lymphangitic carcinomatosis

[CathyB]

Has anyone out there in Her2 land ever been diagnosed with lymphangitic carcinomatosis?
Would appreciate any info anyone has. Cheers, CathyB

[Sandy]

What are the symptoms? Have not heard of it. Hugs, Sandy

[cathyb]

symptoms are shortness of breath, pleural efflusions that come right back after draining generally due to spread of cancer into the lymphatics of the lungs as I understand it. Don't know too much more. cathyB

[Christine]

I've had pleural efusion to the left lung lobe, as a resut of lenlarged Ca nodes under my chest wall. It was not drained, but was progressing rapidly during A/C chemo which I stopped taking after 3 cycles. I asked the Onc to go on to herceptin instead, my next line of therapy. I was then given herceptin-taxol and the fluid literally evaporated 3-4 days later. It was unbelievable, but truely a relief. Hope herceptin works as well for you. Hugs, Christine