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View Full Version : My brain MRI - trick or treat?


StephN
10-31-2009, 11:09 AM
It was good news - a real treat! This one shows no new brain mets activity and the old scar areas of Gamma Knife treatment are perhaps receding a millimeter or 2.

It will be FIVE YEARS in January that the two mets in my brain were discovered and treated. How time does fly!!!

Discussed a few items with my rad onc. One was progress on better imaging. He says there is little improvement in these 5 years. Not enough to distinguish scarring/necrosis from actual tumor activity. Same problem many of us have had after treatment for brain mets. He says there are some promising studies, but funding is hard to get.

Secondly, should I continue to monitor so frequently (every 6 months now)? He says some in his field would argue to wait for symptoms after this long. But he feels that since I had NO symptoms in the first place, this is not a good option for me. Also, when my cancer starts growing it takes off quickly, and he prefers to catch anything new early. So, I will do the brain MRI routine again end of April.

Last argument for continued MRIs is that since I am not taking Herceptin now and have no coverage systemically, he feels even more strongly about surveillance at 6 months.

tricia keegan
10-31-2009, 02:33 PM
Steph, I'm so glad to read your good news!
You're an inspiration and in your position I think I too would like to continue the surveillance if only for piece of mind.
I really hope you continue to do as well as you already have and keep beating this:)

DianaT
10-31-2009, 05:20 PM
I want to be JUST like you!!!!!!!! Great news!!

Karen W
10-31-2009, 05:34 PM
Glad it's good news Steph... what a treat!!!

Karen

caya
10-31-2009, 06:22 PM
Thanks for sharing your wonderful news, Steph.
I would continue with those MRI's every 6 months - sounds like a good plan.

all the best
caya

P.S. Have a treat tonight - eat some chocolate, it's good for you!! :)

Sherryg683
10-31-2009, 08:36 PM
That news is better than getting candy this Halloween. I am sooo glad to hear you are doing so well...sherry

Chelee
10-31-2009, 10:42 PM
Hi Steph, That is absolutely wonderful news! I'm glad you & your onc have decided to continue with the brain MRI's. I know I would just for peace of mind alone. It's always nice to hear such good news!

Chelee

Rich66
11-01-2009, 02:13 AM
How did you get the original brain MRI w/o symptoms?

Ellie F
11-01-2009, 04:36 AM
Hi Steph
Such brilliant news is always a pick-me-up. Long may it continue.
Ellie

jones7676
11-01-2009, 06:00 AM
Hi Steph,

Such a great report! May it continue.

flynny
11-01-2009, 06:19 AM
That is incredible news! So happy for you.

MJo
11-01-2009, 06:58 AM
Congratulations. You got your holiday gift early!

Ceesun
11-01-2009, 10:17 AM
The best news ever! Ceesun

StephN
11-01-2009, 11:16 AM
Thanks, everyone!

Rich - I was stage IV and as such my med onc was monitoring my brain with an annual MRI whether I reported symptoms or not. The first time was to clear me for a clinical trial, and knowing how many of his HER2 patients had spread to the brain, he was not going to take chances after that.

schoolteacher
11-02-2009, 09:29 AM
Stephanie,

I am glad to hear the good news on your brain MRI. Are you going to the open house at the TVG? If you do, tell everyone I said, "Hi." If you should take any pictures, please send me some.

Amelia

Ruth
11-02-2009, 01:27 PM
Wow - this is awesome news and comes at a great time with Julierene's post.
Hugs ~ Ruth

michka
11-02-2009, 01:46 PM
Steph, just jumping in to say "BRAVO!". This news really makes me happy. Real Sun. Michka

ElaineM
11-02-2009, 08:55 PM
Great news Steph !! I would keep monitoring. "Better to be safe than sorry."

Joan M
11-04-2009, 02:12 PM
Steph,

Your test result is great news, and congratulations on your five-year anniversary since the appearance of the brain mets. Continued monitoring at perhaps 6-month intervals seems like a good option.

Joan