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Mary Jo
06-27-2008, 03:38 PM
Hello friends,

Maybe someone here could help. A friend of mine was diagnosed with stage IIIC primary peritoneal cancer a little more than a year ago. She underwent major surgery and 90 percent of the cancer was removed. The 10 percent left after surgery was because there was no sizeable tumors to remove. She did approximately 13 tri-weekly carboplatin/taxol treatments. Her CA125 number went from the high 900's to 17. So the chemo worked. However, now that she is off of the chemo (since February) her number has climbed back to 421 as of last Monday.

The reason for my e-mail is she asked me to help her search for the top gynecological oncologist in the country. She will be going to Cancer Centers of America on Monday but wants to get all her "ducks in a row."

So if any of you could be of help she and I would appreciate it very much. God works in mysterious ways...so I am trusting that He led me to you so you can be of help to my friend, Ruth.

Love to you all....

Mary Jo

P.S. Also she was tested positive for the BRCA 1 gene.

Bill
06-27-2008, 05:21 PM
Hi Marejo! I'll be praying for your friend to find an answer to her search. You take care, Love, Bill

Joan M
06-27-2008, 08:03 PM
Hi Mary Jo,

I've heard that Unversity of Pittsburgh Medical Center has a good cancer center. Also, it ranked 12th in the nation

Joan M
06-27-2008, 08:11 PM
Hi Mary Jo,

I've heard that Unversity of Pittsburgh Medical Center has an excellent cancer institute. It was ranked 12th in the nation for gynocological cancer by U.S. News: http://www.upmccancercenters.com/news/upci_news/2007/071307_honor.html

Wishing your friend the best, Joan

Also, the daughter-in-law of one of my girlfriends, a young woman who's a child psychiatrist, has been there for ovarian cancer treatment.

http://www.upmccancercenters.com/

The prototype for the radiofrequency cancer machine built by John Kanzius, the leukemia patient in Florida, was first tested successfully at the University of Pittsburgh Medical Center.

I'm sure there are also other top places your friend can look into.

Mary Jo
06-30-2008, 01:57 PM
Trying again and hoping someone has information.

Thanks,

Mary Jo

Lani
06-30-2008, 11:40 PM
I have no personal experience with him, having only heard him talk at other's lectures, but he operated on my mother twice while he was at UCLA--once for a cancerous condition(early stage, resulting in hysterectomy) , once for a noncancerous one. I was out of the country at the time, but she recovered well from both. I understand that he is considered quite an authority on a variety of OB-GYN malignancies.

http://med.stanford.edu/profiles/viewCV?facultyId=7246&name=Jonathan_Berek

swimangel72
07-01-2008, 07:38 AM
Sorry I can't help your friend with any doctor referrals Mary Jo, but I will be praying for her. Did she have a hysterectomy since she's Brca1 positive? I wonder if that's connected to her peritoneal cancer? Keep us posted as to what she finds out at the Cancer Centers.

My other prayer is that more young people in med school will enter the field of oncology and oncological research - and that they won't be turned off by insurance problems and malpractice suits.

Soccermom2006
07-01-2008, 09:15 PM
Marejo,
have her post on the message Boards @ www.facingourrisk.org (http://www.facingourrisk.org). Everyone there is BRCA+ and they are hooked up with some of the best Gyn oncs familiar w BRCA protocols and treatments,tell her to say Soccermom sent me...Hugs marcia