Scans: Stable!

[Lolly]

I had scans last week, PET/CT and MUGA, and the news is good: MUGA stable at 50.3%, and PET/CT showing minor activity in the area of concern, the right axilla, with the largest node now slightly smaller...PLUS, the left supraclavicular node not showing any activity at all! This is very good news to me, I am thrilled, especially since I'm on the smallest dose of Xeloda, 500mg 2x's daily, along with my maintenance Herceptin. Just wanted to let you all know:)

<3 Lolly

P.S. Haven't had a Brain MRI yet; my regular onc is on vacation so I'll be talking to him about that when he's back next month.

[karenann]

Great news, Lolly!!!

Karen

[suzan w]

way to go!!!

[RhondaH]

and many more "good" tests. Take care and God bless.

Rhonda

[Helen]

Yeahh! Great news.

Take care,
Helen

[madubois63]

Stable is sooooo very good to hear!!! Keep up the good work!!!
Maryann

[Cathya]

Lolly;

Wonderful news!! Time to celebrate...and wow what a relief.... I am happy for you.

Cathy

[kimber]

Congrats!!!!!!!!! Keep kickin some ass! - kim

[tousled1]

Great news! Keep fighting.

[StephN]

Lolly -

This IS good news, especially since you are chipping away at these nodes with "small artillery" and it is having the desired effect. More of the same, please!

[RobinP]

Thanks for the good news Lolly; way to go.

[mamacze]

Dear Lolly,
This is wonderful news; especially the response in your nodes...I wonder if your vaccines have come in to play...keep us posted on your brain scan...
love Kim from CT

[sherri]

Great news Lolly. I hope the next one, will show no activity at all. You can do it!

Hugs and kisses,

[Kim in CA]

Lolly,

That's so great! I know what a relief that must be. Keep up the good work!

Love, Kim]


P.S. I was having the exact same computer problems that you experienced. I kept getting the "attempted attack warnings" and then my computer would freeze. It only happened on the Her2 site. Everything is working fine now(knock wood!)

I really missed my daily Her2 fix! (even if I don't always have time to post)

[Ann]

Lolly,

What a relief for you. It's great to hear good news.

[TriciaK]

What great news, Lolly---and no one deserves it more! We'll be watching for good news on the brain scan, too. Hugs, Tricia

[lexigirl]

Lolly,

I have been away from the boards for a while. I am really happy to read the good news!!

Lexi

[chrisy]

Great news, Lolly - keep it up and let's add a clean MRI to the list!
Chris

[dee]

great to hear your good news!

[Julie2]

Lolly,

I remember you saying that your Her2 serum score is around 12, which is in the normal range. I am wondering why is it in the normal range when you had an evidence of desease in the lymph nodes. I am also getting this test done and it is always in the normal range between 6 and 8. Now I am really suspecious whether the test is reliable for small mets.

Julie

[sassy]

Wonderful news Lolly, Congrats!


Sassy
________
Carla.x (http://www.girlcamfriend.com/cam/Carla.x/)

[Lolly]

Julie2, that's a good question and I guess I'm not sure if the test is going to be accurate for me or not. When my onc agreed to the test, he said we'd run it for a few months then look at the results. I think the value of the test is in looking for a pattern. If one starts out at low numbers, then the numbers start rising, that would perhaps indicate trouble brewing and that scans were in order. In my case, my numbers started out in the high-normal range, but the last test showed a big drop:

03/28/06 - 12.7
04/25/06 - 11.5
05/24/06 - 6.8

Since I still have activity but it's considered minor and my overall condition is stable, what we'll probably be looking for if my onc decides to continue monitering me with this test is a rise in numbers, which is supposed to indicate progression.

Your numbers are in the mid-normal range, which I think is good. You have a good baseline to compare with future test results.

I look forward to seeing my oncologist when he's back from vacation, for his input on this. I'll let everyone know how that goes.

[chrislmelb]

Very happy for you Lolly.

Christine

[sarah]

Dear Lolly,
I am so happy to hear your good news. You are so inspiring to all of us with your great attitude and your knowledgeable advice. I hope the next scan will show no activity. Will they do an MRI as well?
Good luck and all the best with your health and life.
Sarah

[Julie2]

Lolly thanks for the explanationation regarding the her2 serum test. Congratulations on the stable scans and hope for the clean scans next time. Julie

[AlaskaAngel]

Delighted to hear it, Lolly! It really pays to stay informed and direct your own care and you are a great example of that....

A.A.