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Faith in Him
07-26-2008, 09:54 AM
I did not get clean margins on my mastectomy several months ago. Unfortunately, I am still trying to get rid of what the drs are calling mircomets in my skin. I have been referred to UCSF for a special radiation treatment.

The name escapes me now but the procedure is to give radiation to my right chest wall, collar bone area and torso and then apply heat to the skin for about an hour. I will do this five days a week for four wekks. Apparently, I will burn badly and can expect the skin to breakdown significantly.

Has anyone else been through this? Also, my med. onc wants me to stop gemzar/herceptin for the procedure but the rad. onc believes I can stay on with just a little longer recovery time. Any suggestions?

Needness to say, I feel a little overwhelmed by this treatment but know that God will get me through this again.

Praying for all of you.

Tonya

Joan M
07-26-2008, 05:04 PM
Hi Tonya,

I think that you might be referring to hyperthermia, but I'm not exactly sure since there's a few variations on combining heat and radiation.

http://www.oralcancerfoundation.org/news/story.asp?newsId=1188

I'm glad that you will be getting what appears to be an aggressive, if somewhat novel, treatment, which is not done everywhere.

Please let me know when you find out the name of the treatment.

Your oncologist seems to be on top of things.

I'm praying that you'll be NED after the treatment.

Joan

Mary Anne in TX
07-27-2008, 02:00 AM
Hi Tonya! I don't know about the treatment, but I'm sure praying for it to be just the thing for you to be NED and have no more problems with micro skin mets or anything else. When do you start treatment? What is the source of the hour of heat? Please let us know what is happening and how you are doing. Much love and many prayers, ma

Becky
07-27-2008, 08:46 AM
Dear Tonya

I do not know anything about the radiation with the heat treatment after it. However, in general, I do know that adding chemo to radiation intensifies the radiation treatment.

I have several bc friends here from my cancer center who had local recurrences. Since they had masectomy and did not receive radiation, rads ended up being a big part of the treatment plan (both of these women I know had their tumor recur on the masectomy scar-line). Both had more surgery then rads but the medical onc and the rad onc added Xeloda to the plan while undergoing rads (neither was Her2+ but if they were, they probably should have had Herceptin too).

If I were you, I would discuss at least remaining on Herceptin during rads as this has a synergistic effect and then really, really talk to both doctors (rad onc and medical onc) on how much burning you could expect with just rads versus rads w/heat vs rads w/heat plus staying on Gemzar with Herceptin.

I know that you won't have just rads but for some women, it causes burning and rads with chemo causes more and I would guess rads with heat causes more burning than rads alone so would rads w/heat plus chemo put you into an area where you might not be able to finish treatment? That needs to be taken into consideration as you must finish the rads w/heat as it sounds like it should do the job and staying on the Herceptin throughout shouldn't affect the burn factor.

You need to explore that burn factor in order to assess whether to stay on the Gemzar or continue Gemzar afterwards. I hope this helps. Maybe others who have had a local recurrence and had rads can respond and help you with additional questions.