Recommendations for 4 months or 6 months?

[Chelee]

I just got ahold of the "Consult notes & recommendations" from the (COH) City of Hope onc I went to for a 2nd opinion back in Sept. regarding trt options. My onc and the COH onc both agreed I would do Herceptin/Navelbine/Zometa. However after reading the COH recommendations she says I would be receiving Navelbine every 2 wks due to bone marrow tolerance. Then she goes on to say she would treat me for four months with the Navelbine/Herceptin after which she would discontinue the Navy Beans and maintain me on Herceptin alone. (I guess she is assuming 4 months of Navy Beans is all I'd need?)

But my onc decided to start me on "wkly" Navelbine versas the every 2 wk dose...and said I'd have it for six months instead of 4 months. Plus my onc said in 3 months she will run a scan to see if it's working. I wonder why the COH onc says only 4 months? Since I've recurred in so many places I'm surprised the COH onc said only 4 months? Especially with MBC that's Her2. Does this seem right?

Chelee

[Chelee]

I wonder why the 2nd opinion onc that I went too at COH that has much more experience and knowledge then my onc...seems to think only 4 months of Navelbine would be enough for me. Then after 4 months of Navelbine I would be able to go off Navelbine and just use Herceptin alone? (Just thinking out loud here...feel free to chime in.) lol

Chelee

[Chelee]

Ok...this is going rather well. lmao

Chelee

[Rich66]

Never heard of an onco-clairvoyant. Sounds pretty ideal. Did they use the cutting edge palm scan?

[Chelee]

Rich, rotflmao. I think you hit the nail on the head, that must be it! No palm scanner yet...but I'm pretty sure she will have it soon. :)

Chelee

[Lien]

Have you tried asking her? (Even if she doesn't have a great track record for communication skills so far, she may actually have thought this over. If she hasn't, it would be nice to know)

Love

Jacqueline

[Chelee]

Jacqueline, Actually the 2nd opinion onc that said this does have a good track record unlike my onc. I read this on my 2nd opinion's "consult & recommendation" notes I requested. That onc has a very impressive backround so that's why I was curious as to her comments? I put a call into her a week or so ago but haven't heard back from her yet?

It sure would be nice if she was right...just not sure how she comes up with that conclusion?

Chelee

[Lien]

Hi Chelee,
I think I hit the send button too quickly. Should really start reading my own posts before I send them. What I meant is, why don't you ask the onc that's coordinating your treatment. It seems s/he's a bit difficult to talk to. Perhaps there's a reason for choosing this protocol? Perhaps it's based on new information? Or better yet, get the two oncs to discuss it and let you know what they come up with. I wish I could just bring you to the Netherlands for treatment. I would know where to go, whom to ask, and it wouldn't all have to take so long.

Anyway, how is your poor femur doing? Is it healing?

Love

Jacqueline

[Rich66]

I think you can get a medical grade version of this (http://www.pomegranatephone.com/) with a palm scanner. Don't get me wrong, I love the idea. Both my parents' medical folks assured them they were "cured"...before they earned the advanced cancer badge.

[freyja]

That's pretty funny Rich. I got through all the features until I finally found out what it was for! I wish there was a medical version. "Mobile MRI!"
Sorry Chelee, I don't know much about what you're asking, but keep asking, I'm sure you'll find an acceptable answer somewhere.
Best wishes to you. Celeste