New Study for Her2

[Verna]

Ladies,
I'm getting ready to start a Phase II Study using Herceptin/DM1. Anyone done this treatment or know of anyone who has? Thanks for any comments.
Hugs-Verna

[runtolive]

hey verna.. congrats... the tras-dm1 study is going very well.. right now, 5 ladies from this board are using tras-dm1... barb, mpb, chrisy,lily.. and someone else who escapes me at the moment. i think eric's wife caryn is checking out this study also..

lilly did well on it for the last 4 months ,but now had a hiccup..

ky home starts next week on the 13th....

please keep us posted.. since you are in florida .. i presume you are doing the every 3 week dosing schedule..

run to live

[Verna]

Run to Live,

Is that what it's known as...tras-dm1? I've heard some call it Super Herceptin. I'm just excited to be part of it. I will get my first treatment Monday, and I will keep you all posted on the results. This is very exciting to me. I feel this might be the miracle treatment. Yes, it will be every 3 weeks.
Hugs-Verna

[Karen W]

Vera,

I am so happy for you.

Hugs, prayers and positive thoughts being sent to you.

Karen

[Vanessa]

Good luck with your new treatment. I will keep you in my thoughts and prayers.

[runtolive]

verna.. when are u scheduled to begin treatment.

run

[BonnieR]

Verna, you probably have had your first treatment now. Hope to hear how it went for you.
Best wishes. Keep the faith.

[runtolive]

verna.. how was your first treatment.

[Barbara H.]

Hi Verna,
Go to the clinical trial message section to learn more about how members are doing on this trial.
Best wishes,
Barbara H.

[rinaina]

Hope you have great results with this new treatment. Let us know how it is going.

[Verna]

Hi all,
Just wanted to check in with you all and let you know I've had my 2nd treatment a week ago. The first was just like the first time I did Herceptin...flu like symtoms, the second one, piece of cake.
Sorry I have not responded sooner, been so busy.
More updates after I get my PET scan.
Hugs-Verna

[runtolive]

verna.. how has the new treatment been going.. did u have the pet scan yet..

run to live

[lilyecuadorian]

verna, in my treatment center all the lady's that are enroll are doing fine with DM1

[runtolive]

lily .. how many tras-dm1 are being treated at your site in NC...

run to live

[lilyecuadorian]

maybe 4 they are doing well

[Verna]

Ladies, my 3rd treatment was Monday. I have a PET scan tomorrow. Hope to have results on Friday to share. All has been good so far. Just a few things; dry mouth, hands & feet feel like the old Taxol treatment (numbness & tingling)and, hard to focus on my vision.
Hugs-Verna

[runtolive]

verna, how has the trial been going...

run

[Verna]

Update on T-DM1 study:
Had 5th treatment Monday. All going good. PET/CT scan good, cancer out of my liver and back nodes. I have another one on the 18th. Anyone ever hear anything about these scans being harmful?

[DanaRT]

Verna,

Glad to hear your treatments with the tras-dm1 are going well.

Dana

[chrisy]

HI Verna,

Glad to hear you're doing so well! I'm in the same study and just had my 6th treatment Wednesday...so I'm due for another set of scans.

I too am not happy about the number of scans, it just doesn't seem good to have all that radioactive stuff over and over. I'm now on a 28 day dosing schedule instead of the 21 days, so at least I will get to have an 8 week interval instead of 6 weeks!

On one hand, they want to be sure they can tell what's going on with the efficacy of the treatment...but geez!