Longtime her2 survivor -- no recurrance !

kjt96 · 06-21-2011, 04:41 PM

I just wanted to post a positive message to you ladies out there with the her2 receptor.
I found a lump in Oct 1998. After 2 surgeries, I was told that I had infiltrating ductal carcenoma with positive "her2/neu" receptor. At that time, my doctor said researchers had recently discovered this receptor and she did not know much about it at all. She tried to research it for me for more information with not much luck at all. All she could tell me was that it indicated a more aggressive and higher chance of recurrance breast cancer.
Long story short, I had radiation treatments (no chemo!!) for 7 weeks because there was no lymph node involvement, etc.
I AM STILL CLEAN TWELVE YEARS LATER !!
Keep your chin up and think positive and say "poo poo" to her2 !!!

donnalm · 10-24-2011, 04:42 AM

Thank you so much for posting this. I was diagnosed this past May...it brings me a lot of hope that you have been 12 years free!

Jackie07 · 10-24-2011, 09:51 PM

Many of our members (including some that had experienced recurrence) replied to the following thread (Positive stories, please come out of the woods):

http://her2support.org/vbulletin/sho...-time+survivor

You can also locate the 'long-time survivor' and 'long-term survivor' using the 'Search' button on top right of the Board.

I would suggest new members to particularly pay attention to the recurrence issue so it can be prevented...

KDR · 10-25-2011, 05:31 AM

Wow, thanks for posting! You were so very lucky to have caught it before lymph involvement. And amazing that you conquered it with radiation. What a great achievement.
Karen

Hopeful · 10-25-2011, 08:09 AM

Thanks so much for posting. It is wonderful to share the experience of a long time survivor that did not require the most aggressive possible treatment to get beyond Her2+ bc and thrive. You are giving hope to many.

Hopeful

ElaineM · 10-25-2011, 10:29 AM

Congratulations !! I am glad you are doing well. You are very lucky.
You are right. Not much was known about her2 before 1998. If you get a chance rent the movie Living Proof. It tells the her2 story and how the drug Herceptin was developed. It is based upon the book The Making of Herceptin.

chekmark · 10-26-2011, 04:33 AM

Wow what an amazing survival story. No herceptin, no chemo!Gives so many of us hope. Thank you for sharing the wonderful news. Check back in with us in another 12 years so we can all have something to look forward to. I hope we all can post such great encouraging news 12 years later. 11 years to go for me but who's counting. God bless. Darlene

YellowTail · 10-26-2011, 08:39 AM

It is so very nice and reassuring to hear from other tata-sistas who share their successful stories of their journeys! As I am sure you all know for us newbies it is so beneficial to read about your lives before bc, after bc including the challenges. Thanks