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View Full Version : Scanxiety denied...license to breathe renewed


chrisy
02-01-2010, 05:00 PM
Dear friends,

This has been such a horrible couple of months with terrible losses...and despite feeling well I couldn't help but feel a sense of dread about my 4-month scans. I know we're all in serious need of some good news...

so I will share some.

I haven't seen the reports yet from my Pet/CT and Echo last week, but there was a message on my answering machine at home that used the words "scans" and "fabulous" in the same sentence...and that is enough for me for now!

The TDM1 is still doing the job!...and my focus is to try and stay healthy so I can continue on the study. Been having some issues with platelets lately, and my last labs were all over the place on the liver functions (but that could have been due to being in Las Vegas for the 3 days prior, including a few cocktails). Back to the beet juice and carrot salad for me.

So it's all praise to God, I feel so blessed...

and

I pray that approval and access for TDM1 will be accelerated quickly...

Gerri
02-01-2010, 05:08 PM
Fabulous indeed!!! You have fought long and hard for this - I am so happy for you.

Thanks for sharing your good news, we needed that!!

Julie2
02-01-2010, 06:10 PM
Thank you Chrisy,

It is so difficult with this disease and small kids. I take a long breath whenever I read some good news. I keep searching for the the options, is there a something I can do to be healthy? Please keep giving such news.

Julie

Laurel
02-01-2010, 06:28 PM
Congratulations, Chrisy! Yes, good news is so darn good to hear! Yea for you!

Faith in Him
02-01-2010, 07:56 PM
I signed on just to see if you posted. I'm so very glad you got the news we were all praying for.

I will be the one holding her breath tomorrow. CT scan at noon.

Tonya

Mary Anne in TX
02-01-2010, 07:56 PM
Chris, you keep me believing in the miracle of TDM1 for everyone! Thank you for sharing. Best wishes, ma

caya
02-01-2010, 08:21 PM
Thanks for sharing your good news, Chrisy.

We certainly needed some with the losses here lately.

Tonya - good luck tomorrow.

all the best
caya

Carolyns
02-01-2010, 08:23 PM
Breathing is good I hear. I think it was the trip to Vegas that helped the TDM1 work even better.

You go girl... I am so thrilled to hear your news!

Love, Hope, Peace, Carolyn

karen z
02-01-2010, 08:24 PM
Chrisy,
I am grateful for your news.
K

Chelee
02-01-2010, 10:59 PM
Chrisy, Such TERRIFIC news! I'm going to get up and do that happy dance...I'm so excited for you. WOOO HOOO!

Nothing like having fun in Vegas and coming home to wonderful news like that. I'm so glad you shared this with us. I can't wait till they make TDM1 available to all that need it. I can imagine the relief you felt when you heard that message. So nice to come check the board & hear some REALLY good news for a change. :)

Chelee

Jackie07
02-01-2010, 11:08 PM
Chris,

Thanks for sharing the 'fabulous' news. Here's a toast of 'beet juice' to you!

alicem
02-02-2010, 12:12 AM
Chris,

Thanks so much for sharing, I am so happy to hear such wonderful news. You have made my day!!

Alice

Pam P
02-02-2010, 04:43 AM
Chrisy - Fabulous! Music to my ears. So good to hear the tdm1 is working so well for you. I agree the sooner we can all get it the better. I hope you go celebrate in true Santa Cruz fashion which requires something truly funky and outrageous. Forget 'what happens in vegas stays in vegas" .... it should be 'what happens in sc! Can't wait to get back there.

I have scans - CT/Pet, echo, & ct of my sinuses coming up on 2/16. I sure hope to hear your "f" word about mine too. Pam

Ellie F
02-02-2010, 04:48 AM
Brilliant news! We all need a bit of it at the moment as so many terrible things seem to have happened together. Praying for you gals to get approval of T-DM1 soon then maybe, just maybe we might get it in England too!
Ellie

Lori R
02-02-2010, 05:52 AM
Chrisy.....Good news indeed!!!

Thank you for posting such wonderful results. It IS in inspiration for those of us waiting in the wings.

Glad that you were able to get away prior to the scan. Now....another trip is in order to CELEBRATE!!!!

Please know that you have personal cheering section.

Lori

MJo
02-02-2010, 07:28 AM
That's wonderful. Sorry you can't celebrate with champagne. Squirt a little club soda into the beet juice...gag.

ammebarb
02-02-2010, 07:37 AM
Chrisy, I'm so glad you have good news! We all wait with you for those scan results.

Barb A.

Lien
02-02-2010, 07:42 AM
Absolutely Fabulous!

Love

Jacqueline

Shobha
02-02-2010, 09:01 AM
So happy to read your good news, Chrisy! Keep up the fight and keep the good news coming...

hugs,
shobha

ElaineM
02-02-2010, 12:14 PM
This is fabulous news. I have my fingers crossed for you.

schoolteacher
02-02-2010, 12:22 PM
Chrisy,

Thank you for sharing. I really need to hear positive things at this point. I am so glad you got good news about your PET-CT scan.

Amelia

Ceesun
02-02-2010, 02:08 PM
Chrissy, Your news is the best! Really happy for you....and yes, your message couldn't come at a better time. It has been really rough around here. Hugs, Ceesun

Mary Jo
02-02-2010, 07:55 PM
Chrisy...Your post made my heart sing.....and yes, Praise be to God!

Your news was the hope many needed to hear.

Hugs and continued Blessings sweet lady...

Mary Jo

suzan w
02-03-2010, 09:47 AM
Phew!!! xo Suzan

PinkGirl
02-03-2010, 10:54 AM
tehetehe ... still chuckling over Pam's new "f" word ... love it.

Way to go ChrisyGirl!!!