Medical Records - How much is enough/too much?

[Kimberly Lewis]

I have been wondering about getting all my records from each provider... It seems like a good idea to have but I am sure there are a bunch of wasted papers in there. I have major scans, Pathology reports, muga's, but wonder if I am falling short on this. What do you guys think, what have you needed or felt neccessary. Is it best to be thorough in case it is needed for clinical trials or somthing else?
thanks all,
Kim

[Shell]

Kim-

I get them, as I usually get a second opionion when I get a reoccurrence, or when I change chemos - I was also in a clinical trial, and needed it for them...

Regards,
Shell

[tousled1]

Kim,

I have all copies of lab work, scans, etc. The only thing I don't have are the doctor's notes. I think it would probably be a good idea to get as much as possible. Most providers charge a fee for your records -- at least they did in VA. When I moved from VA to GA last year I went to each of my providers and got my complete medical file from each. Most of them charged per page and I think there was one provider that just charged a set fee. I feel it was worth it. Who ever knew that I'd be diagnosed with cancer! I sure was glad I had all my medical records.

[IRENE FROM TAMPA]

I ALWAYS get copies of my lab work & scans each time. I have records going back to 1996 which I have used for comparisons. You are correct, there is an awful lot of paperwork if you ask for everything. Your doctors office/hospital can always give you copies if you need them. I just asked for copies going back several years when I entered the Tykerb study. I did read them but it is a lot of paper.

I would however, ask for your blood work & scan reports to keep on hand.

Take care