hannah68
06-28-2006, 06:29 AM
Dear All,
I am being foolish tonight, posting this for all to see..( by the way it's night time in Malaysia), but I have this urge to tell everyone that I am having a relapse. I am diagnosed with brain mets early this month. I got seizures and was admitted to the hospital. Did the Brain CT Scan, the result showed there are 2 lesions.Did the Bone Scan and CT Scan on other organs, NED. Underwent WBR, 20 GY, for 5 days.
Went to two different oncologist, both recommends Temodar and maybe Gamma Knife if the lesions are still there after finishing Temodar. Will continue herceptin because my husband and I strongly believe it is working for my other organs except unfortunately it didnt managed to break the BBB. We are mad because my usual Oncologist wants me to discontinue Herceptin because he doesnt believe it worked.
But we fought hard about taking Herceptin at his hospital and finally managed to convince him. I am taking Herceptin tomorrow and Temodar next week.
Enough foolishness from me. Wishing everybody good health too and take care.
Hannah68
D'xd in Feb 2005
Her2+++
Grade 1,
Stage 3,
(ER/PR-),Neoadjuvant AC, Mastectomy,15x RT,finishing a year Herceptin treatment in Sept 2006
Brain mets June 2006
I am being foolish tonight, posting this for all to see..( by the way it's night time in Malaysia), but I have this urge to tell everyone that I am having a relapse. I am diagnosed with brain mets early this month. I got seizures and was admitted to the hospital. Did the Brain CT Scan, the result showed there are 2 lesions.Did the Bone Scan and CT Scan on other organs, NED. Underwent WBR, 20 GY, for 5 days.
Went to two different oncologist, both recommends Temodar and maybe Gamma Knife if the lesions are still there after finishing Temodar. Will continue herceptin because my husband and I strongly believe it is working for my other organs except unfortunately it didnt managed to break the BBB. We are mad because my usual Oncologist wants me to discontinue Herceptin because he doesnt believe it worked.
But we fought hard about taking Herceptin at his hospital and finally managed to convince him. I am taking Herceptin tomorrow and Temodar next week.
Enough foolishness from me. Wishing everybody good health too and take care.
Hannah68
D'xd in Feb 2005
Her2+++
Grade 1,
Stage 3,
(ER/PR-),Neoadjuvant AC, Mastectomy,15x RT,finishing a year Herceptin treatment in Sept 2006
Brain mets June 2006