricia

Shobha
08-11-2010, 08:42 AM
So happy yo hear your news, Sheila! My prayers and best wishes for more good news from you. Your courage and positive attitude is such an inspiration for me!

hugs,
shobha

Patb
08-11-2010, 02:32 PM
Adding my congratulations to the list. What good
news. You have tried so many things and this is
working. Wonderfull.....
patb

v-ness
08-11-2010, 04:54 PM
i have thought of you often, sheila, and am so glad to hear this fantastic news. may it continue on and on and one. valerie

Becky
08-11-2010, 05:32 PM
Yes! Oh yes!

Marlys
08-11-2010, 08:03 PM
What all the others said!!!! The day of miracles has not passed.
Love & hugs,
Marlys

Jackie07
08-11-2010, 09:27 PM
Sheila,

That's such wonderful news! Thanks for sharing.

Adriana Mangus
08-11-2010, 11:42 PM
Dear Sheila,

I'm thrilled to hear such great news!

With much Love,

Adriana

Emelie B
08-12-2010, 07:54 AM
What a wonderful day!
Thank you for being the strong spirit you are. We all gain strenght from you.
Enjoy your victory,
Emelie

mmoons
08-12-2010, 09:46 AM
Sheila-

I think of you SO often and am so so so so so happy for your good news. You are such a superstar!!! This made my day!!!!!!!!!!!!!!!

Maureen

Joan M
08-12-2010, 01:23 PM
Sheila,

Totally wondeful news.

Joan

Sandra in GA
08-12-2010, 01:34 PM
Shelia,
Thanks for sharing this wonderful news! I love your hair! You look and sound fantastic~
Sandra

Julie2
08-12-2010, 01:47 PM
Sheila,

I am so happy for you. You deserve this much needed good news.

Julie

Ruth
08-13-2010, 02:02 PM
Awesome!!! :-)

Mary Jo
08-13-2010, 06:31 PM
Darn it Sheila....Your post made my night! I could feel your joy in your post and it made me smile! So, so, so, so happy for you dear sister.

Love you and prayers for continued healing.....You are loved....

Mary Jo