To Steph N.

[Lisa]

Steph,

I read your response to Staci with great interest. I was diax with bone and liver mets (numerous, 20-25%) in Sept. and have been on Navelbine and Herceptin since. So far, really good results. Your story is an inspiration for me, as well as others I'm sure.

Love and light,

Lisa

[Anonymous]

Hello Lisa -
(Meeting so many lovely women on this site!)
Yours is one of numerous "great news" stories for the Navelbine and Herceptin combo. (They have a high synergistic involvement with each other.) I have a friend whose bone mets recently recurred. She is on navelbine with fab results in a short period of time. She is also Her2+ and was quite downhearted until her first scan and saw how well the drug was working.
It pleases ME to be able to have a good result personally to share with you gals. This board has also done me some good and I now check it almost every day!
Keep those inner candles lit!

[Jerri]

Steph N.,
Thank you for your responce. While on Herceptin only, and NED, I was not having weekly blood counts. This seemed reasonable to me since Herceptin doesn't decrease your counts. During one treatment we did a CBC and found my hemoglobin to 7. In retro spect I was feeling more fatigued than usuall over several months, but living with this disease I honestly didn't process that mentally. My onc felt the most common cause would be a gastrointestinal bleed from somewhere. I then had an upper gi endoscopy that was normal, a lower gi endoscopy that was normal. Fortunately my gi doctor recommended a capsule endoscopy-where you actually swallow a large vitamin like capsule that is really a camera that records everything while passing through. This way they can see the small intestines where the endoscope can't reach. Sure enough they found a lesion in my small bowel. My rountine, every 3 month CT scans did not pick this up. I hope this helps.

Jerri

[kathy]

Was this considered a new primary tumor or mets from the breast ca?

[Lisa]

Steph,

Can you please e-mail me at lisalowe@qwest.net?
Thanks.

Love and light,

Lisa

[Steph N]

Done - you should have it by now!