pet/ct and bone mets

[kacey]

Anyone have bone mets on pet scan that didn't show up on bone scan?My x-rays and bone scan are inconclusive. My back feels like it is going to break!!!!
Trying to get a pet scan soon.

Kacey

[Lala]

Kacey
Hugs sorry you are in Pain. Ask your doctor for some pain pills to help relieve your suffering. It sounds like you need new tests for sure.
When I take the PET scan I am given a special diet. This diet is given to insure that I have no glucose in my system prior to the test. This also insures accurate results. I would suggest you ask for a MRI of the spine as this shows in detail the spine bones. Also Tumor Markers would be needed ask for cea and ca 27-29 atleast to be used as a baseline.

I use the MRI of the Thoracic and Lumbar to see my spine bones. The bone scan is used for the rest of the body. I do get xrays of the spine 2 views as well. I wish you the very best.

Hugs

[kacey]

Lala, Thanks for replying. Had a CA27/29 about 5 weeks ago as a baseline. It was 28 out of a 38 range. I will see which they want to do(MRI or Pet). But I'm going to hang on like a bull dog and get one or the other. I do take tylenol#3 when I can't stand it anymore but my GP doesn't want me to take too many as in Jan. they just got me off pain pills(prescribed) which put me in a coma. So I'm really careful. Thanks again!!

Kacey

[Brenda_D]

The first scan I had was a Pet/CT and it showed mets to bone in several spots. After chemo, when I went to get rads, the rad onc sent me for a bone scan, and it showed no evidence of bone mets.
The rad onc says the pet/ct sometimes shows things that aren't there.
So, whether they really were there and the chemo killed them, or they were never there at all, for now all I know is there is NED as far as anything in bone.
I assume at some point post rads, I will have a new pet/ct to see what it shows.