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Lisa
05-19-2004, 01:31 PM
...I don't take that 1/2 daily. I take it only a few times a week, since daily dosage made my nose bloody. I understand that as long as you don't miss more than 48 hours between doses, it's O.K.

Love and light (again),

Lisa

Lolly
05-19-2004, 02:28 PM
OK, here goes. BUT, keep in mind this is very rare. Don't want anyone to be unnecessarily spooked into not having a port, I love mine!
If the catheter fractures due to "pinch-off syndrome" OR a clot causing an occlusion and therefore pressure which could conceivably cause a catheter fracture, the fragment(and clot possibly) travels to the heart first, which is what happened in my case. It was retrieved via an angioplasty-type procedure and I was told it was fortunate it didn't travel from the heart into the lungs, the next stop, as that can cause a stroke or worse.
We don't know for sure what caused my catheter to fracture, if a clot formed and caused enough pressure to induce the fracture, or if because the catheter was being pinched between the clavicle and rib that's what caused it to break.
Anyway, I had another port put in, and it was positional, meaning I had to be situated just so or it wouldn't draw or infuse. This is also how my first port behaved, so after six months of trying to get it to settle down, we all decided it was not worth the risk and worry and I had a third port put in; this time the surgeon bypassed the rib/clavicle junction and instead inserted the cath in the shoulder vein. It works beautifully.
Again, I have to stress that this is VERY RARE, and should not discourage anyone from having or keeping their port. Just watch for problems with getting a blood return, or drawing blood for tests, problems infusing, etc. The infusion nurses should be watching for these signs.
Hope this is helpful,
Love, Lolly

Sandy
05-19-2004, 08:40 PM
I was using my port for blood work but then the nurses are unable to get a blood return. I had the dye test done under x-ray and found it to be laying against the chest wall. I have never taken coumadine but there are a few that do where I go for treatment. Hugs, Sandy