View Full Version : Scans tomorrow --
StephN
06-15-2009, 06:34 PM
-- could use some of your HER2support positive vibes.
It has been 6 months exactly since I left the comfort of my vitamin H (Herceptin) to dangle in the wind and hope to stay healthy on my own.
Had the labs drawn the day after I got back, but the HER2 serum result will not yet be back when I see med onc on Wed. Somehow, I feel this is an important marker as I have never made it this long without treatment since the year 2000.
karenann
06-15-2009, 07:44 PM
Thought and prayers are with you Steph.
Karen
Margerie
06-15-2009, 07:47 PM
will be thinking of you, positive vibes for your scans and hoping you can stay on the Herceptin wagon :)
chrisy
06-15-2009, 09:09 PM
Steph, sending good vibes for scans and labs that are both accurate and validate you are successfully walking that tightrope!
You are my hero!
Dear Steph,
sending you strong positive energy, prayers and huge hugs....
Jean
ElaineM
06-15-2009, 09:34 PM
Positive vibes and hugs going your way from the middle of the Pacific Ocean.
Pam P
06-16-2009, 03:02 AM
Steph - All good thoughts for excellent test results and continued health and NED status.
Jaimieh
06-16-2009, 03:46 AM
Steph keep dancing with Ned ... I hope your scans continue to be NED...
Brenda_D
06-16-2009, 04:13 AM
Sending you good thoughts Steph.
Dear Steph,Positive thoughts and prayers !
Believe51
06-16-2009, 06:15 AM
Steph, of course I will say special prayers for you tomorrow that include all the glorious ones I say each day for the same reasons, only more. As I say prayers for you every day to remain NED I envision that picture of you that is burned into my mind. Yes, this is my friend and I pray for only her at this moment. It is my daily tribute and my honor to say these special thoughts and while I am saying them I so feel like that person sits besides me.
As we are sitting side by side tomorrow and I revise this prayer for you, I will smile. Smile knowing you are one special lady that has taken me far away from all the trials Ed and I have ever faced. I shall smile with the pride and honor I have to see you in my world each day, to know you support and love me. But I will especially smile because I know the true spirit and can see the Angelic aura you ooze for all of us. God hears our cries and I am counting on him to hear mine. Please keep this special woman free of this beast so she may continue her work here......
....just helping Ed and I constantly is a full time job for you, Steph (smiling). Continue to live free and keep those thoughts in the back of your mind. We all will keep in the front of 'ours' that you remain NED so you may continue your dance! Dance Our Sweet Lovey and leave the rest of the praying to us. Copious amounts of love and respect and my complete honor.>>Believe51
schoolteacher
06-16-2009, 06:22 AM
Stephanie,
I am glad to hear you are back. I will be sending positive vibes your way. Let us know the results of your tests. I had my scans, CT-PET and brain MRI, at the first of June, and there was no sign of cancer. Yeah!
I had my ELISA test and Vitamin D test last week, and I am waiting on those results. I told Dr. McCune, I hope my vitamin D is in the 70 range.
I fly to Seattle on the 25th and have the vaccine of the 26th. If you are not busy, I would like for you to come to the hospital and us go have lunch afterwards.
I can't wait to hear about your trip.
Amelia
jhandley
06-16-2009, 06:33 AM
Dear Steph
I await your scan results with interest as we have a lot in common. In Oct I will have been 4 years NED on herceptin. I am having a brain MRI on the 2 July; having had a clear brain CT last week. Hopefully this will be clear and will act as a baseline for any thing down the road. I have had several visual disturbances which may be due to head injuries I received many years ago but since I have never had a brain MRI it will be good to have one done. Best of luck with your scan.
Jackie (down under)
Shobha
06-16-2009, 09:56 AM
Dear Steph,
I am sending lots of prayers for you to be NED in the body and brain. Praying your Her2 serum test will be good and you can carry on without Herceptin!
You are such an inspiration to me and your journey has always filled me with hope.
Love,
shobha
Sending our warm thoughts and prayers your way, Steph!
SuThorn
06-16-2009, 10:05 AM
Steph- I am sending positive thoughts your way and praying that NED is here to stay.
I am heading out your way on Sunday and have my final testing done at UW for the vaccine trial on Tuesday.
Warmest Regards-
Suzanne
suzan w
06-16-2009, 10:21 AM
We are back in Poulsbo for the summer...sending good luck across the water today for good results!!
Joan M
06-16-2009, 11:44 AM
Steph,
I'm praying for good results. Still NED.
Best,
Joan
Wishing you the best and will be praying everything
is good.
patb
Sending positive vibes from Canada to you Steph.
all the best
caya
sassy
06-16-2009, 06:55 PM
Steph,
Praying that NED is sticking around!
Mary Jo
06-16-2009, 07:03 PM
Hi Steph....Saying prayers for good things.......
