View Full Version : ~Lily's Update~October 1, 2008
Believe51
10-01-2008, 07:50 AM
Upon returning from our cruise I was too looking for Lily. I spoke to our flower last night and she said it was okay to post her update. First and most important, she does not want anyone to worry.....just keep praying and sending positive thoughts her way.
Lily had issues with the two big spots on her liver, there are 5 total. They were drained and filled right back up within 24 hours. She was so bloated and uncomfortable but was 'bearing with it all' the best way she knew how. Her new doctor who I love, love, love was right besides her all the way through everything and gave he two choices. Chemo or opt to remove part of the liver that had the 2 big spots. She had 30% of her liver removed.
She had a team of many doctors in charge of her care. If anything this has given her much comfort as she faces these new issues. She was rather impressed with her care thus far. Lily is in great care and my heart was smiling as she updated me.
Lily will still get her spheres, she is just trying to stay healthy for these new fights. Her spirits are so "Lily-Like" and we laughed and talked just like this is a passing shower. Afterwards, she will be back on the Tykerb train along with Herceptin.
So far she is healing slow but sure. They have removed her staples and she has been getting around alot better now.
I will update you when I find out more. For right now....she asks for continued prayers. She thanks you for the love and support, you guys are the best>>Believe51
PS: Sorry I have not posted since our return but my hands are their fullest right now as we battle these new brain mets/gamma knife adventure! Love Always
Gerri
10-01-2008, 08:20 AM
Marie,
Thanks so much for taking time to let us know about Lily. It sounds like she has really been through quite a lot, but still has her fighting spirit. Please tell her we are all keeping her close in our hearts and wishing her a speedy recovery.
Best of luck to Ed as he battles on!
Take good care,
Vi Schorpp
10-01-2008, 08:53 AM
Thanks so much for the update. This entire board has been worried about her. I hope you had a wonderful vacation. Best wishes for your journey with the gamma knife.
WomanofSteel
10-01-2008, 11:15 AM
Marie, first of all I hope that you and Ed had a wonderful vacation. You certainly deserved it! Secondly, I hope that now that you have rested you are both ready for Ed's new treatment. I really appreciate your update on Lily. We were oh so worried that we hadn't heard from her or about her. I am glad that she is being treated well and in good spirits. I am saying a prayer that she continues to heal and that things continue in a positive way. Thank you so much for taking the time out of your busy schedule to let us know what is going on. You are truly an angel. God bless you!
Marie,
Thank you so much for the update, we were so worried about Lily, all these days without news, I felt that something very serious was going on. I am sorry to hear she has been going through all this, but I am glad to know she has a great team of doctors on her side, and that she had a liver surgery and got rid of those 2 pest tumors forever, she made the right choice. I pray that she heals fast and get strong so that she can have the second Sphere procedure soon.
I hope you and Ed had a wonderful vacation. You are both also in my daily prayers.
Hugs,
KarlaV.
Lily, my friend,
Hang in there, things will get better soon, keep fighting. Sending lots of prayers your way for a speedy recovery. We all miss you.
Love,
KarlaV.
Ps.: I was very worried about you, so I went to your homepage and sent a message to one of your friends, Maruka, to know how you were doing (sorry). I sent you my phone number by PM, call me when you feel good.
Mary Jo
10-01-2008, 12:14 PM
Lily - so happy to hear you are fighting the fight with courage and you continue to move forward in treatment. May God hold you close - give you His peace and send healing.
So happy to hear news on you......
Love to you Lily.
Mary Jo
schoolteacher
10-01-2008, 12:52 PM
Marie,
I missed you and the Mighty Oak. I hope the Mighty Oak is doing well. I really appreciate you finding out about Lily. I will be praying for her.
Amelia
Mary Anne in TX
10-01-2008, 01:04 PM
Marie, so glad you are back safe and sound and ready for this next fight. And thank you so much for making time to update us on our sweet Lily! I'll keep praying and thinking good thoughts for Lily and for Ed. Much love and appreciation, ma
Marie Thank you for posting about Lily. Everyone has been concerned for Max's mom! You are such a good friend to everyone here. We are praying for your battles too with the Gamma knife...
Love ~ Ruth
Thank you for posting and telling us the how Lily is
doing. I will keep sending healing thoughts to her
and you and Ed also. Take care.
patb
Believe51
10-01-2008, 01:33 PM
Ed's gamma was the 10th of this month. All is well except the "Decadron" issues. I am not used to seeing his 'behaviorial' issues that this causes (large dose, weaning him to lower...whew!)....LOL. Update you all soon.>>Believe51
Marie,
As always thank you for your kindness.
As we always worry when we do not hear form our
sisters. Please tell Lily I am thinking of her and praying for a speedy recovery. She is missed here.
Becky
10-01-2008, 04:46 PM
My prayers and thoughts are with my flower Lily from Equador! Please let her know I am thinking about her Marie!
Marie,
Thanks for posting the update on our sweet flower Lily. I am praying for a speedy recovery from her liver surgery, and for continued success in her treatment.
Good luck to Ed as he fights those brains mets.
all the best
caya
sassy
10-01-2008, 06:07 PM
Marie,
Glad that you and Ed are back, and many prayers continue for you.
Thank you too for giving us the update on Lily.
Please tell her my prayers are with her.
Yorkiegirl
10-01-2008, 06:15 PM
Marie thanks so much for letting us know how is Lily is doing. My thoughts and prayes will certainly continue for her.
Jackie07
10-01-2008, 09:05 PM
Marie,
Thank you so much for the update on Lily. We will continue to pray for her recovery. Please take care of yourself while taking care of Mighty Oak.
juanita
10-04-2008, 07:45 PM
thanks for the update on lilly. i'll continue to keep her in my prayers. please keep us updated on ed too.
Faith in Him
10-04-2008, 07:55 PM
Marie,
Thanks for letting us know about our dear Lily. Lily, I am praying for your continued healing.
Best wishes to Ed on October 10th.
Tonya
hermiracles
10-04-2008, 08:06 PM
Dear Marie ~ thank you so much for the update on Lily. You really are an Angel Marie ~ everything you do for Mighty Oak and all the folks here. Im sure you've probably heard it a hundred times - but I hope you are looking after yourself too! It's not easy for any of us this whole process eh?
Oh and dear sweet Lily - you are so much in my heart and mind - I love your firey Spirit and your love of life and your family. Wrapping you in love and light and kindness Sister.
Blessings always
Hermiracles (Marilyn)
Soccermom
10-04-2008, 11:32 PM
Marie, Good to see you and the Mighty Oak have returned safely to the fold...I miss your posts !
Please tell Lily that she should concentrate on healimg and that we look forward to her feeling well enough to post,
Best wishes,Marcia
jones7676
10-06-2008, 09:18 PM
Thanks for the update!
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