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Old 10-18-2006, 03:42 PM   #1
concerned
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Cross post--what do I ask

I will be taking a loved one to a second opinion tomorrow and am at a loss for intelligent questions to ask. She is stage 1 Her2+, grade 3--the plan is chemo for 12 weeks, 6 weeks of raditation and herceptin for a year once chemo is finished. What would you recommend? Since I waited til the last minute, I thought I'd try both places. Thanks.
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Old 10-18-2006, 03:58 PM   #2
rinaina
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I am also stage I grade 3 her2+. Is your friend ER/PR negative or positive and were her nodes negative or positive? The answers to these questions can make a difference in treatment. I was node negative and er/pr negative. I had 12 weeks of AC and 6 1/2 weeks of radiation. The last nine radiation treatments were what they call a booster directly to the site of the tumor. I started herceptin in early September and will continue if all goes well for a year. I wish your friend the best. Once she is done with chemo the rest is easy.
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 10-18-2006, 05:18 PM   #3
concerned
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Er/PR-, nodes negative...your plan sounds just like hers. Just looking for the miracle drug/idea/plan, I guess. Thanks.
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Old 10-18-2006, 05:29 PM   #4
Moni
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Er/pr

quick question - I'm trying to go through my sis-in-law's doc reports here but it only gives me a percentage next to ER and PR. How do I know its positive or negative?

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Old 10-18-2006, 06:27 PM   #5
Hopeful
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Moni, the percentage next to the ER and PR shows the percentage of cells that test positive for the receptor. There seems to be a lack of consensus among various laboratories as to what percentage of cells has to test positive for the result to be called "positive." Some places say anything over 1% is positive and others say 10% is the cut off point and I have seen as high as 20%. Knowing the relative number of the cells that stained positive gives you more information than a blanket "positive" or "negative;" the onc can make more refined treatment choices with the level of detail you are looking at. Hope this was helpful. Best of luck to your sister-in-law.

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Old 10-18-2006, 06:41 PM   #6
Moni
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Thank you for your input hopeful!

I'm actually hopeful to find the right oncologist for her, obviously right now after the mastectomy she's been left alone with no treatment plan which makes me furious over here. Not much I can do but whatever I can do from here I will do.

Good luck to you,
Moni
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Old 10-18-2006, 07:00 PM   #7
Bev
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C, I might ask about having 12 weeks of taxol with the first 12 weeks of Herceptin. Studies suggest that Herceptin and taxol work especially well together. If your loved one is relatively healthy she should be able to tolerate the additional side effects. The taxol is routinely done with stage 2A. The only difference between 1 and 2A is a centimeter. You could also get an oncotype test to see what the risk of recurrence is. Good luck. BB
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