Hugs ....
Mary Jo
Lori R
06-16-2009, 07:47 PM
Steph,
Letting you know I am thinking of you.
Please post as soon as you get the results so we can all rejoice with you!!
Lori
Darlene Denise
06-16-2009, 08:01 PM
Sweet, Smart Steph:
I'm vibrating while I type, all good, all for you! Did that sound right?!
My brain is not behaving at the moment, but I hope it will follow your lead. I will be waiting for your good news!
Hoping for only the best for you!!!
Darlene
Dear Steph,
Sending you good vibes and my best wishes.
Paty
StephN
06-17-2009, 02:36 PM
All the good energy here does wonders! Helped calm me during the waiting time. Oh, that NED - he can be persistent!
My outcomes were all good! Normal, normal, normal. Felt like a broken record, but not one you want to throw out ...
Bloodwork and tumor markers are all rock steady, and nothing concerning on the Ct scan of yesterday. I did have a DEXA to check my bone density today, which will have results next week.
My vitamin D level was still up to 45. This makes me feel that I will need to get my sun as well as keep taking the 2,000+ supplement per day. I slacked off on my trip as the pills are rather large and do not fit in my pill carrier!
So here I go forward another 3 months without my trusty Vitamin H!
alicem
06-17-2009, 03:09 PM
Fabulous news Steph! So happy for you!
Andrea Barnett Budin
06-17-2009, 03:49 PM
Hello twin Sister, Steph!
I just saw this. I am going tomorrow for my CT scans. I too am holding my breath and trying not to grind my teeth, as I flap untethered out here too.
Been 6 mnths since last CTs, which showed me stable. Been off Vit H since 7/24/08! Wow! I love it out here in Freedom, despite my clenched teeth.
I await your results, which I trust and pray are STABLE!
My Tumor Markers are now under control, by CA 27.29 and the Elisa Test (Her2 Serum Blood test). I am having my TM's checked again on the 29th. And my diagnostic mammog/sono on the 25th. Busy trying to act cool.
With love to you. I so relate... BIG hugs,
Andi
Mary Jo
06-17-2009, 04:56 PM
High 5's ya Steph! You go girl!!!!!!
Mary Jo
mamacze
06-17-2009, 06:48 PM
Hi Steph!
I am so glad I logged on tonight - just in time to get a smile from your post that all is well - I don't care how far out you are - when it is time for scans, the anxiety levels rise at least a tad - you go girl - such hope and joy you share with the rest of us - you are such an inspiration!
Love Kim from CT
sassy
06-17-2009, 06:55 PM
Yea Steph! Always thankful for good news shared.
Andrea Barnett Budin
06-17-2009, 06:55 PM
Truly thrilled for you Steph!
I want to be just like you. YOU ROCK... Hurray. And hugs...
chrisy
06-17-2009, 07:53 PM
Steph - I've never thought of you as normal, let alone
normal normal normal
I prefer
fantastic fantastic fantastic!
Steph,
I am smiling a big one for you :)
How great!!!!!!!!!!!!!!!!!!!
Andi....your good news is next!!!!!!!!!!!!!!!!!
Jean
Brenda_D
06-18-2009, 01:41 AM
Great news Steph!
and good luck to you, Andi.
schoolteacher
06-18-2009, 05:59 AM
Stephanie,
I am glad to hear your good news. Yeah!
Hope to see you when I come to Seattle next week.
Amelia
Diane H
06-18-2009, 07:02 AM
Very happy to hear your good news!
Big ole hugs, Diane
Ellie F
06-18-2009, 08:35 AM
Brilliant news!! So pleased to hear your happy outcome.May you have many more NED years.
Ellie
tricia keegan
06-18-2009, 09:25 AM
So sorry I was late to wish you luck Steph but am thrilled to congratulate you!!!!!
ElaineM
06-18-2009, 11:37 AM
Great news Steph !!!!!!!!!!
Mary Anne in TX
06-18-2009, 12:20 PM
Fabulous News!
Lori R
06-19-2009, 05:56 AM
Steph,
Whew!!! Another major milestone...thank you for keeping us posted.
Loving the good news!!! Lori
Shobha
06-19-2009, 09:46 AM
Most wonderful and happy news, Steph! Congratulations! May God bless you with NED forever!
love,
shobha
Believe51
06-19-2009, 09:36 PM
Big kudos to you Steph, I so share in your happiness. Bravo, bravo (standing ovation)>>Believe51
Just saw your update Steph with the fab news. Hurray!!
all the best
caya
Joan M
06-21-2009, 07:40 AM
Stephie,
Great news!
Joan
IRENE FROM TAMPA
06-21-2009, 04:24 PM
Steph am so happy for you can't say enough. I just read your post but my prayers are always there for everyone, everyday on this site.
Keep up the good work.
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