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Old 04-08-2013, 11:51 AM   #21
jaykay
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Join Date: Oct 2012
Posts: 645
Re: Cold Caps...

And I hijacked the hijack! We all need to vent sometime...
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 04-10-2013, 04:00 AM   #22
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Cold Caps...

Susan,

For constipation, my oncologist told me to use Citrucel and it worked. I still use it every once in a while as I do have diverticulosis and I haven't been able to exerice regularly for the past couple of years due to the effect of brain tumor (life-long Central Neurocytoma - unrelated to BC, but might have genetic links.)

Never had used cold caps, never shaved my head during chemo (2003, 2007). The hair fell off gradually and there were a few stubborn ones that never would go away. I wore a wig cushioned with a small silk handkerchief (which keeps the scalp cool) at work and wore a baseball cap at home. Couldn't go bald because I'm cold-natured (often due to iron deficiency anemia) and there's a huge scar accross my head from the 1990 craniotomy.

Now I'm home most of the time and I don't wear anything unless it's cold. Hairs in certain area (back side near the neck) have remained black. But all other parts are white - I was salt & pepper even back in high school. Mother had dyed her hair all the way till she's 70, a few years before she's diagnosed with NHL. (She's been doing fine, will celebrate her 90th birthday in half year.) But I only had dyed my hair for several years out of the urge of my late Mother-in-law (so I'd have better chance to find/keep a job). Once I was diagnosed with cancer, I quit touching any chemicals ...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 04-10-2013 at 04:05 AM..
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