Kristen
09-10-2004, 07:22 AM
I am very happy that my scan came back clean!!!
However, the pain persists. Who do you all talk to out there? Your oncologist? How often do you see them? I havent't seen mine more than 5 times and that could be stretching it since dx in Oct.03. I have asked for a new one, but won't meet until Oct. What difference does it make, they don't do anything anyway. At least not at US Oncology. They have not run one test post chemo or radiation. They tell me to go see another DR. Is that how you all are treated? My bp was 141/90 just having my blood drawn today. First they tell me I need PT, and I go and see my internest and she orders the ct scan. We use lidocaine patches to try and stop the pain. NO GOOD. The scan is good, go see pain management. The PA that I had it out with called this last Tues and said she ran my symptoms by my old onc. and she said it was surgical, go see your breast surgeon??? I have had it. I have no onc to talk to, no internist to continue treatment with. I just feel like a piece of crap that has been thrown around from one to the other. Does the onc. not want to run test because they are tied in with Genentech? or some insurance companies? My cousin who had bc, any time she felt something wrong he was on it. Same with Carlye. Do I just have the wrong doctors? Does anyone else have to to through all this? I am very sad. I feel let down by those who I spend a great deal of money on and need to trust with my life. I am glad I am healthy now and wish the pain would stop so I wouldn't have to see any of them ever again. Sorry this is so long again, but I need to vent. I just don't know who to trust and who I direct my questions to.
However, the pain persists. Who do you all talk to out there? Your oncologist? How often do you see them? I havent't seen mine more than 5 times and that could be stretching it since dx in Oct.03. I have asked for a new one, but won't meet until Oct. What difference does it make, they don't do anything anyway. At least not at US Oncology. They have not run one test post chemo or radiation. They tell me to go see another DR. Is that how you all are treated? My bp was 141/90 just having my blood drawn today. First they tell me I need PT, and I go and see my internest and she orders the ct scan. We use lidocaine patches to try and stop the pain. NO GOOD. The scan is good, go see pain management. The PA that I had it out with called this last Tues and said she ran my symptoms by my old onc. and she said it was surgical, go see your breast surgeon??? I have had it. I have no onc to talk to, no internist to continue treatment with. I just feel like a piece of crap that has been thrown around from one to the other. Does the onc. not want to run test because they are tied in with Genentech? or some insurance companies? My cousin who had bc, any time she felt something wrong he was on it. Same with Carlye. Do I just have the wrong doctors? Does anyone else have to to through all this? I am very sad. I feel let down by those who I spend a great deal of money on and need to trust with my life. I am glad I am healthy now and wish the pain would stop so I wouldn't have to see any of them ever again. Sorry this is so long again, but I need to vent. I just don't know who to trust and who I direct my questions to.