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04-13-2009, 11:19 PM
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#1
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,863
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Topical Solution relieving vaginal symptoms
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-14-2009, 12:13 AM
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#2
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 692
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Thanks Maryanne,
Does anyone know if lactic acid is the active ingredient in Replens?
Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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04-16-2009, 03:39 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 404
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Thank you, Harrie. I found a lactic acid gel that is being sold in the UK (Balance Activ) as a treatment for bacterial vaginosis, so if you are looking for something similar in the US that information might help you find it. Clino-San doesn't seem to be something that can be purchased very easily.
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04-18-2009, 06:24 PM
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#4
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Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,197
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you can't blame a girl for trying...
Harrie-canary...FYI - I emailed the clinical trial doc in Korea! regarding clino-san. Here's (her?) (gosh I hope it wasn't a guy) the reply:
First of all, Clino-san (pH-balanced vaginal gel) is available in Europe and Korea. However, I'm not sure it's available in the US. And, our clinical trial was closed last Feb. I'm sorry that I cannot help you.
But, how about to try vaginal lubricant? Replens is one of the vaginal lubricants effective on vaginal atrophy, and this agent is available in the US.
I hope you will get well soon.
Kindly regards,
Yookyung Lee
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1996 cancer?! 1.3 cm lumpectomy(20nodes NEGATIVE) CMF + rads.
’02 recurrence. bilats.w/recon. ACx2. skin lymphatic rash. taxotere w/Herceptin x4. Herceptin/zeloda.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. continue herceptin only thru 4/04 NED.
‘04 '05 & 06 tiny recurrences - scar line – cut out, cut out, cut out.
1/06 RE-radiation to scar line. NED.
3/07 mets! lungs.sternum. Tykerb/Xeloda boo. Tykerb/Carbo/Gemzar boo.
12/07 Herceptin.Tykerb.GOD.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE. Sternum boo.
4/09 attack sternum: rads for the third time…
(10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 trial but then 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Doctor is perplexed at such improvement without treatment. Cautiously Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal
MAR 2011 stop Herceptin - weird allergy. Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva. (premeds for Herceptin now)
Sept 2011 Tykerb, Herceptin, Zometa, Avastin. (switched back to Zometa, pet/ct bone mets seemed worse on Xgeva)
April 2012 – drop everything and join a sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST GAMMA ZAPPA, ALMOST 6 YEARS STAGE 4 AND 17 YEARS FROM ORIGINAL DIAGNOSIS! continue Herceptin, Avastin, Zometa, Perjeta
APRIL 2013 - cancerversary 17 years from original diagnosis. 6 years stage 4.
"FAILED" PETscan on 4/2 (WTF) so have no idea how I'm doing and am not sure how soon to safely repeat...feeling very close to the edge.
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04-18-2009, 06:46 PM
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#5
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Senior Member
Join Date: Apr 2008
Posts: 1,266
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Wow Flori- you really did try!
Thanks!
kz
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04-19-2009, 09:54 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,863
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Yes, thank you Flori! Good work!!
Harrie...Canarie...
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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