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View Full Version : Herceptin NED IV discussion and poll on portocol


Midwest Alice
10-24-2009, 06:06 AM
Hi Guys,
I meant protocol!

I’m doing a little study on us guys and gals who have been put on Herception only (at some point ) when NED, for more that a year.
My question is when Herceptin treatment was made indefinite:
Were you IV at first dx, became NED and stayed on Herceptin indefinitely?
Were you I-III, had a reoccurrence and became a IV, successful treatment to NED then put on Herceptin indefinitely?

I value this board and our knowledge and thank God for this place in space we have.
I have an appt, and have to run.. I hope there is some kind of logic to what I just posted. I hope to be on later today.

Love and hugs to all,

Mary Anne in TX
10-24-2009, 08:27 AM
Hey girl!
I don't think it has anything to do with what's cooking in Washington. I think different places just have different policies based on the way they deal with the insurance companies.
My friends at the center where I go that are IVs stay on herceptin forever, unless of course they progress and play with their treatment to stop progression.
I'd dig a little deeper and see what's really up!
ma

Midwest Alice
10-24-2009, 08:49 AM
Hey Mary Ann,
Thanks for the info on your friends that are IV at your center. My local onc said a IV would be on H forever. Thats the way I prefer to go, for now anyway. I see him in November.

Thank you Mary Ann